Burden, Positive Aspects, and Predictive Variables of Caregiving: A Study of Caregivers of Patients with Pediatric Glaucoma

Zhu, Yingting; Gao, Jinyun; Li, Xinyan; Yang, Qiongman; Yu, Lian; Xiao, Hang; We, Huang

doi:10.1155/2019/6980208

Cited by 9 publications

(19 citation statements)

References 39 publications

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“…Zhu et al (2019) found no correlation between demographic data and PAC scores [ 16 ]. There were, however, correlations between demographic data and CBI scores.…”

Section: Resultsmentioning

confidence: 99%

“…Caregiving for this complex disease presents significant emotional, social, and financial challenges. Aggregate results from this review indicate that the caregiver’s female gender, employment status, and longer duration of disease reduce caregivers’ QoL and increase caregiver burden [ 16 , 17 , 21 ]. Individual studies have also found that lower level of education, lower household income, caregiving for other children with glaucoma, and the child’s older age and poorer visual acuity adversely impact these measures of caregiver wellbeing [ 16 , 17 , 21 ].…”

Section: Discussionmentioning

confidence: 99%

“…Aggregate results from this review indicate that the caregiver’s female gender, employment status, and longer duration of disease reduce caregivers’ QoL and increase caregiver burden [ 16 , 17 , 21 ]. Individual studies have also found that lower level of education, lower household income, caregiving for other children with glaucoma, and the child’s older age and poorer visual acuity adversely impact these measures of caregiver wellbeing [ 16 , 17 , 21 ]. Lower levels of education may make it more challenging for caregivers to learn about the disease and management plan [ 16 ].…”

Section: Discussionmentioning

confidence: 99%

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Quality of life and caregiver burden in pediatric glaucoma: A systematic review

Basilious

Villani²,

Jang³

et al. 2022

PLoS ONE

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Pediatric conditions can lead to significant caregiver burden and poor quality of life (QoL). This systematic review describes research relating to caregiver burden and QoL of caregivers of pediatric glaucoma patients. A systematic database search of Embase, Medline, PsycINFO, CINAHL, Web of Science, and the three journals within the Association for Research in Vision and Ophthalmology (ARVO) was conducted in October 2021. Publications underwent abstract and full-text screening and were included if they reported pediatric caregivers’ QoL using quantitative or qualitative methods. Review articles, publications not in English, and articles focusing on adult glaucoma patients were excluded. Studies then underwent risk of bias assessment and data extraction. Of the 105 publications identified, 8 publications with 667 participants were included in the review. Studies indicated significantly higher burden and poor QoL in caregivers. Female sex, lower education level, lower income, and working status of caregivers were associated with poorer QoL and greater burden. Additionally, more severe and longer duration of the child’s disease negatively impacted these measures of caregiver wellbeing. Additionally, studies found significant improvement in caregiver QoL after patients underwent surgery with combined trabeculotomy-trabeculectomy. In conclusion, few studies have investigated the impact of pediatric glaucoma on caregivers. This review of the existing studies found poor QoL and high levels of caregiver burden within this population. Given the lifelong nature of pediatric glaucoma, there is a need for further longitudinal research focusing on the caregivers of these pediatric patients. Long-term follow-up would allow for a greater understanding of how caregiver QoL changes over the course of the disease.

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“…Zhu et al (2019) found no correlation between demographic data and PAC scores [ 16 ]. There were, however, correlations between demographic data and CBI scores.…”

Section: Resultsmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

See 1 more Smart Citation

Quality of life and caregiver burden in pediatric glaucoma: A systematic review

Basilious

Villani²,

Jang³

et al. 2022

PLoS ONE

View full text Add to dashboard Cite

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“…It is therefore possible that the health-related effects of care on caregivers' lives are positively influenced by factors such as income and social support [26] . Low-income carers are considered to belong to a vulnerable group [27] . Factors such as loss of income, cost savings and working hours can lead to a shift away from most social and daily activities, resulting in greater caregiver distress [28] .…”

