Calidad de vida relacionada con la salud en la diabetes mellitus tipo 1

Velasco, Miranda; Martín, E. Jiménez; Díez, Francisco Javier Arroyo; Pérez, P. Méndez; Amigo, Jesús González de Buitrago

doi:10.1016/j.anpedi.2012.03.005

Cited by 12 publications

(7 citation statements)

References 27 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…No statistically significant differences were found for the three chronic disease groups, concerning the psychosocial variables KIDS-10, SCL, RES, and SSSS. These findings are in accordance with prior research with adolescents with chronic diseases that reported no significant associations [59, 60] or when comparing different diseases showed a reasonable psychosocial functioning, a general well-adjustment, and a less severe self-perception of the disease as physicians did [36], although other studies have indicated a high risk of impairment in psychosocial functioning for adolescents with chronic conditions [61–63]. Thus, it reinforces the idea that the activity of the disease may not be associated with psychosocial factors and fails to reveal the perceived physical and mental quality of life of adolescents [64].…”

Section: Discussionsupporting

confidence: 93%

Psychosocial Profile in Portuguese Adolescents with Chronic Disease Attending an Outpatient Department in a Hospital Setting

Santos

Matos

Marques

et al. 2018

International Journal of Pediatrics

View full text Add to dashboard Cite

Living with a chronic disease (CD) in adolescence involves new multifaceted challenges. This study aims to conduct a psychosocial characterization of a group of adolescents with chronic diseases in a hospital setting and to compare such dimensions for the total group and for different diseases. A cross-sectional study included 135 adolescents with chronic diseases (51.9% boys; 48.1% girls), having an average age of 14±1.5 years (SD=1.5) and attending a paediatric outpatient department in a hospital setting. Statistically significant differences were found among the different chronic diseases for the variables self-regulation (adolescents with diabetes had significantly higher competencies) and multiple psychosomatic symptoms (adolescents with neurologic diseases reported significantly more complaints). Boys presented both better health-related quality of life and psychosomatic health when compared to girls. No statistically significant differences were observed for health-related quality of life, psychosomatic health, resilience, and social support. These findings bring important suggestions especially while planning interventions, which must take into account the promotion of a healthy psychosocial development, through an inclusive perspective (covering different chronic diseases), that take into consideration specific and gendered approaches. Such suggestions might help healthcare professionals to better plan interventions in order to increase their effectiveness.

show abstract

Section: Discussionsupporting

confidence: 93%

Psychosocial Profile in Portuguese Adolescents with Chronic Disease Attending an Outpatient Department in a Hospital Setting

Santos

Matos

Marques

et al. 2018

International Journal of Pediatrics

View full text Add to dashboard Cite

show abstract

“…While it was designed for pediatric populations and may not capture extreme health problems as well as the 5L, this evidence suggests that it may substitute for the 3L when surveying across ages and literacy levels or in longitudinal studies that start in childhood. 2 For example, the Y may be more appropriate to track the impact of developmental disorders or diseases diagnosed in childhood, such as Type I diabetes and asthma, 12,13 because researchers would not have to shift to the 3L or 5L in adulthood.…”

Section: Discussionmentioning

confidence: 99%

Health problems are more common, but less severe when measured using newer EQ-5D versions

Craig

Pickard

Lubetkin

2014

Journal of Clinical Epidemiology

View full text Add to dashboard Cite

Objective The EuroQol Group recently released youth (Y) and 5-level (5L) versions of its 3-level EQ-5D instrument (3L) that measures health-related quality of life (HRQoL). In this study, we (1) compare 3L, Y and 5L responses among US adults and (2) assess construct validity. Study Design Using a nationally representative sample of US adults (N=2619), we collected 3L, Y, and 5L responses in random order and estimated their associations as well as their relationship with a 0 to 100 numerical visual analogue scale. Results The prevalence of US adults in the best possible EQ-5D state (i.e., 11111) was lower for the Y (38%) and 5L (35%) than for the 3L (44%), capturing more health problems. However, the prevalence of extreme responses in Pain/Discomfort and Anxiety/Depression decreased substantially between the 3L and 5L (from 44% to 17% and from 29% to 13%, respectively). Conclusions Compared to the 3L, the Y, and 5L versions describe population health as having more, yet milder, health problems. While the 5L may have advantages in patient populations where extreme problems are more prevalent, population studies or studies that follow patients from childhood may consider using the Y.

