Caring for Women Living With Sjögren's Syndrome

Schoofs, Nancy

doi:10.1177/0884217503257142

Cited by 8 publications

(9 citation statements)

References 11 publications

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“…Furthermore, agreement on 13 main themes, translated into research questions (see online supplementary table S2) was achieved and subsequently formed the basis of the SLR (see separate manuscript). In total, 79 papers were included; 20 addressed the competences HPRs of multiple professions have in common,1 3 4 9 12–27 43 the competences of nurses,28–70 12 of PTs71–82 and four of OTs 83–86. From the 20 papers addressing the competences HPRs of multiple professions have in common, 75% (n=15) had a qualitative design 1 3 4 9 12 13 15 16 18–20 23 25–27.…”

Section: Resultsmentioning

confidence: 99%

“…In general, the generic competences as described in the literature addressing HPRs of multiple professions were confirmed in the literature on competences of either nurses, PTs or OTs. Some details were stressed more in the literature on one profession than another, such as, for example, the importance of the assessment of sexual health,36 48 65 75 cardiovascular risk53 or nutritional and dietary status66 in the nurses’ literature. It should be noted in this respect that for some competences it is clear that they are applicable to HPRs of multiple professions, whereas for others the assignment to one profession or the other is ambiguous.…”

Section: Discussionmentioning

confidence: 99%

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2019 EULAR recommendations for the generic core competences of health professionals in rheumatology

et al. 2019

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background/objectives To maintain and optimise the quality of care provided by health professionals in rheumatology (HPRs), adequate educational offerings are needed. This task force (TF) aimed to develop evidence-based recommendations for the generic core competences of HPRs, with specific reference to nurses, physical therapists (PTs) and occupational therapists (OTs) to serve as a basis for their postgraduate education. Methods The EULAR standardised operating procedures for the development of recommendations were followed. A TF including rheumatologists, nurses, PTs, OTs, patient-representatives, an educationalist, methodologists and researchers from 12 countries met twice. In the first TF meeting, 13 research questions were defined to support a systematic literature review (SLR). In the second meeting, the SLR evidence was discussed and recommendations formulated. Subsequently, level of evidence and strength of recommendation were assigned and level of agreement (LoA) determined (0-10 rating scale). Results Three overarching principles were identified and 10 recommendations were developed for the generic core competences of HPRs. The SLR included 79 full-text papers, 20 of which addressed the competences, knowledge, skills, attitudes and/or educational needs of HPRs from multiple professions. The average LoA for each recommendation ranged from 9.42 to 9.79. Consensus was reached both on a research and educational agenda. Conclusion Evidence and expert opinion informed a set of recommendations providing guidance on the generic core competences of HPRs. Implementation of these recommendations in the postgraduate education of HPRs at the international and national level is advised, considering variation in healthcare systems and professional roles. MeTHodsThe updated EULAR standardised operating procedures (SOPs) for the development of the recommendations were followed 5 after approval of the TF by the EULAR Executive Committee. The multidisciplinary TF comprised of a selection of nine experts in HPRs' education (three nurses, two PTs, three on July 4, 2020 by guest. Protected by copyright.

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Section: Resultsmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

2019 EULAR recommendations for the generic core competences of health professionals in rheumatology

et al. 2019

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“…Because SS mimics the symptoms of estrogen deficiency, we owe it to our patients to explore the underlying cause of these symptoms and refer our patients for appropriate care. For those interested in learning more about SS, along with the resources in the article by Schoofs (2003), I also recommend an excellent book, The New Sjogren's Syndrome Handbook, edited by Carsons and Harris.…”

Section: Sjogren's Syndromementioning

confidence: 99%

Sjogren's Syndrome

Roller

2004

Journal of Obstetric, Gynecologic & Neonatal Nursing

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“…13 However, most females diagnosed with pSS are not informed about vaginal dryness, consequent chronic dyspareunia, and sexual problems associated with the condition. 5 Although chronic dyspareunia is a well-reported symptom in females with pSS, its impact on sexual functionality of patients has rarely been studied. 14 However, it is known that there is a possible relationship between sexual well-being and overall life satisfaction in females.…”

mentioning

confidence: 99%

“…[1][2][3][4][5] The annual incidence of the disease in the literature is 3.9-5.3 per 100,000. 6 Two studies from Turkey estimated the prevalence ranging from 0.21% to 0.72% depending on the classification criteria.…”

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confidence: 99%

Primary Sjögren’s Syndrome Adversely Affects the Female Sexual Function Assessed by the Female Sexual Function Index: A Case-Control Study

et al. 2017

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Objectives: This study aims to evaluate the sexual function of females with primary Sjögren's syndrome (pSS) in comparison to healthy females by using the Female Sexual Function Index (FSFI). Patients and methods:This case-control study included 31 female patients (mean age 46.0±10.2 years; range 30 to 68 years) with pSS and 27 healthy females (mean age 44.2±8.5 years; range 30 to 55 years) as control group. The sexual function of the participants was assessed by 19-item FSFI. Results: Mean duration of pSS in the patient group was 35.9 months (range 3 to 264 months). Significantly higher number of pSS patients reported positive history for vaginal infection compared to controls (n=26, 83.9% vs n=7, 25.9%, respectively; p<0.001) without any difference in endocervical culture result. Cervical smear assessment revealed more inflammation and atrophy in patient group compared to control group (p=0.001). Mean FSFI total score was significantly lower in patient group than control group (18.9±9.9 vs 25.1±5.1, respectively; p=0.004). Similarly, five out of six domains of FSFI -arousal, lubrication, orgasm, satisfaction, and pain-were significantly lower in patient group. FSFI total and subscale scores, except for pain, were found to be negatively correlated with duration of pSS. Conclusion:The pSS causes sexual dysfunction in female patients. Furthermore, as disease duration increases, female sexual function decreases. Clinical management of female patients with pSS should cover the assessment of their sexual functionality and taking the necessary precautions to maintain satisfactory quality of life and treatment outcome.

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Caring for Women Living With Sjögren's Syndrome

Cited by 8 publications

References 11 publications

2019 EULAR recommendations for the generic core competences of health professionals in rheumatology

2019 EULAR recommendations for the generic core competences of health professionals in rheumatology

Sjogren's Syndrome

Primary Sjögren’s Syndrome Adversely Affects the Female Sexual Function Assessed by the Female Sexual Function Index: A Case-Control Study

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