Building a shared patient record for breast cancer management: a French Delphi study

Abstract

Before electronic records become operational, patient-held records provide an opportunity to improve communication between patients and healthcare professionals. Our aim was to design the appropriate organization, layout and content for such a shared record for breast cancer management, based on a consensus between the various stakeholders. We therefore conducted a Delphi study within a working group of 48 members, including patients, oncologists, general practitioners, nurses and other professionals. The procedure featured three rounds during which participants' judgements were collected via mailed questionnaires and quantitative and qualitative feedback was provided on a regular basis. These three rounds were followed by an evaluation phase. Forty members (83%) participated in the three rounds. According to the agreement reached, the shared record was expected to include a front summary card, four sections for groups of users authorized to write down or insert information in the record (patient, physicians, medical auxiliaries and other healthcare professionals), and one section for medical imaging files. In addition, the record was to include specific categories of information as subsections within each of the various user sections. The participant satisfaction rate was over 90% for all aspects of the procedure, with the exception of interaction within the working group (79%).

Patients’ support for health information exchange: a literature review and classification of key factors

“…This deficits increased patient safety risks such as medication errors and falls. Better policies for information exchange are required.18Letrilliart et al (2009) [43]FranceQuantitative analysis (survey)Patients, oncologists, general practitioners, nurses and other professionals, 48 membersShared medical records for breast cancer patients would be organized in a way that patients, physicians, medical auxiliaries and other healthcare professionals were authorized to insert a piece of information. Lack of interactions, the complexity of the record, and threats to the confidentiality of patient sensitive data were the main concerns related to shared records.19McGraw et al (2009) [55]USAConceptualHIE systemsThis study recommended that to build public trust into HIE, a comprehensive privacy and security framework is needed to set clear rules for access to, use of, and disclosure of personal health information for all entities engaged in HIE.…”

“…The traditional one-way information transfer considers the healthcare provider as the expert communicator and the patient as a passive receiver of information. Patient-centered care operates based on patients’ preferences to improve patient safety and increase patient satisfaction and participation [43]. A mutual exchange of information ensures that both patients and healthcare professionals contribute to partnership [44].…”

A Delphi study among internal medicine clinicians to determine which therapeutic information is essential to record in a medical record

“…A Delphi study is a consensus method to determine the extent to which experts agree about a given issue . It enables quantitative assessment of group agreement, based on the participants' individual judgment . This approach is often used when there is a lack of scientific evidence or when there is contradictory evidence on an issue, leading to a diversity of opinions .…”

Do Greek healthcare users and healthcare providers share cancer care priorities? Analysing the results from two Delphi studies

“…1984). Delphi technique is an iterative, interactive method that usually consists of two to four successive rounds of data collection where participants have the opportunity to alter their judgement after getting feedback on the judgement of the whole group of participants (Letrilliart et al. 2009).…”