Section: Discussionmentioning

confidence: 99%

Factors associated with social support for family members who care for stroke survivors

Kavga¹,

Kalemikerakis²,

Konstantinidis³

et al. 2021

AIMSPH

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<abstract><sec> <title>Introduction</title> Vascular strokes are a primary cause of long-term disability for adults, with many social consequences for the patient, the family and healthcare systems worldwide. </sec><sec> <title>Aim</title> To investigate the relation between patients' and caregivers' characteristics, as well as burden and depression, and the social support received by carers for stroke victims in Greece. </sec><sec> <title>Method</title> Patients and caregivers were recruited from community settings in the Attica region of Greece, using purposive sampling. They completed a set of questionnaires during face-to-face interviews. Correlational and multiple regression analyses were performed to identify factors associated with caregivers' perceptions of social support. </sec><sec> <title>Results</title> In total, 109 dyads of patients and their respective caregivers were recruited. The patients' mean age was 69.3 years, while caregivers' mean age was 58.0 years; 51.4% of patients were males, whereas 67.9% of the caregivers were females. The majority of both patients and caregivers were married, with an annual family income less than €10,000. The level of perceived social support was significantly associated with patients' or caregivers' annual family income, caregivers' working status and the daily caring hours (p < 0.01). Greater perceived support was significantly associated with a lower care burden BCOS (r = 0.29, p < 0.01) and female gender (p = 0.023), but not with the patient's functional level nor with depression (p > 0.05). </sec></abstract>

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“…Most of the patients with childhood glaucoma present within 6 months of birth with ∼ 80% appearing before 1 year of age (11). Childhood glaucoma and its management not only have a marked impact on functional vision of children, but also reduced the quality of life of the patients, relatives, and caregivers (12)(13)(14). Hence, early diagnosis is crucial for children affected with glaucoma to receive timely and appropriate treatment.…”

Section: Introductionmentioning

confidence: 99%

Changes of Peripapillary Retinal Nerve Fiber Layer in Childhood Glaucoma: A Systematic Review and Meta-Analysis

2021

Self Cite

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Objectives: Retinal nerve fiber layer (RNFL) thickness has been detected by numerous studies about alterations and abnormalities in childhood glaucoma, but these studies have yielded inconsistent results about the RNFL thinning region. The investigation of characteristics of RNFL in pediatric patients would contribute to the deep understanding of the neuropathic mechanisms of childhood glaucoma. Thus, the degree of thinning in different quadrants deserves further discussion and exploration.Method: A systematic literature search was conducted using the Cochrane Central Register of Controlled Trials, Medline, Embase, and PubMed databases to identify clinical studies published from inception to April 1, 2021.Results: Ten studies were included in this review with a total of 311 children with glaucoma and 444 in nonglaucomatous controls. The results revealed that average peripapillary RNFL (pRNFL) thickness was attenuated in pediatric patients with glaucoma [weighted mean difference (WMD) = −20.75; 95% CI −27.49 to −14.01; p < 0.00001]. Additionally, pRNFL thickness in eight quadrants (superior, inferior, temporal, nasal, superotemporal, inferotemporal, superonasal, and inferonasal) had different levels of reduction in the pediatric group of glaucoma.Conclusion: This study indicates that eight regions of RNFL thickness show various degrees of thinning in childhood glaucoma. However, caution is required in the interpretation of results due to marked heterogeneity. Future studies, especially larger samples and multicenter, need to confirm our results.

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Burden, Positive Aspects, and Predictive Variables of Caregiving: A Study of Caregivers of Patients with Pediatric Glaucoma

Cited by 9 publications

References 39 publications

Quality of life and caregiver burden in pediatric glaucoma: A systematic review

Quality of life and caregiver burden in pediatric glaucoma: A systematic review

Factors associated with social support for family members who care for stroke survivors

Changes of Peripapillary Retinal Nerve Fiber Layer in Childhood Glaucoma: A Systematic Review and Meta-Analysis

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