Caregiver Burden and Spiritual Well-being in Caregivers of Hemodialysis Patients

Rafati, Foozieh; Mashayekhi, Fatemeh; Dastyar, Neda

doi:10.1007/s10943-019-00939-y

Cited by 27 publications

(51 citation statements)

References 22 publications

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“…On average, their social network includes two relatives and two friends. It was noted that religion, spirituality (31) , family, other caregivers, and professionals contribute to reduce the overload.…”

Section: Discussionmentioning

confidence: 99%

Burden and social support in informal caregivers of people undergoing kidney dialysis: a mixed study

et al. 2021

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Objectives: to analyze the burden and the social support of the informal caregivers of people undergoing kidney dialysis. Methods: mixed study, based on the Theory of Stress and Overload, using instruments of sociodemographic characterization, the Social Support Survey from the Medical Outcomes Study, Zarit’s Burden Scale, and guiding questions. Analysis of data used statistical and thematic inferences. Results: 55 caregivers were evaluated, most were women, from 31 to 50 years old, married, and having worked in care for more than three years. A high level of affective and material support was observed, with a light overload on the caregiver. The central theme of the discourses was: “Experiences of the caregiver: between the burden of responsibility and the search for meaning”. Conclusions: a small overload was found in the participants, with a high median in the dimensions of affective and emotional support, in the relations between positive social interactions and the burden of the caregivers, in addition to the duality or responsibility and the meaning of care.

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Section: Discussionmentioning

confidence: 99%

Burden and social support in informal caregivers of people undergoing kidney dialysis: a mixed study

et al. 2021

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“…Three studies reported high levels of burden [5,6,16]. The majority of the included studies reported moderate to severe levels of burden in caregivers of patients undergoing HD [9,10,18,20,21,27,30,32,34,37,39,46]. Several studies reported moderate CB [11,19,25,26,31,36].…”

Section: Level Of Cbmentioning

confidence: 99%

“…Of the included studies, 35 used a cross sectional design [5,[9][10][11][12] and three provided cross sectional data within other designs; one used a quasi-experimental design [46], one used a longitudinal design [47], and one a mixed method design [6]. Studies included in the review were completed in a variety of countries, including: seven in Turkey [11,[22][23][24]27,33,46], four in the USA [5,18,29,44], four in Iran [31,34,37,39], two in Brazil [25,26], two in Japan [34,41,43], two in Saudi Arabia [9,21], three in China [12,42,45], two in Nigeria [6,17], two in Jordan [16,19], two in India [32,35]; and a single study in Nepal [10], Canada [38], Pakistan [40], Greece [36], Spain [20], Singapore [47], Vietnam [30], and Indonesia…”

Section: Characteristics Of Included Studiesmentioning

confidence: 99%

Factors Associated with Burden in Caregivers of Patients with End-Stage Kidney Disease (A Systematic Review)

et al. 2021

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Background: Caring for a patient with end-stage kidney disease (ESKD) is highly stressful and can impact negatively on the physical and psychological well-being of caregivers. To accurately assess caregiver burden (CB), health care providers (HCPs) need to identify characteristics associated with an increase in CB. Aim: The aim of this review is to explore CB in caregivers of adult patients with ESKD and to identify characteristics associated with any increase in CB. Method: A comprehensive literature search was completed using five electronic databases. Medline, Embase, CINHAL, PsycINFO, and Scopus. The Joanna Briggs Institute checklist (JBI) was used to quality appraise full text papers included in the review. No time limit for the date of publication of studies was employed, to enable the inclusion of more extensive literature. Results: A total of 38 relevant studies from 18 countries were identified and included in the review. A variety of patient and caregiver factors can impact positively or negatively on CB, including socio-demographic factors of patients and caregivers, disease-related factors, situational and relational factors, environmental factors, and psychological factors. Conclusion: This review provides awareness to HCPs of the important factors associated with CB, when assessing or targeting interventions for caregivers experiencing burden.

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“…The advanced phase of chronic renal failure, in which life relies on transplantation or dialysis, is called end-stage renal disease (ESRD) [1]. Due to its chronic and disabling nature, this disorder may have a detrimental impact on patients' quality of life and contributes to decreased social interactions, depression, anger, decreased capacity of an individual to perform independent everyday life activities, and eventually increased mortality.…”

Section: Introductionmentioning

confidence: 99%

Survival Analysis in The Presence of a Cure Fraction Using Data of Dialysis Patients: A Bayesian Approach

Rafati

Baneshi

Hassani

et al. 2021

Preprint

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Background: The aim of this study was to evaluate the goodness of fit of Bayesian mixture and non-mixture cure models to find the factors affecting dialysis patient’s survival time where a significant proportion of the population has a long-term survival.Study Design: A retrospective cohort study. Methods: The data of 252 dialysis patients were used among whom 35 cases died. Since in this study a part of the population had long-term survival, Bayesian cure models were used and evaluated using DIC index. The data were analyzed by R and Openbugs Softwares. Results: Of the 252 dialysis patients, 136(54%) were males and the mean (SD) age was 53.39 (18.09) years. The patient’s follow-up time mean (SD) was 10.93(7.82) years. The 10 and 20-year survival rate of these patients were 87% and 73%, respectively. The findings show that the best fitting belonged to the Bayesian Non-mixture Cure Model (BNCM) with Dagum distribution. The variables of age, Body Mass Index, dialysis duration, frequency of dialysis, age of onset of dialysis, and occupation affected patients' survival based on BNCM with Dagum distribution.Conclusions: The results demonstrated that the BNCM with Dagum distribution can be a good selection model to analyze survival data, where there is the possibility of a fraction of cure.

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Caregiver Burden and Spiritual Well-being in Caregivers of Hemodialysis Patients

Cited by 27 publications

References 22 publications

Burden and social support in informal caregivers of people undergoing kidney dialysis: a mixed study

Burden and social support in informal caregivers of people undergoing kidney dialysis: a mixed study

Factors Associated with Burden in Caregivers of Patients with End-Stage Kidney Disease (A Systematic Review)

Survival Analysis in The Presence of a Cure Fraction Using Data of Dialysis Patients: A Bayesian Approach

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