Search citation statements
Paper Sections
Citation Types
Year Published
Publication Types
Relationship
Authors
Journals
BACKGROUND Medical data sharing initiatives are crucial for advancing research, improving patient outcomes, and fostering innovation in healthcare. With the advent of blockchain technology, there has been significant interest in exploring its potential to enhance the security, transparency, and efficiency of medical data sharing. OBJECTIVE This study aimed to survey and analyse various medical data sharing initiatives, focusing on their use of blockchain technology, incentive structures, ownership models, governance mechanisms, business models, transaction models, and sustainability strategies. The objective is to provide a comprehensive overview of the current landscape and identify factors that contribute to the success and longevity of these initiatives. METHODS The study employed a snowball sampling methodology to identify relevant initiatives, using a combination of academic literature reviews, web searches, and consultations with experts. Identified initiatives were screened and analyzed based on predefined criteria, including organization, description, country, blockchain usage, incentives, ownership, governance, business model, transaction model, and sustainability. A re-analysis was conducted to assess the current operational status of the initiatives RESULTS The survey identified 42 medical data sharing initiatives. The majority of these initiatives were based in North America and Europe, with a significant number utilizing blockchain technology. Incentives for participation varied, with many initiatives relying on self-interest or altruistic motivations. Ownership models included private, public-private partnerships, and membership-owned structures. Governance models were diverse, with board-based and regulation-based mechanisms being the most common. Business models predominantly focused on for-profit structures, with various transaction models including direct monetary transactions, single token systems, and reward-based mechanisms. Sustainability strategies were varied, with selling access to users and membership fee-based models showing higher rates of continuation. CONCLUSIONS The survey highlights a diversity of approaches in medical data sharing, with blockchain technology playing a significant role but not serving as a universal solution. Various incentive, ownership, and governance models reflect the evolving nature of the field, with for-profit business models being predominant. Sustainability strategies range widely, aiming to balance revenue generation with accessible data provision. These findings emphasize the need for context-specific frameworks that address privacy, security, and ethical considerations while promoting efficient and equitable medical data sharing.
BACKGROUND Medical data sharing initiatives are crucial for advancing research, improving patient outcomes, and fostering innovation in healthcare. With the advent of blockchain technology, there has been significant interest in exploring its potential to enhance the security, transparency, and efficiency of medical data sharing. OBJECTIVE This study aimed to survey and analyse various medical data sharing initiatives, focusing on their use of blockchain technology, incentive structures, ownership models, governance mechanisms, business models, transaction models, and sustainability strategies. The objective is to provide a comprehensive overview of the current landscape and identify factors that contribute to the success and longevity of these initiatives. METHODS The study employed a snowball sampling methodology to identify relevant initiatives, using a combination of academic literature reviews, web searches, and consultations with experts. Identified initiatives were screened and analyzed based on predefined criteria, including organization, description, country, blockchain usage, incentives, ownership, governance, business model, transaction model, and sustainability. A re-analysis was conducted to assess the current operational status of the initiatives RESULTS The survey identified 42 medical data sharing initiatives. The majority of these initiatives were based in North America and Europe, with a significant number utilizing blockchain technology. Incentives for participation varied, with many initiatives relying on self-interest or altruistic motivations. Ownership models included private, public-private partnerships, and membership-owned structures. Governance models were diverse, with board-based and regulation-based mechanisms being the most common. Business models predominantly focused on for-profit structures, with various transaction models including direct monetary transactions, single token systems, and reward-based mechanisms. Sustainability strategies were varied, with selling access to users and membership fee-based models showing higher rates of continuation. CONCLUSIONS The survey highlights a diversity of approaches in medical data sharing, with blockchain technology playing a significant role but not serving as a universal solution. Various incentive, ownership, and governance models reflect the evolving nature of the field, with for-profit business models being predominant. Sustainability strategies range widely, aiming to balance revenue generation with accessible data provision. These findings emphasize the need for context-specific frameworks that address privacy, security, and ethical considerations while promoting efficient and equitable medical data sharing.
(1) Background: With the increasing digitalization of healthcare systems, data security and privacy have become crucial issues. In parallel, blockchain technology has gradually proven to be an innovative solution to address this challenge, as its ability to provide an immutable and secure record of transactions offers significant promise for healthcare information management. This systematic review aims to explore the applications of blockchain in health information systems, highlighting its advantages and challenges. (2) Methods: The publications chosen to compose this review were collected from six databases, resulting in the initial identification of 4864 studies. Of these, 73 were selected for in-depth analysis. (3) Results: The main results show that blockchain has been used mainly in electronic health records (63%). Furthermore, it was used in the Internet of Medical Things (8.2%) and for data sharing during the COVID-19 pandemic (6.8%). As advantages, greater security, privacy, and data integrity were identified, while the challenges point to the need for standardization and regulatory issues. (4) Conclusions: Despite the difficulties encountered, blockchain has significant potential to improve healthcare data management. However, more research and continued collaboration between those involved are needed to maximize its benefits.
scite is a Brooklyn-based organization that helps researchers better discover and understand research articles through Smart Citations–citations that display the context of the citation and describe whether the article provides supporting or contrasting evidence. scite is used by students and researchers from around the world and is funded in part by the National Science Foundation and the National Institute on Drug Abuse of the National Institutes of Health.
customersupport@researchsolutions.com
10624 S. Eastern Ave., Ste. A-614
Henderson, NV 89052, USA
This site is protected by reCAPTCHA and the Google Privacy Policy and Terms of Service apply.
Copyright © 2024 scite LLC. All rights reserved.
Made with 💙 for researchers
Part of the Research Solutions Family.