Breaking bad news in spinal cord injury; a qualitative study assessing the perspective of spinal cord injury survivors in Turkey

Ozyemisci-Taskiran, Ozden; Çoşkun, Özlem; Budakoğlu, Işıl İrem; Demirsoy, Nesrin

doi:10.1080/10790268.2017.1311463

Cited by 5 publications

(9 citation statements)

References 24 publications

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“…The most difficult task faced by healthcare providers is BBN process. Furthermore, breaking bad news is stressful for both; nurse and patient [1]. Critical care setting defers from other health care setting because of complexity of patient health status and treatment modalities.…”

Section: Discussionmentioning

confidence: 99%

“…Breaking bad news (BBN) is one of the most difficult tasks faced by healthcare providers. Also, breaking bad news is stressful for both; healthcare provider and patient [1]. Critical care unit differs from other hospital departments because of the complexity of patient health problems, treatment modalities used [2], the nature of the environment, diversity of procedure and equipment [3], facing death and dying patients [4], and emotional needs of patients and their families [5].…”

Section: Introductionmentioning

confidence: 99%

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Critical Care Nurses' Involvement, Feeling, Perception and Barrier for Practice Breaking Bad News in Jordan

M.Alkhawaldeh¹,

M.Abufeddeh²,

Izzeldeen³

2018

AJNR

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Background. Breaking bad news (BBN) is one of the most difficult tasks faced by healthcare providers. In addition, breaking bad news is stressful for both; healthcare providers and patient. Nurses can play an important role in the process of BBN. Whereas, effective communication by critical care nurses improves patients' understanding of their health status and decreases their stress level. Furthermore, effective BBN process requires effective communication skills. Aims. To assess critical care nurses' knowledge level regarding breaking bad news process, assess their involvement in the process of BBN, andto determine the barrier of practicing breaking bad news process as perceived by critical care nurses to identify the factors that affect nurses' practice of breaking bad news in the critical care units. Methods. Descriptive cross-sectional design, using self-reported questionnaires. Results. The study showed that most critical care nurses in Jordan are highly involved in BBN process 77% (n=157), Also, nurses are highly perceived themselves as an active part in BBN process 76% (n=155). The major barrier in providing BBN was relatives requesting that a patient is not told bad news 75% (n=152). Conclusion. Current study revealed that Jordanian critical care nurses took different roles in the process of breaking bad news and they are highly involved in BBN news, creating a base of knowledge regarding BBN among critical care nurses in Jordan. Thus, the study recommends the policymakers to empower nurses role in this process through design an educational program regarding practice BBN and clarify nurses' role in this process.

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Section: Discussionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Critical Care Nurses' Involvement, Feeling, Perception and Barrier for Practice Breaking Bad News in Jordan

M.Alkhawaldeh¹,

M.Abufeddeh²,

Izzeldeen³

2018

AJNR

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“…The 28 included studies were conducted in eight different countries: nine in the USA, 16 24-31 six in the UK, 12 17 22 23 32-34 five in Australia, [35][36][37][38][39] three in Canada, [40][41][42] two in Italy, 43 44 one each in Sweden 45 and Turkey, 46 and one in Canada and France 20 21 (see table 1). Included studies most frequently came from the stroke literature (n=10), 22-24 27 32 33 35 36 39 45 while similar numbers came from TBI (n=6), 20 21 25 26 29 30 42 SCI (n=5) 28 40 43 44 46 and multiple neurological conditions (n=5), 12 17 34 37 41 with a minority from the brain tumour literature (n=2).…”

Section: Study Characteristicsmentioning

confidence: 99%

“…28 46 Sometimes, however, patients and caregivers felt HCPs were too negative in the messages they gave, resulting in distress, anxiety, fear or anger. 30 36 Where bad experiences were recounted, they involved receiving incongruous information from different HCPs, 25 29 31 overhearing information, 46 not being given an opportunity to ask questions 20 21 39 46 or the use of complex medical terminology, which limited their understanding of the information. 20 21 31 Patients and caregivers also described a desire for truthful and honest information about recovery, 20 21 25 28-30 and HCPs felt that telling the truth was important to build relationships, gain families' trust and maintain their own credibility 40 45 : I can take the bad news.…”

