Carers' and users' expectations of services - carer version (CUES-C): A new instrument to support the assessment of carers of people with a severe mental illness

Lelliott, Paul; Beevor, Anne; Hogman, Gary; Hyslop, Jon; Lathlean, Judith; Ward, Martin

doi:10.1080/0963823031000103452

Cited by 22 publications

(28 citation statements)

References 1 publication

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“…CUES‐C was used specifically to assess carers’ perceived needs (Lelliott et al., ). Carers were first asked to rate their perceived satisfaction using a three‐point scale: 1 = Satisfied a lot, 2 = Satisfied a little and 3 = Not satisfied at all.…”

Section: Methodsmentioning

confidence: 99%

“…More importantly, there is limited understanding of changes in carers’ perceived needs over time within a population‐based framework. The Carers’ and Users’ Expectations of Services—Carer version (CUES‐C) measures multiple care‐giving constructs (Lelliott et al., ), and has satisfactory psychometric properties and high acceptability for carers (Harvey et al., ). CUES‐C was used recently in an Australian study (Coker et al., ).…”

Section: Introductionmentioning

confidence: 99%

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Perceived needs of carers of people with psychosis: An Australian longitudinal population-based study of caregivers of people with psychotic disorders

Poon

Joubert

Harvey³

2017

Health Soc Care Community

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Studies have documented the perceived needs of carers of people with psychosis but most recruitment has utilised convenience sampling resulting in limited understanding of carers' needs. This longitudinal study was conducted within the second Australian prevalence study of psychosis, aiming to obtain generalisable findings regarding perceived needs of carers of people with psychosis. Semi-structured interviews were conducted with 98 carers of people with psychosis recruited in the Australian prevalence study of psychosis. Seventy-eight of the carers were reinterviewed 1 year later to measure changes in their perceived needs. Correlational and paired T tests were conducted to identify relationships between perceived needs and carer's health and well-being, and changes in levels of perceived needs over time. Qualitative responses were structurally coded by segmentation according to the Carers' and Users' Expectations of Services-Carer version. Thematic analysis of common words and phrases was undertaken to identify key themes concerning carers' perceived needs. There was minimal improvement in carers' perceived needs over time and their needs were closely related to their perception of their own social connectedness, psychological health and quality of life. Five themes were identified: Greater involvement of carers in the treatment plan, provision of relevant information to carers, multiple biopsychosocial support for carers, well-being and independence interventions for people with psychosis, and choice to care and alternate caring arrangements. Although policy recognises the need to support carers, findings show that focused interventions are required to address carers' perceived needs more holistically in current mental health services. To support carers' recovery, services need to include carers in treatment planning, and consider ways to address their needs and improve their own health and well-being.

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Section: Methodsmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Perceived needs of carers of people with psychosis: An Australian longitudinal population-based study of caregivers of people with psychotic disorders

Poon

Joubert

Harvey³

2017

Health Soc Care Community

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“…This makes practical, physical, psychological and emotional demands on the carer potentially resulting in high levels of distress. However, many people with a mental illness could not continue to live independently without carers and the overall cost of community care would be much higher (Lelliott et al, 2003).…”

Section: Introductionmentioning

confidence: 99%

Carers of forensic mental health in-patients: What factors influence their satisfaction with services?

MacInnes

Beer

Reynolds

et al. 2013

Journal of Mental Health

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“…The available literature does clearly indicate that carers are interested in opportunities for participation in mental health services (Groom et al. 2003; Lammers & Happell 2004a; Lelliott et al. 2003; Mental Health Council of Australia and Carers Association of Australia 2000).…”

Section: Introductionmentioning

confidence: 99%

Conflicting agendas between consumers and carers: The perspectives of carers and nurses

Goodwin

Happell

2006

Int J Mental Health Nurs

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Increasingly, Australian government policy advances an expectation that consumer and carer participation will be present in all aspects of mental health service delivery. A review of the literature suggests that consumers and carers actively seek the opportunity to participate but are frequently hampered by barriers. However, government policy documents tend to discuss consumers and carers with regards to participation as though their needs and desires are essentially similar. This paper presents the findings of a qualitative research project involving in-depth interviews with carers and mental health nurses. The issue of conflict between the issues for consumers and carers emerged as a major theme. This issue is explored and discussed in light of the goals of current mental health policy. It is concluded that conflicting agendas are apparent and must be addressed if genuine participation in service delivery is possible for both consumers and carers.

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Carers' and users' expectations of services - carer version (CUES-C): A new instrument to support the assessment of carers of people with a severe mental illness

Cited by 22 publications

References 1 publication

Perceived needs of carers of people with psychosis: An Australian longitudinal population-based study of caregivers of people with psychotic disorders

Perceived needs of carers of people with psychosis: An Australian longitudinal population-based study of caregivers of people with psychotic disorders

Carers of forensic mental health in-patients: What factors influence their satisfaction with services?

Conflicting agendas between consumers and carers: The perspectives of carers and nurses

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