Calidad de vida, tiempo de dedicación y carga percibida por el cuidador principal informal del enfermo de Alzheimer

Abstract

Caregivers of AP suffer a negative impact on their health state and HRQoL; the time they dedicate to the patient is very high.

Impact on Health-Related Quality of Life and Perceived Burden of Informal Caregivers of Individuals with Alzheimer’s Disease

“…Inconsistent with some previous studies, we found that female caregivers who performed more personal care tasks, such as toileting and bathing, as well as more household chores, did not show a relationship between perceived burden and caregiver's gender [13,30] . In addition, our results indicate that caregiver level of education appeared to have some relationship with perceived burden [13,30] and HRQL [13] , with a worsening of both, level of burden and HRQL, with lower levels of caregiver education.…”

“…Individual differences in caregiver responses from longitudinal studies have shown that some caregivers adapt to the challenges over time even as the patient continues to deteriorate [20,21] , whereas others experience continuing and increasing strain and burden [22,23] , even after institutionalization of the person receiving care [24] . A caregiver's progressive adaptation to the deterioration and increasing needs of the person with AD may reflect the low correlation between caregiver burden, severity of AD, and the degree of dependence [13,14,25,26] . Moreover, this finding suggests that with disease progression into severe stage and less physical activities (less agitation and behavioral disturbances) caregiver burden stabilizes [27][28][29] .…”

“…Caregiver quality of life is an important indicator in assessing the burden related to continuous care for chronic patients [12] . However, there are few studies in Spain about the impact of AD caregiving on health-related quality of life (HRQL), committed time to care, and perceived burden of informal or family caregivers [13,14] .…”

Actitudes, dudas y conocimientos de los colectivos implicados en la atención del paciente con Alzheimer: resultados de la encuesta del proyecto kNOW Alzheimer

“…Además, el 46,5% tenía una carga entre moderada y severa, y el 34,7%, una sobrecarga severa. Sólo el 26,9% recibió alguna ayuda sociosanitaria y el 76,5%, algún tipo de ayuda de las asociaciones de familiares de Alzheimer (24). Asimismo, las intervenciones educativas dirigidas a cuidadores de pacientes con EA, no tan solo han demostrado un aumento notable del conocimiento en el manejo de los pacientes, sino también un progreso significativo en la relación cuidador-enfermo (25).…”

Comparación de psicopatologías y apoyo prestado a cuidadores de enfermos de Alzheimer por la farmacia comunitaria y las asociaciones de cuidadores

“…Éste parece ser independiente de las características culturales o sociales de la población estudiada y corresponde mayoritariamente a mujeres de mediana edad, de entre 40 y 60 años, familiares de primer grado del paciente (principalmente hijas), con estudios primarios, casadas y que no trabajan fuera del hogar [24][25][26][27][28].…”