Burden of care in families of patients with early onset scoliosis

Campbell, Megan; Matsumoto, Hiroko; Hilaire, Tricia St.; Roye, Benjamin; Roye, David P.; Vitale, Michael G.

doi:10.1097/bpb.0000000000000711

Cited by 20 publications

(15 citation statements)

References 24 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…Criteria (2)(3)(4)(5)(6)(7)(8)(9)(10)(11) were used to calculate the total PEDro score. Each criterion was scored as either 1 or 0 according to whether the criteria was met or not, respectively.…”

Section: Discussionmentioning

confidence: 99%

Benefits on pain and mental health of manual therapy for idiopathic scoliosis: A meta-analysis

Ren

Kong

et al. 2022

Front. Endocrinol.

View full text Add to dashboard Cite

BackgroundIdiopathic scoliosis (IS) is a common spinal disorder. Although several studies have reported the benefits of manual therapy for patients with IS in improving pain, anxiety, depression, and spinal disorders, the efficacy of manual therapy in the management of IS remain controversial. Therefore, this review was conducted to assess effects of manual therapy in the management of IS, primarily on pain and mental health of the patients and secondarily on their spinal disorders.MethodsSix electronic databases were searched for randomized controlled trials of manual therapy in the management of IS. The methodological quality of the included studies was assessed using the Physiotherapy Evidence Database (PEDro) Scale. The meta-analysis was conducted depending on different outcomes and control therapies using Review Manager version 5.3 software.ResultsSeventeen studies were included in the present review. The PEDro scores of the included studies ranged from 5-7 points. The aggregated results indicated that Tuina (a traditional Chinese manipulation technique) had valuable improvement effects on pain (standardized mean difference (SMD), 0.92; 95% confidence interval (CI), 0.59 to 1.25; P<0.00001), negative emotions (SMD, 0.82; 95% CI, 0.51 to 1.13; P<0.00001), and disability (SMD, 1.29; 95% CI, 0.39 to 2.19; P=0.005). For the radiographic outcomes including the Cobb angle and vertebral rotation, Tuina, especially when combined with other conservative therapies, showed potential complementary effects for patients with IS.ConclusionsTuina, as a complementary and alternative therapy, should be considered for the effective management of patients with IS, especially for the improvement of their pain and mental health. More randomized controlled trials are recommended to validate the current evidence.Systematic review registrationhttps://www.crd.york.ac.uk/prospero/, identifier CRD42020165220.

show abstract

Section: Discussionmentioning

confidence: 99%

Benefits on pain and mental health of manual therapy for idiopathic scoliosis: A meta-analysis

Ren

Kong

et al. 2022

Front. Endocrinol.

View full text Add to dashboard Cite

show abstract

“…Growth-friendly spinal implants (GFSI) have become a frequently applied technique to overcome the dilemma of severe and progressive deformity of the growing spine in early-onset scoliosis (EOS). It is accepted that the severity of the deformity determines pulmonary compromise and quality of life [ 14 , 15 ]. There are many promising reports, not least by our own group, that suggest a positive effect of GFSI on curve control and a better outcome at later definitive spinal fusion [ 1 , 11 , 16 , 17 ].…”

Section: Discussionmentioning

confidence: 99%

Smaller Intervertebral Disc Volume and More Disc Degeneration after Spinal Distraction in Scoliotic Children

Lippross¹,

Girmond²,

Lüders³

et al. 2021

JCM

View full text Add to dashboard Cite

In recent decades, magnetically controlled growing rods (MCGR) were established to treat progressive early-onset scoliosis. The aim of this investigation was to assess the effect of long-term MCGR with continuous distraction on intervertebral discs in scoliotic children. Magnetic resonance imaging (MRI) of 33 children with spinal muscular atrophy was analyzed by grading intervertebral disc degeneration (IDD) and measuring intervertebral disc volume. Cohort I (n = 17) were children who had continuous spinal distraction with MCGRs for 5.1 years and MRI before (av. age 8.1) and after (av. age 13.4) MCGR treatment. Cohort II (n = 16, av. age 13.7) were patients without prior surgical treatment. Lumbar intervertebral disc volume of cohort I did not change during 5.1 years of MCGR treatment, whereas disc volumes were significantly larger in age- and disease-matched children without prior treatment (cohort II). Cohort I showed more IDD after MCGR treatment in comparison to early MRI studies of the same patients and children without surgical treatment. MRI data showed a volume reduction and disc degeneration of lower thoracic and lumbar intervertebral discs in scoliotic children after continuous spinal distraction with MCGRs. These effects were confirmed in the same subjects before and after treatment as well as in surgically untreated controls.

show abstract

“… 8 9 Additionally, the financial and caregiver burden for patients with EOS is reported to be greater than that of healthy aged-matched peers. 10 …”

Section: Introductionmentioning

confidence: 99%

Outcomes evaluating quality of life and their measurement properties in early-onset scoliosis: protocol for a systematic review

et al. 2021

View full text Add to dashboard Cite

IntroductionEarly-onset scoliosis (EOS) is a rare spinal deformity affecting children under the age of 10. Both the condition and its treatment have associated morbidity and can impact quality of life. Understanding this impact can be achieved by using appropriate patient-reported and/or carer-reported outcome measures. The aim of the review described in this protocol is to evaluate the evidence on measurement properties relevant to health-related quality of life outcomes in the EOS population. The focus will be on outcome measures relevant to patients undergoing treatment of EOS under the age of 10.Methods/analysisThis protocol is reported in line with Preferred Reporting Items for Systematic Reviews and Meta-Analyses Protocol and COnsensus-based Standards for the selection of health Measurement Instruments (COSMIN) methodology. The MEDLINE, EMBASE, EMCARE, PubMed, PsychINFO and CINAHL databases will be searched using a two-stage search strategy. The first stage will identify measures of HRQoL used in EOS through screening of titles and abstracts. The second stage will assess the measurement properties of those measures identified through screening of full-text articles. The measurement properties of interest are the ‘reliability’, ‘validity’ and ‘responsiveness’ of the instrument. Only English language articles will be considered. Two reviewers will independently review the search results against the eligibility criteria, perform data extraction and assess for risk of bias, with disputes handled by a third reviewer. Data will be quantitatively pooled where possible or reported as a narrative synthesis. The summarised results for each measurement property will be rated against the criteria for good measurement properties following the COSMIN methodology. Two reviewers will assess the body of evidence for each measurement property using modified Grading of Recommendations, Assessment, Development and Evaluation guidelines.Ethics and disseminationNo ethical approval is required for this review and the results will be submitted for publication in peer-reviewed publications.PROSPERO registration numberCRD42020219721.

show abstract

Burden of care in families of patients with early onset scoliosis

Cited by 20 publications

References 24 publications

Benefits on pain and mental health of manual therapy for idiopathic scoliosis: A meta-analysis

Benefits on pain and mental health of manual therapy for idiopathic scoliosis: A meta-analysis

Smaller Intervertebral Disc Volume and More Disc Degeneration after Spinal Distraction in Scoliotic Children

Outcomes evaluating quality of life and their measurement properties in early-onset scoliosis: protocol for a systematic review

Contact Info

Product

Resources

About