Caregiver Perspective and Understanding On road to Recovery

Navaneetham, Janardhana; Raghevendra, Guru; Naidu, D. M.; Prasanna, Lakshmi; Chenappa, Thippanna

doi:10.1007/s40737-018-0108-2

Cited by 7 publications

(9 citation statements)

References 29 publications

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“…Questionnaire to assist social interaction from the caregiving tasks in caring for an adult with mental illness scale (CTiCAMIS) developed by Fitryasari et al [28] is a 5-item scale in response to a 4-point self-report measurement (1=Never to 4=Always) was found to be reliable in this study (α=0.777). Questionnaires help productive skills developed from concepts [29] is a 3-item scale in response to a 4-point self-report measurement (1=Never to 4=Always) was found to be reliable in this study (α=0.861).…”

Section: Methodsmentioning

confidence: 52%

Factors related to family’s ability to care for schizophrenic patients

Iswanti

Nursalam

Fitryasari

et al. 2023

IJPHS

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Schizophrenic patients in family members makes the family helpless and unable to care for them. Patient, family, social environment, and health service factors can affect the family's ability to care for schizophrenic patients. The aims of this study are to analyze factor predictors of the family's ability to care for schizophrenic patients. This study used a correlational study design. The sample of this study is 135 schizophrenic families in the outpatient clinic of Dr. Amino Gondohutomo Regional Psychiatric Hospital with purposive sampling. The instruments in this study are the questionnaire which developed and modified from the experience caregiving instrument (ECI), inner resource scale (SAS-I), mental health inventory (MHI), Berkeley Expressivity Questionnaire, Barthel Index, caregiving tasks in caring for an adult with mental illness scale (CTiCAMIS). Data were analyzed using a multiple regression test. The result shows the family's ability to care for schizophrenic patients predicted by the variables of family resources (p-value=0.019) and social support (p-value=0.0.32). Family resources as the strongest predictor of the family's ability to care for schizophrenic patients (B=0.242). It is necessary to develop integrated family empowerment interventions that increase and activate the family's inner resources.

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Section: Methodsmentioning

confidence: 52%

Factors related to family’s ability to care for schizophrenic patients

Iswanti

Nursalam

Fitryasari

et al. 2023

IJPHS

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“…SLS also gives greater attention to one's role within a household and a community, (the domains 'Being an active family member', 'Contributing to the household' and 'Being an active community member'). Themes of productive activity and skills for community participation, were similarly found in a recent study in India assessing caregiver priorities for recovery (Janardhana, Raghevendra et al 2018). The domain of spiritual engagement has not been a feature in most recovery tools developed in HIC but was regarded as a core component by the EBE group in the North Indian context, which was also described in another Indian study (Raguram, Venkateswaran et al 2002).…”

Section: How Does the 'Swasthya Labh Saadhan' (Sls) Recovery Tool Commentioning

confidence: 57%

“…In India, some mental health professionals have adopted recovery frameworks constructed in Europe and North America, yet recovery approaches as a first step need to reflect the local cultural context and identify local concepts of 'recovery', to allow a shared understanding of what recovery is and how it is 'practiced' in that place (Gopal andHenderson 2015, Bayetti, Jadhav et al 2016). Indian studies have identified the importance of community resources such as temple healing (Raguram, Venkateswaran et al 2002), knowledge and inclusive attitudes (Shidhaye and Kermode 2013) and caregiver perspectives on recovery (Janardhana, Raghevendra et al 2018), and have called for a greater emphasis on recovery (Chaturvedi andThirthalli 2015, Agarwal andSinha 2016). However, there remains a large challenge in developing vernacular concepts of recovery contextually valid in India in the community (Gopal and Henderson 2015, Bayetti, Jadhav et al 2016, Janardhana, Raghevendra et al 2018) and that build on frameworks of clinically applied anthropology among mental health professionals (Jadhav 2013).…”

Section: Title Page Co-production Of a Pictorial Recovery Tool For Pementioning

confidence: 99%

Co-production of a pictorial recovery tool for people with psycho-social disability informed by a participatory action research approach—a qualitative study set in India

