Caregivers of Adults With Traumatic Brain Injury: The Emotional Impact of Transition From Hospital to Home

Turner, Ben; Fleming, Jennifer; Parry, Julie; Vromans, Monique; Cornwell, Petrea; Gordon, C.; Ownsworth, Tamara

doi:10.1375/brim.11.3.281

Cited by 37 publications

(35 citation statements)

References 41 publications

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“…Increased burden is associated with elevated levels of stress, changes in health status, physical problems and emotional issues including depression and anxiety (Bayen et al, 2013;Carek et al, 2010;Lehan, Arango-Lasprilla, de los Reyes, & Quijano, 2012;Livingston et al, 2010;Norup, Welling, Qvist, Siert, & Mortensen, 2012;Turner et al, 2010). Family caregiving is also associated with increased levels of strain (Boycott, Yeoman, & Vesey, 2013).…”

Section: The Impact Of Family Caregivingmentioning

confidence: 99%

“…Family caregiving is also associated with increased levels of strain (Boycott, Yeoman, & Vesey, 2013). Specifically, in the phase of transition from hospital to home, one study found that more than half of the 29 family caregivers reported a significant level of strain on the Caregiver Strain Index at 3 months compared to 41% at 1 month post discharge (Turner et al, 2010). Caregiver strain and stress can manifest as anxiety, depression, anger and fatigue (Connolly & Dowd, 2001).…”

Section: The Impact Of Family Caregivingmentioning

confidence: 99%

“…Caregiver strain and stress can manifest as anxiety, depression, anger and fatigue (Connolly & Dowd, 2001). Being a caregiver can negatively affect the caregiver's marital and social life and disrupt previously established routines and roles (Braine, 2011;Hammond, Davis, Whiteside, Philbrick, & Hirsch, 2011;Turner et al, 2010). Disruption in family functioning has been reported (Carnes & Quinn, 2005;Schonberger, Ponsford, Olver, & Ponsford, 2010;Winstanley, Simpson, Tate, & Myles, 2006), with family functioning predicting the rates of depression 3 years later (Schonberger et al, 2010).…”

Section: The Impact Of Family Caregivingmentioning

confidence: 99%

“…The process of transition back into long-term community living is recognised as a challenging time as individuals and their family members need to manage the activity limitations that an individual might experience (Conneeley, 2012;Gustafsson & Fleming, 2012;Turner et al, 2010). These include returning to work and driving, engaging in meaningful activities and occupations in the community and being able to live independently .…”

Section: Long-term Community Livingmentioning

confidence: 99%

“…Although caregiving can result in positive experiences such as an increased appreciation for life, feelings of pride and competence, and a strengthened relationship between the caregiver and the individual (Backstrom & Sundin, 2007;Jumisko et al, 2007;Moghimi, 2007), there is a large body of research surrounding the negative experiences of caregiving. Caregiving has been associated with increased stress and strain (Turner et al, 2010), risk of clinical depression (Chumbler, Rittman, VanPuymbroeck, Vogel, & Qnin, 2004), deterioration of physical health, lack of perceived social support, and emotional challenges (Braine, 2011;. As the caregiving experience varies and involves unique challenges for different disabilities, current research has focused on and explored aspects of family caregiving in different population groups, for example, in individuals with stroke (Gaugler, 2010), TBI (Livingston et al, 2010) and dementia (Truzzi et al, 2012).…”

Section: Introductionmentioning

confidence: 99%

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Family members’ needs and experiences related to driving disruption following acquired brain injury

Liang¹

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Family members often assume the caregiving role after an individual sustains an acquired brain injury (ABI). A mandated period of driving disruption following an ABI means that individuals will often rely heavily on family members for transport and emotional support.However, research on driving disruption has largely focused on the impact, assessment and rehabilitation of the individual with ABI, with little attention given to family members. In order to develop an understanding for approaches to support family members better, this thesis aimed to explore the needs and experiences of family members during driving disruption following an ABI.The first aim of the thesis was to gain a broader understanding of the issue by conducting a scoping review of the literature on family members' needs and experiences during driving disruption across all health conditions. The scoping review found that driving disruption is a stressful and complex issue with communication and emotional implications for family members. The review highlighted differences in experiences according to health condition, permanence of driving disruption and nature of the caregiver occupation, and identified the need for further research on the issue of driving disruption for family members of individuals with ABI.A prospective, mixed methods, longitudinal study, with a phenomenological approach was conducted with family members of individuals with ABI who were experiencing driving disruption. Recruitment was stratified according to time post-ABI to gain a range of perspectives. Data were collected from 15 family members at three time-points: recruitment to study, 3 and 6 months later. Self-report questionnaires measuring family members' quality of life and well-being were administered at the first time-point, and semistructured interviews were conducted at each time-point. All interviews incorporated the use of a map to elicit qualitative and quantitative data about family members' current travel patterns as a result of driving disruption. The data were analysed using different approaches in a series of four studies.The first two studies aimed to gain an in-depth understanding about the experiences of family members of individuals experiencing driving disruption due to ABI across the recovery continuum. Both studies examined the mixed methods cross-sectional data from the first time-point. The first study explored the differences in family members' experiences iii at the early (<1 year post-ABI) and later stages (>1 year post-ABI) using a mixed methods, phenomenological approach. Family members in the later group reported more challenges with greater intensity. These challenges included changes in everyday activities, the impact on their emotions, consequences for the whole family, and effects on physical health. The later group had lower ratings of health and well-being, and higher caregiver strain.The second study investigated the specific changes family members experienced in everyday activities with a focus on the impact of driving disru...

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