Preparedness among Family Caregivers of Patients with Non-Communicable Diseases in Indonesia

Abstract

Background: Family caregivers spend 24 hours a day looking after and assisting patients. However, they are not always adequately prepared for all the problems they face. There is a lack of evidence exploring caregivers’ preparedness among family caregivers of patients with non-communicable diseases in Indonesia.Purpose: This study aimed to identify caregivers’ preparedness among family caregivers of patients with non-communicable diseases.Methods: This was a cross-sectional study conducted on 120 Indonesian family caregivers for patients with non-communicable diseases, who were selected using a purposive sampling technique. Data were collected using the Indonesian version of the Preparedness for Caregiving Scale (PCS) which had been validated before its use. The possible scores of this tool ranged from 0.00 to 4.00. The higher the score, the more prepared the family caregivers were. Data were analyzed using one way ANOVA .Results: Family caregivers reported feeling of moderately prepared for caregiving. The score of family caregiver preparedness for patients with diabetes, cancer, and chronic kidney disease were 2.97±0.42; 2.83±0.40; 2.89±0.49, respectively with possible range from 0.00 to 4.00. There were no differences on the caregivers’ preparedness among family caregivers of patients with non-communicable diseases (p=0.387).Conclusion: Caregivers’ preparedness is an essential element of patient care. Nurses have to be proactive in assessing each family caregiver’s preparedness to enhance the quality of life of both the family caregivers and the patients themselves, so that they can be empowered as a source of nursing care.

Barriers and Support for Family Caregivers in Caring for Older Adults with Dementia: A Qualitative Study in Indonesia

“…Well-prepared caregivers with appropriate skills and knowledge can reduce the burden of care. Family caregivers of patients with non-communicable diseases in Indonesia reported feeling moderately prepared for caregiving, which means family caregivers need help in certain situations (Sari & Nirmalasari, 2020). Previous research has shown a low knowledge level about early symptoms of dementia among family caregivers in Indonesia who care for older adults with dementia (Suriastini et al, 2020), which aligns with the interview findings in this study that limited knowledge and skills in caring for older adults with dementia are barriers faced by family caregivers.…”

Tackling the escalating burden of care in Uganda: a qualitative exploration of the challenges experienced by family carers of patients with chronic non-communicable diseases

“…Whilst the Ugandan government is making progressive policies aimed at the prevention, and treatment of NCDs in formal health systems [ 15 ], the role and the needs of family carers have not been well understood and have not yet been integrated into relevant policies [ 3 , 30 ]. As a result, limited support, resources, and social protection is provided to family carers for patients with NCD [ 31 ]. Knowledge generated in this study should be used as evidence to begin integrating family carer needs into mainstream health and social care policies, with the following recommendations identifying mechanisms to address carer needs.…”

Cronicidad: significado construido por los cuidadores y las personas cuidadas

“…El cuidador informal puede ser miembro o no de la familia, recibir o no un pago, apoya en las actividades de la vida diaria a las personas con discapacidad (Sambasivam et al, 2019), cuida durante las 24 horas del día y no siempre está preparado para asumir esta labor (Sari & Nirmalasari, 2020). Aprende a cuidar a través de la experiencia personal, su labor le produce impacto en la cotidianidad, experimenta emociones ambivalentes que van desde la indiferencia, hasta emociones positivas o negativas y, es capaz de asumir los desafíos que les impone la prestación de los cuidados (Kontrimiene et al, 2021).…”