Caregivers’ quality of life in mild and moderate dementia

Santos, Raquel Luiza; Sousa, Maria Fernanda Barroso de; Simões-Neto, José Pedro; Nogueira, Marcela Lima; Belfort, Tatiana; Torres, Bianca; Rosa, Rachel Dias Lopes da; Laks, Jérson; Dourado, Marcia Cristina Nascimento

doi:10.1590/0004-282x20140155

Cited by 54 publications

(54 citation statements)

References 18 publications

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“…As in both the groups, caregivers were exposed to continuous psychological and emotional trauma in the chronic course of both the diseases, so quality of life was deteriorated. 25 The most important finding of this study was negative correlation between family burden and quality of life of caregivers in both the groups. In dementia caregiver group, it was observed that with increase in caregivers' family burden resulted in poor functioning of psychological, environmental and social relationship domains of quality of life.…”

Section: Discussionmentioning

confidence: 53%

“…In case of caregivers of schizophrenia, the psychological domain of quality of life was affected as the family burden increases, because of stigma, discrimination and variations in the course of the disease. 25,26 The key caregivers during their caring for the chronic psychiatric patients have subjective experiences of anger, fear, dependency, incompetency, embarrassment, expectation and uncertainty. This burden affects their quality of life.…”

Section: Discussionmentioning

confidence: 99%

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A comparative study of family burden and quality of life between caregivers of schizophrenia and dementia patients

Swain

Behura²,

Dash

2017

Int J Community Med Public Health

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Background: In chronic mental diseases, as the disease progresses, it carries with tremendous burden both physically and psychologically on the family members, who are usually in the process of caregiving. The quality of life (QOL) of these caregivers is directly related to the subjective and objective burden of the illness. The objective of the study was to assess and compare the level of family burden and QOL between caregivers of Schizophrenia and Dementia patients as well as to find out the relationship between family burden and QOL.Methods: A total of 128 key caregivers (64 caregivers of each group) fulfilling the inclusion criteria purposely selected from the OPD of MHI, S. C. B. Medical College and Neuropsychiatric Consultation Centre, Cuttack. The impact of family burden on key caregivers of dementia and schizophrenia patients was assessed by using family burden interview schedule and the quality of life of key caregivers was assessed by using WHOQOL BREF scale. Data was analysed by using chi-squre, t test and pearson correlation. Data analysis was performed by SPSS.Results: Statistical significant differences (p <0.05) were found in the areas of financial burden, disruptions of family routine activities, family leisure and family interaction between dementia and schizophrenia caregivers. Whereas there was no statistical significant difference (p >0.05) found in different domains of quality of life between these two groups of caregivers. There were significant negative correlations found between family burden and psychological, social relationships and environment domains of quality of life.Conclusions: Caregivers perceived subjective and objective burden ultimately affecting their QOL.

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Section: Discussionmentioning

confidence: 53%

Section: Discussionmentioning

confidence: 99%

A comparative study of family burden and quality of life between caregivers of schizophrenia and dementia patients

Swain

Behura²,

Dash

2017

Int J Community Med Public Health

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“…Resilience is considered to act as a protective factor by increasing the QoL, coping and overall adaptation to difficulties related to caregivers 11 . The QoL involves the individuals' subjective perceptions about their role in life, based on their culture and system of values 28 . It is a multidimensional and complex concept that encompasses several dimensions 28 .…”

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confidence: 99%

“…The QoL involves the individuals' subjective perceptions about their role in life, based on their culture and system of values 28 . It is a multidimensional and complex concept that encompasses several dimensions 28 . It seems that resilience helps caregivers maintain their mental and physical Table 3.…”

mentioning

confidence: 99%

Caregivers’ resilience is independent from the clinical symptoms of dementia

Dias¹,

Simões-Neto

Santos³

et al. 2016

Arq. Neuro-Psiquiatr.

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Resilience is the capacity for successful adaptation when faced with the stress of adversity. We aimed to investigate the relationship between caregivers’ resilience and the sociodemographic and clinical factors of people with dementia. Cross-sectional assessment of 58 people with dementia and their caregiver dyads showed that most caregivers were female adult children. The caregivers reported moderate to higher levels of resilience, lower levels of anxiety and depressive symptoms and moderate levels of burden. Resilience was not related to the caregiver’s gender (p = 0.883), nor clinical (p = 0.807) or emotional problems (p = 0.420). The regression showed that resilience was related to the caregiver’s quality of life (p < 0.01) and inversely associated with their depressive symptoms (p < 0.01). There was no relationship between caregivers’ resilience and the sociodemographic and clinical characteristics of people with dementia. We can assume that resilience is an individual characteristic. Support groups should also focus on the factors that may increase resilience among caregivers.

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“…13 A sobrecarga percebida pelo cuidador de tais demandas também tem se mostrado como um relevante preditor de saúde do mesmo. A sobrecarga foi associada com menor qualidade de vida do cuidador, 14 ansiedade e sintomas depressivos. 15 Alta tensão do papel também foi conectada a maior mortalidade.…”

Section: Introductionunclassified