Calidad de vida de adultos con discapacidad intelectual institucionalizados en Chile desde la perspectiva de los proveedores de servicios

Córdova, Vanessa Vega; Río, Cristina Jenaro; Robaina, Noelia Emma Flores; Ortiz, Maribel Cruz; Artaza, Carmen

doi:10.11144/javeriana.upsy12-3.cvad

Cited by 6 publications

(6 citation statements)

References 20 publications

Supporting

Mentioning

Contrasting

Unclassified

Order By: Relevance

“…Unlike the day or occupational centers, in this study as in others, collective residences of people with id and high support needs who remain institutionalized indefinitely have a negative impact on their QoL (31). Specifically, residences offer very few opportunities for these people to participate, as far as possible, in planning their health itineraries, self-managing their grieving processes, establishing significant social relationships, and receiving care according to their wishes, religious, or cultural beliefs (32).…”

Section: Discussionmentioning

confidence: 81%

Quality of Life of Elderly People with Severe Intellectual Disabilities in Chile

Álvarez Aguado,

Vega Córdova,

Farhang

et al. 2023

Rev. Cienc. salud

View full text Add to dashboard Cite

Introduction: Currently, the concept of quality of life (QoL) is key to defining health policies aimed at the population with intellectual disability (ID). Most QoL studies in this field have been limited to people with ID with higher levels of functioning. This has resulted in little interest in evaluating QoL interventions in people with ID and high support needs, affecting their general well-being and conditioning the care received. This study seeks to explore the QoL levels of people with severe and profound ID, and to examine their differences according to some variables. Material and methods: From a quantitative-descriptive approach, the San Martín scale, based on the eight-dimensional QoL Model of Schalock and Verdugo, has been applied to 201 Chilean people with severe or profound ID between 60 and 86 years of age. Results: The data show how most of the participants have low levels of QoL, with self-determination and social inclusion being the most affected dimensions. When comparing the QoL score with the sociodemographic variables, there are differences according to the level of support needs and the type of center of which they are users. Conclusion: It is necessary to pay attention to the low levels of QoL because there is a notable risk that they lead to greater situations of vulnerability for this group. Likewise, it is convenient to advocate for a higher frequency in the support offered and to bring the spaces in which these people operate as close as possible to the community.

show abstract

Section: Discussionmentioning

confidence: 81%

Quality of Life of Elderly People with Severe Intellectual Disabilities in Chile

Álvarez Aguado,

Vega Córdova,

Farhang

et al. 2023

Rev. Cienc. salud

View full text Add to dashboard Cite

show abstract

“…La calidad de vida en general es un constructo multidimensional que incluye bienestar emocional, material y físico, así como relaciones interpersonales, inclusión social, desarrollo personal, autodeterminación y derechos, factores integrados por Schalock y Verdugo en su modelo de calidad de vida [31][32][33] . Por su parte, la CVRS es un constructo multidimensional que tiene un enfoque clínico y que pretende determinar el impacto en la calidad de vida derivado de los cambios producidos por intervenciones o tratamientos de salud, así como el impacto de la enfermedad en la vida diaria de la persona 34 .…”

Section: Discussionunclassified

Exploración del constructo calidad de vida relacionado con la salud en niños, niñas y adolescentes con síndrome de Down

Grande

Vargas-Pinilla²,

Narvaez³

2022

Rev Col Med Fis Rehab

View full text Add to dashboard Cite

El constructo de calidad de vida relacionada con la salud (CVRS) en niños, niñas y adolescentes con síndrome de Down no ha sido definido, así como tampoco existen instrumentos para evaluarlo. De esta forma, el objetivo del presente estudio es explorar este constructo en niños, niñas, adolescentes con síndrome de Down, y en sus padres y cuidadores, para establecer las bases conceptuales de un instrumento de evaluación. Se realizó una revisión de información y evidencia relacionada con calidad de vida en páginas web de organizacio- nes de todo el mundo y en bases de datos científicas, con lo cual se logró una aproximación al constructo de CVRS. Se realizaron siete entrevistas y dos grupos focales con niños, niñas y adolescentes con síndrome de Down y cuatro entrevistas y tres grupos focales con padres y cuidadores. Con base en la metodología desarrollada, emergieron las categorías de capacidad física, funcional, psicológica y social.

show abstract

“…The respondents are asked to give their answers on a frequency scale with four options (never, sometimes, often, and always). The scale has shown to have an adequate reliability and validity [ 40 ] and has been used across different studies that evaluate QoL in adults with ID [ 41 , 42 ].…”

Section: Methodsmentioning

confidence: 99%

Communication Support Needs in Adults with Intellectual Disabilities and Its Relation to Quality of Life

Garcı́a¹,

Villoria

Wojcik

et al. 2020

IJERPH

View full text Add to dashboard Cite

Research suggests that individuals with intellectual disabilities (ID) experience difficulties in communication, ranging from intelligibility issues to more severe problems in the use and comprehension of spoken, written or sign language. Despite the negative effects that the inability to communicate have on quality of life (QoL), not much research has explored the relationship between communicative competence and QoL in the adult population with ID. The aim of this study was to describe the global communication profile of a sample of 281 adults with ID recruited from Grupo AMÁS Social Foundation, who differed in their level of communication support needs (CSN). The relationships between communicative competence and CSN with QoL were further examined. The results showed lower QoL indices for those participants characterized by their limited use of discourse and inability to exhibit certain communicative purposes, with the largest differences in the dimensions of self-determination, social inclusion, interpersonal relationships, emotional wellbeing and personal development. Overall, low levels of QoL were found for all participants, with even lower scores for the group identified as having CSN. A multiple regression model revealed that having speech/discourse competence is a powerful predictor of QoL, along with the level of disability and having the communicative competences to express likes and preferences or to establish new relationships. This clear relationship between communication and QoL is an important argument for disability support services when it comes to setting communication supports as a priority and as an important preventive step towards the protection of those at risk of exclusion.

show abstract

Calidad de vida de adultos con discapacidad intelectual institucionalizados en Chile desde la perspectiva de los proveedores de servicios

Cited by 6 publications

References 20 publications

Quality of Life of Elderly People with Severe Intellectual Disabilities in Chile

Quality of Life of Elderly People with Severe Intellectual Disabilities in Chile

Exploración del constructo calidad de vida relacionado con la salud en niños, niñas y adolescentes con síndrome de Down

Communication Support Needs in Adults with Intellectual Disabilities and Its Relation to Quality of Life

Contact Info

Product

Resources

About