Burden Among Family Caregivers of Advanced-Cancer Patients in Indonesia

Abstract

Background: There have been various studies into the family caregivers’ experiences in taking care of advanced-cancer patients. But, a study exploring the burden among family caregivers has not yet been conducted in Indonesia, a country which has strong family bonds among family members.Objective: This present study aimed to identify the burden among family caregivers of advanced cancer patients.Methods: This study was a cross-sectional study conducted from December 2016 to February 2017 on 178 consenting family caregivers and advanced cancer patients, selected using a purposive sampling technique. The Caregiver Reaction Assessment (CRA) was used to measure their burden. Data were analyzed using descriptive analyzes and bivariate analyzes.Results: The burden among family caregivers was 2.38 ± 0.38 (mean range 1-5). The highest burden was in the disrupted schedule domain.Conclusion: Our findings identified that the burden among family caregivers was at the medium level. The length of care per day and family support are potential targets for preventative intervention strategies to reduce the burden among the family caregivers.

Pemodelan Kausal Faktor-Faktor Beban Keluarga dalam Merawat Pasien Kanker Menggunakan Algoritma S3C-Latent

“…Penyakit kanker merupakan salah satu penyebab kematian utama di seluruh dunia. Menurut WHO dalam (Sari, Warsini and Effendy, 2018), kanker adalah penyebab kematian tertinggi kedua di negara maju dan tertinggi ketiga di negara berkembang. Pada tahun 2012, sekitar 8.2 juta kematian disebabkan oleh kanker.…”

“…Penelitian terkait family caregiver menjadi penting dikarenakan beban yang dirasakan (fisik, keuangan, psikologis, dan sosial) oleh family caregiver selama merawat anggota keluarganya yang menderita kanker, dan meminimalisasi masalah baru yang akan muncul akibat beban family caregiver yang tinggi dan dapat mempengaruhi kualitas hidup (REFF) family caregiver selama proses perawatan. Masalah baru tersebut adalah kurangnya pemenuhan kebutuhan family caregiver itu sendiri, menurunnya produktivitas kerja, meningkatnya resiko kerentanan terhadapat suatu penyakit, dan bahkan kematian pada family caregiver (Goldstein et al, 2004), (Sari, Warsini and Effendy, 2018), (Effendy et al, 2015). Jika beban family caregiver dapat diidentifikasi dengan baik, maka tenaga kesehatan dapat membantu mengatasi masalah keluarga lebih terarah, sehingga keluarga dapat lebih berfokus pada perawatan pasien lebih lanjut.…”

“…Pada penelitian terdahulu (Sari, Warsini and Effendy, 2018), ditemukan bahwa beban tertinggi yang dialami family caregiver adalah terganggunya jadwal dalam beraktivitas dengan nilai beban (Mean ± SD) sebesar 2.38 ± 0.38, dan analisis yang digunakan adalah analisis deskriptif dan analisis bivariat.…”

Preparedness among Family Caregivers of Patients with Non-Communicable Diseases in Indonesia

“…They can be the spouse, parents, daughters or sons, or other relatives (Effendy et al, 2014). The studies conducted in East Java (Werdani & Silab, 2020), and Yogyakarta and Central Java (Sari, Warsini, & Effendy, 2018), Indonesia, showed that the patients have their nuclear family as their support system. Taking care of NCD patients has been transformed from curing the disease to offering comfort and a better quality of life.…”

“…The challenge is that family caregivers spend 24 hours a day helping and assisting patients with their physical and psychological conditions, as well as financial and autonomous problems (Effendy et al, 2014;Machado, Dahdah, & Kebbe, 2018). The study conducted by Sari et al (2018) on 178 family caregivers of advanced cancer patients in Yogyakarta and Central Java showed that the burden was higher for family caregivers who spent more time each day looking after their sick family members.…”