show abstract

“…In addition, a study in youth with chronic kidney disease provided evidence of the EQ-5D-Y validity, as it discriminated among groups that differed with regard to the disease-related clinical burden [19]. Finally, we have only identified one descriptive study of HRQoL in children with T1DM [20] measured with the EQ-5D-Y, but without assessing its metric properties. Our aim was to evaluate acceptability, validity, reliability and responsiveness of the EQ-5D-Y administered online in children and adolescents with T1DM.…”

Section: Introductionmentioning

confidence: 99%

Measurement Properties of the Online EuroQol-5D-Youth Instrument in Children and Adolescents With Type 1 Diabetes Mellitus: Questionnaire Study

Mayoral¹,

Rajmil²,

Murillo³

et al. 2019

J Med Internet Res

View full text Add to dashboard Cite

BackgroundThe lack of continuity between health-related quality of life (HRQoL) instruments designed for children and adults hinders change analysis with a life course approach. To resolve this gap, EuroQol (EQ) developed the EQ-5D-Youth (EQ-5D-Y), derived from the EQ-5D for adults. Few studies have assessed the metric properties of EQ-5D-Y in children with specific chronic conditions, and none have done so for children with type I diabetes mellitus (T1DM).ObjectiveThis study aimed to evaluate the acceptability, validity, reliability, and responsiveness of the EQ-5D-Y in children and adolescents with T1DM, when administered online.MethodsParticipants with T1DM were consecutively recruited from July to December 2014, from a list of potential candidates aged 8-19 years, who attended outpatient pediatric endocrinology units. Before every quarterly routine visit, participants received an email/telephone reminder to complete the online version of two generic HRQoL questionnaires: EQ-5D-Y and KIDSCREEN-27. The EQ-5D-Y measures five dimensions, from which an equally weighted summary score was constructed (range: 0-100). Completion rate and distribution statistics were calculated. Construct validity was evaluated through known group comparisons based on general health, acute diabetic decompensations, mental health, family function, and a multitrait, multimethod matrix between EQ-5D-Y and KIDSCREEN by using Spearman correlations. Construct validity hypotheses were stated a priori. Reliability was assessed with the intraclass correlation coefficient and responsiveness by testing changes over time and calculating the effect size. Reliability and responsiveness were tested among the stable and improved subsamples defined by a KIDSCREEN-10 index change of <4.5 points or ≥4.5 points, respectively, from the first to the fourth visit.ResultsOf the 136 participants, 119 (87.5%) responded to the EQ-5D-Y at the last visit. The dimensions that showed higher percentages of participants with problems were “having pain/discomfort” (34.6%) and “worried/sad/unhappy” (28.7%). The mean (SD) of the EQ-5D-Y summary score was 8.5 (10.9), with ceiling and floor effects of 50.7% and 0%, respectively. Statistically significant HRQoL differences between groups defined by their general health (excellent/very good and good/regular/bad) and mental health (Strengths and Difficulties Questionnaire score ≤15 and >16, respectively) were found in three EQ-5D-Y dimensions (“doing usual activities,” “having pain/discomfort,” and “feeling worried/sad/unhappy”), summary score (effect size for general health and mental health groups=0.7 and 1.5, respectively), and KIDSCREEN-10 index (effect size for general health and mental health groups=0.6 and 0.9, respectively). Significant differences in the EQ-5D-Y dimensions were also found according to acute diabetic decompensations in “looking after myself” (P=.005) and according to family function in “having pain/discomfort” (P=.03). Results of the multitrait, multimethod matrix confirmed three of the four relationsh...

show abstract

Calidad de vida relacionada con la salud en la diabetes mellitus tipo 1

Cited by 12 publications

References 27 publications

Psychosocial Profile in Portuguese Adolescents with Chronic Disease Attending an Outpatient Department in a Hospital Setting

Psychosocial Profile in Portuguese Adolescents with Chronic Disease Attending an Outpatient Department in a Hospital Setting

Health problems are more common, but less severe when measured using newer EQ-5D versions

Measurement Properties of the Online EuroQol-5D-Youth Instrument in Children and Adolescents With Type 1 Diabetes Mellitus: Questionnaire Study

Contact Info

Product

Resources

About