Caregivers of Patients on Haemodialysis

Eirini, Grapsa; Gerogianni, Georgia

doi:10.5772/intechopen.72400

Cited by 17 publications

(30 citation statements)

References 31 publications

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“…Not only do they assist in meeting domestic needs, such as preparing meals, performing housework, doing laundry, providing transportation, and purchasing supplies, but they also help with more complicated tasks. These tasks include management of burdensome physical and psychological symptoms, medication administration, monitoring side effects and complications, navigating the healthcare system, interacting, and exchanging information with health care providers and making health care decisions (Eirini & Georgia, 2018). Fulfilling such tasks requires adequate health literacy.…”

Section: Introductionmentioning

confidence: 99%

Functional health literacy and caregiving burden among family caregivers of patients with end‐stage renal disease

Abed

Khalifeh

Khalil

et al. 2020

Research in Nursing & Health

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Family caregivers of patients with end‐stage renal disease (ESRD) experience significant caregiver‐related burden, yet the contribution of their functional health literacy (FHL) to caregiving burden has not been elucidated. We investigated the magnitude of FHL and caregiving burden and their association in a descriptive, correlational cross‐sectional study of family caregivers of Jordanian patients with ESRD (N = 88). The short versions of the FHL for Adults and the Zarit Burden Interview were used for assessment of caregivers. Demographic and clinical information of patients and their family caregivers were self‐reported. Of family caregivers, 41% had limited FHL and 38% experienced high caregiver burden. FHL and history of comorbidity in family caregivers predicted caregiving burden independent of demographic and clinical factors. Consideration of FHL in support interventions for family caregivers may minimize some of the high perceived caregiving burden, but clinical trials of such interventions are needed to confirm this conclusion.

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Section: Introductionmentioning

confidence: 99%

Functional health literacy and caregiving burden among family caregivers of patients with end‐stage renal disease

Abed

Khalifeh

Khalil

et al. 2020

Research in Nursing & Health

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“…They are reported to suffer from tiredness, anger, depression, sense of helplessness, guilt, isolation, loss of freedom, fear, vulnerable, and neglect their own health. They face difficulties with dating and marriage and problems with their job [9].…”

Section: Introductionmentioning

confidence: 99%

Depression and psychosocial burden among caregivers of children with chronic kidney disease

Mahmoud

Saad

Abdelhamid

et al. 2021

Middle East Curr Psychiatry

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Background More attention has recently targeted families of children with chronic kidney diseases displaying depressive symptoms and major psychosocial burden due to the long-standing nature of the illness and its alarming complications. A cross sectional comparative study was conducted to assess the rate of occurrence of both depression severity and psychological burden, personal and role strain in a sample of Egyptian caregivers of children with chronic kidney disease. Results Thirty caregivers of children with CKD were enrolled compared to 30 matched controls during a 6-month period. A short pre-designed sheet including socio-demographic data, and general medical, psychiatric and family history was used, and Beck Depression Inventory, Zarit Burden Interview, Holmes and Rahe Socioeconomic Stress Scale, and Occupational Stress Questionnaire were answered. More than half of the caregivers of children with chronic kidney disease reported moderate depression (53.3%), while 30% and 16.7% reported mild and severe depression respectively. The majority of cases 80% had moderate psychological burden. And 70% of cases reported minimal socioeconomic stress compared to 40% in the control. Logistic regression analysis showed that ZBI and SRRS scores were significantly linked to depression and burden found in caregivers of children with CKD (P = 0.001 and 0.031) respectively. Conclusion The rate of occurrence of depression and psychological burden is significantly high in caregivers of children with chronic kidney disease; therefore, this population must be assessed and provided with liaison psychological rehabilitation.

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“…Frequent dialysis and associated comorbidities cause disability in HD patients and increase dependency on caregivers. [ 4 ] Caregiving involves physical activity, emotional pressure, social restrictions, and economic demands which increase burden among caregivers and further aggravated by functional and cognitive impairments which lead to increased stress, depression,[ 5 6 ] increased use of medication, and reduced quality of life (QOL).…”

Section: Introductionmentioning

confidence: 99%

Factors influencing scales of burden, coping mechanisms, and quality of life in caregivers of hemodialysis patients in Andhra Pradesh, India

Nagarathnam¹,

Latheef²,

Sivakumar³

2021

Indian J Palliat Care

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Background: Evaluation of factors influencing scales of burden, coping mechanisms, and quality of life (QOL) in caregivers of hemodialysis (HD) patients may lead to the revision of interventions aimed at the betterment of QOL of caregivers of HD patients. In this study, we investigated the influence of demographic, social, and clinical variables on burden, coping mechanisms, and QOL in caregivers of HD patients. Methods: In this prospective study, 150 caregivers of HD patients were recruited. Assessment of burden, coping strategies, and QOL were made by the Zarit Burden Interview, Revised Ways of Coping, and Short Form-36 QOL. The role of age, gender, and social and clinical variables on these constructs was investigated using multivariate analysis of variance. Results: The mean age was 43.86 ± 1.11 years. Males outnumbered females. Most were Hindu, married, primary school educated, unemployed, spouses, caring the patients, and suffering from chronic diseases for <5 years. In multivariate analysis of variance, effect of age on physical functioning (PF), general health (GH), and physical component summary (PCS) score ( P < 0.01); gender on burden, distancing, seeking social support, role limitation due to emotional problem, and pain ( P < 0.05); role limitations due to physical health, energy/fatigue (EF), emotional well-being, PCS, and mental component summary (MCS) score ( P < 0.01); religion on PF ( P < 0.05); marital status on burden and GH ( P < 0.05); PF and PCS ( P < 0.01); relationship of caregiver with the patient on PCS ( P < 0.05); EF and MCS ( P < 0.01); and presence of chronic diseases on GH and social functioning ( P < 0.01) were observed. Conclusion: The role of demographic, social, and clinical variables should be taken into consideration while initiating therapies for reducing the burden and improving the QOL of caregivers.

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Caregivers of Patients on Haemodialysis

Cited by 17 publications

References 31 publications

Functional health literacy and caregiving burden among family caregivers of patients with end‐stage renal disease

Functional health literacy and caregiving burden among family caregivers of patients with end‐stage renal disease

Depression and psychosocial burden among caregivers of children with chronic kidney disease

Factors influencing scales of burden, coping mechanisms, and quality of life in caregivers of hemodialysis patients in Andhra Pradesh, India

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