Mathias¹,

Pillai

Gaitonde

et al. 2019

Health Promotion International

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Mental health problems are recognized as a leading cause of disability and have seen increased allocations of resources and services globally. There is a growing call for solutions supporting global mental health and recovery to be locally relevant and built on the knowledge and skills of people with mental health problems, particularly in low-income countries. Set in Dehradun district, North India, this study aimed to describe first, the process of co-production of a visual tool to support recovery for people affected by psycho-social disability; second, the key outputs developed and third, critical reflection on the process and outputs. The developmental process consisted of participatory action research and qualitative methods conducted by a team of action researchers and an experts by experience (EBE) group of community members. The team generated eight domains for recovery under three meta-domains of normalcy, belonging and contributing and the ensuing recovery tool developed pictures of activities for each domain. Challenges to using a participatory and emancipatory process were addressed by working with a mentor experienced in participatory methods, and by allocating time to concurrent critical reflection on power relationships. Findings underline the important contribution of an EBE group demonstrating their sophisticated and locally valid constructions of recovery and the need for an honest and critically reflective process in all co-productive initiatives. This study generated local conversations around recovery that helped knowledge flow from bottom-to-top and proposes that the grass-root experiences of participants in a disadvantaged environment are needed for meaningful social and health policy responses.

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“…11 The dependent variable is the ability of the family to care for patients with schizophrenia, namely: The Questionnaire for Meeting the Needs of Daily Activities from the Barthel Index, 8 the Questionnaire to assist social interaction from the Caregiving Tasks in Caring for an Adult with Mental Illness Scale (CTiCAMIS), 8 the questionnaires help productive skills developed from concepts Janardhana. 30 Furthermore, the instruments the researchers used in the second stage, FGD and expert discussions, are shown in the questions guide below: (1). What are the possible causes of the patient, family, social environment, and health worker's factors on the family's ability to care for patients with schizophrenia disorder?…”

Section: Instrumentsmentioning

confidence: 99%

Development of an integrative empowerment model to care for patients with schizophrenia disorder

Indah Iswanti,

Nursalam,

Fitryasari

et al. 2023

Journal of Public Health Research

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Background: The main factor that causes a family the inability to care for patients with schizophrenia disorder is inadequate family-centered empowerment. Nevertheless, the family-integrated empowerment model has not been developed yet. This study aims to develop a integrative empowerment model to care for patients with schizophrenia disorder. Design and methods: The mixed methods research design was divided into two stages. The first stage used a cross-sectional method with a questionnaire to 135 families who cared for patients with schizophrenia disorder using purposive sampling. Data analysis was obtained using Partial Least Squares (PLS). The second stage is a focused group discussion (FGD) conducted with six families, seven health workers, and six social workers, and discussions with two experts for model development. Results: The integrative empowerment-based family empowerment model is developed from Outside-in empowerment (path coefficient = 0.309; t = 3.292) and Inside-out empowerment (path coefficient = 0.478; t = 4.850). Family factors is the most potent variable in shaping Inside-out empowerment (path coefficient = 0.217; t = 2.309). Moreover, re-meaning of caregiving is the strongest indicator that builds the Inside-out empowerment variable ( t = 42.643). The value of Q2 is 0.433 indicates that this model can be generalized, since 61% of family ability to provide care for schizophrenia patients. Conclusions: Re-meaning of caregiving is the most potent indicator in shaping Inside-out empowerment, which is the strongest factor forming this model. Nurses assist families to be able to find activities that can generate positive meaning when caring for patients with schizophrenia disorder.

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Caregiver Perspective and Understanding On road to Recovery

Cited by 7 publications

References 29 publications

Factors related to family’s ability to care for schizophrenic patients

Factors related to family’s ability to care for schizophrenic patients

Co-production of a pictorial recovery tool for people with psycho-social disability informed by a participatory action research approach—a qualitative study set in India

Development of an integrative empowerment model to care for patients with schizophrenia disorder

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