Section: Open Accessmentioning

confidence: 99%

Experiences and views of receiving and delivering information about recovery in acquired neurological conditions: a systematic review of qualitative literature

et al. 2021

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ObjectiveTo review and synthesise qualitative literature relating to the views, perceptions and experiences of patients with acquired neurological conditions and their caregivers about the process of receiving information about recovery; as well as the views and experiences of healthcare professionals involved in delivering this information.DesignSystematic review of qualitative studies.Data sourcesMEDLINE, Embase, AMED, CINAHL, PsycINFO, Web of Science and the Cochrane library were searched from their inception to July 2019.Data extraction and synthesisTwo reviewers extracted data from the included studies and assessed quality using an established tool. Thematic synthesis was used to synthesise the findings of included studies.ResultsSearches yielded 9105 titles, with 145 retained for full-text screening. Twenty-eight studies (30 papers) from eight countries were included. Inductive analysis resulted in 11 descriptive themes, from which 5 analytical themes were generated: the right information at the right time; managing expectations; it’s not what you say, it’s how you say it; learning how to talk about recovery and manage emotions; the context of uncertainty.ConclusionsOur findings highlight the inherent challenges in talking about recovery in an emotional context, where breaking bad news is a key feature. Future interventions should focus on preparing staff to meet patients’ and families’ information needs, as well as ensuring they have the skills to discuss potential recovery and break bad news compassionately and share the uncertain trajectory characteristic of acquired neurological conditions. An agreed team-based approach to talking about recovery is recommended to ensure consistency and improve the experiences of patients and their families.

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“…Katılımcıların yarısı kendileriyle empati kurulmadığını, birkaç hasta da emosyonel olarak örselendiklerini ifade etmiştir. 14 Özyemişçi Taşkıran ve ark.nın SKY olan hastalara KHV konusunda FTR asistanı ve uzmanlarından oluşan 69 katılımcı ile yaptıkları çalışmada da SPİ-KES Protokolü kullanmıştır. Kötü haberin hangi uzman tarafından, ne zaman ve nerede verileceği katılımcılara sorulmuştur.…”

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Breaking Bad News: How Do We Tell Our Patient With Spinal Cord Injury That He/She Cannot Walk Again?

Dülgeroğlu¹,

Kuzuca²,

Şahinoğlu³

et al. 2021

J PMR Sci

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Spinal kord yaralanması (SKY) olan hastalara, nörolojik rehabilitasyon programı uygularken günlük yaşam aktivitelerini bağımsızlaştırmak, tekrar ellerini kullanmalarını, yürümelerini sağlamak en önemli hedeflerdendir. Ancak SKY sonucu nörojenik rejene-rasyon tümüyle gerçekleşmeyebilir, tam bir iyileşme olmayabilir ve klinik tabloda sekel/felç kalıcı olabilir. Bu nedenle SKY, yaşamı bir anda değiştiren, çok ağır özürlülük ve engellilik oluşturan felaketlerden biri olarak nitelenmektedir. 1,2

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Breaking bad news in spinal cord injury; a qualitative study assessing the perspective of spinal cord injury survivors in Turkey

Abstract: Most spinal cord injury survivors were unsatisfied with knowledge and emotional support provided by rehabilitation physicians. Participants would prefer to receive bad news by a senior physiatrist in a planned meeting during rehabilitation.

Cited by 5 publications

References 24 publications

Critical Care Nurses' Involvement, Feeling, Perception and Barrier for Practice Breaking Bad News in Jordan

Critical Care Nurses' Involvement, Feeling, Perception and Barrier for Practice Breaking Bad News in Jordan

Experiences and views of receiving and delivering information about recovery in acquired neurological conditions: a systematic review of qualitative literature

Breaking Bad News: How Do We Tell Our Patient With Spinal Cord Injury That He/She Cannot Walk Again?

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