Purpose: Premature birth may be associated with infant health problems and frequently requires in-hospital and then at-home specialized care. Studies investigating home-caring experiences of mothers of preterm infants in developing countries are limited. This study was to explore preterm mothers' experiences of caring practices at home 1 month after their infant's discharge from a neonatal unit.Design and Method: A descriptive qualitative study using in-depth interviews with eight purposively sampled mothers who had been discharged home from neonatal unit in one city in Indonesia. All interviews were audio-recorded, transcribed verbatim, and analyzed using thematic analysis.Result: Three main themes emerged: (1) transition to independent motherhood, (2) focus on care of infant after discharge, and (3) barriers and enablers for care. The mothers managed their infant care at home by focusing on feeding and managing infant health problems. They faced on myth and culture as one of the barriers.Conclusions: Comprehensive discharge education for mothers of preterm infants and their families is required to enhance mothers' caring abilities and overcome barriers is sufficient. Nurses/midwives need to improve care related to the wellbeing of mothers and their infants in preparation for, and after, discharge from the neonatal unit.
K E Y W O R D Shospital discharge, independent motherhood, myth and culture, neonatal intensive care unit, premature infant
WHAT IS ALREADY KNOWN?Some studies have focused on parents' emotional experiences after their infants' discharge from the neonatal unit; however, little is known about mothers' caring practices for their preterm infants at home in the first month after discharge.
WHAT THIS PAPER ADDS?This paper shows assuming home-caring practices for preterm infants by Indonesian mothers were initially challenging as they faced wide cultural variations and beliefs from their families that impacted on mothers' and infants' daily lives and health. Mothers of preterm infants described a gradual process whereby they achieved independent motherhood after discharge from the neonatal unit.Home-caring focus areas included feeding (weight gain) and maintaining infant health; along with managing internal factors and family/community beliefs/traditions that influenced their caring practices at home.