Characteristics of Two-Year College Students on the Autism Spectrum and Their Support Services Experiences

Roux, Anne M.; Shattuck, Paul; Rast, Jessica E.; Rava, Julianna; Edwards, Amy Danielle; Wei, Xin; McCracken, Mary; Yu, Jennifer

doi:10.1155/2015/391693

Cited by 82 publications

(57 citation statements)

References 33 publications

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“…The most frequently reported aspect of household SEP was autistic participants' educational attainment (n = 16) [12, 14, 15, 17, 19, 20, 22, 24, 27, 29, 33, 36, 43••, 44, 58, 59]. Four studies included information about parental level of education [25,26,33,58]. Only five studies reported household income [24,33,37,53], and participants' income was described in only one study [43••].…”

Section: Reporting On Socioeconomic Position Race and Ethnicitymentioning

confidence: 99%

“…Four studies included information about parental level of education [25,26,33,58]. Only five studies reported household income [24,33,37,53], and participants' income was described in only one study [43••]. Three studies included information about participants' receipt of public benefits (e.g., Medicaid, SSI, food stamps) [20,27,29].…”

Section: Reporting On Socioeconomic Position Race and Ethnicitymentioning

confidence: 99%

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Services for Adults With Autism Spectrum Disorder: a Systems Perspective

Shattuck

Garfield

Roux

et al. 2020

Curr Psychiatry Rep

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Purpose of Review We review original research about services for adults on the autism spectrum published from January 2013 through December 2018. The main aim is to characterize the topical and methodological aspects of research about services. We review research on services related to employment, living in the community, and social participation. We compare our results with those from a similar review published in 2012 to assess progress and identify where new directions in research about services for adults with autism are needed. Recent Findings We found the evidence base about services for adults on the autism spectrum remains very small and highly variable in aims and methods. There is wide variability in methods used to define sampling frames and recruit participants. Most studies focus on employment. Almost no studies examine the overall ecosystem of services serving autistic adults. Few studies use a conceptual framework for understanding access to, or improvement of, services. Summary The small size of the extant research coupled with inconsistent quality prevents the accumulation of new knowledge in ways that would significantly inform the improvement of systems of care for the growing population of adults on the autism spectrum.

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Section: Reporting On Socioeconomic Position Race and Ethnicitymentioning

confidence: 99%

Section: Reporting On Socioeconomic Position Race and Ethnicitymentioning

confidence: 99%

Services for Adults With Autism Spectrum Disorder: a Systems Perspective

Shattuck

Garfield

Roux

et al. 2020

Curr Psychiatry Rep

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“…In the United States, about half of young adults on the spectrum are not engaged in postsecondary schooling or employment in the first 2 years after high school. 1 Their rate of disconnection from these adult social contexts is higher than for young adults with most other disabilities. 1 , 2 This represents a significant loss of opportunities to establish interpersonal relationships with friends, romantic partners, mentors, coaches, service providers, and colleagues, and to experience positive social outcomes such as belonging and social integration.…”

Section: Introductionmentioning

confidence: 99%

“… 1 Their rate of disconnection from these adult social contexts is higher than for young adults with most other disabilities. 1 , 2 This represents a significant loss of opportunities to establish interpersonal relationships with friends, romantic partners, mentors, coaches, service providers, and colleagues, and to experience positive social outcomes such as belonging and social integration. Disconnection also restricts access to valuable social capital that can help young adults achieve key adult outcomes, such as employment.…”

Section: Introductionmentioning

confidence: 99%

“…In addition to disconnection from work and school, autistic young adults can also experience a “service cliff” 1 involving disruptions in access to needed supports as they age out of eligibility for school-based and pediatric care. Rates of service utilization decrease considerably after high school exit, and over one-quarter of autistic young adults received no services between high school and their early 20s (Ref.…”

Section: Introductionmentioning

confidence: 99%

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Social Capital and Autism in Young Adulthood: Applying Social Network Methods to Measure the Social Capital of Autistic Young Adults

Hassrick

Sosnowy

Holmes

et al. 2020

Autism in Adulthood

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Social isolation is a core challenge associated with autism. Interpersonal relationships and the resources and support embedded in the social networks of autistic young adults could impact key adult outcomes, including quality of life, mental health, employment, and independence. However, little research systematically measures the networks of autistic young adults and network impact on key adult outcomes. This article demonstrates how social network analysis can be adapted for the field of autism to measure young adult networks. We provide examples as to how this approach could be implemented to yield key insights into the amount and quality of interpersonal relationships and the types of resources embedded in the networks of autistic young adults. The network protocol was feasibility tested with autistic adults during the posthigh school transition period (n = 17, 19-27 years). The parents of three of the recruited young adults also successfully completed a complementary network survey, allowing for the inclusion of the parent-reported network using duocentric network analysis, never before applied to parent-child networks. The implementation data collected from the study suggest feasibility of egocentric and duocentric approaches, with several important modifications to adapt the measure for the field of autism. The future potential of social network research for understanding autism in adulthood is discussed.

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Use of allied‐health services and medication among adults with ASD in Latin America

et al. 2021

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ASD is a neurodevelopmental disorder that affects people across the entire lifespan, yet most of the research identifying the health and medical needs for autistic individuals have been among minors. As individuals with ASD transition to emerging adulthood, the services, already limited, become less available. This study aimed to identify the use of services for Latin American adults on the spectrum. We surveyed 295 caregivers of adults with ASD from six Latin American countries. Comparing the results for all the possible services observed in this study, the adults in our sample were primarily underserved: 84.4%–95.9% were receiving zero hours per week, 3.7%–12.9% 1%–10 h, 0%–1.7% 11–20, and only 0%–1% above 20 h of services. Almost half of the sample used medication, and neurologists were the most consulted health providers. Next to inexistent health care usage in Latin American adults with ASD highlights socioeconomic and health disparities in service provision for ASD in the region. The lack of services places adults with ASD in Latin America at a higher risk of worse symptom severity than autistic adults from regions with broader access to services. Lay Summary This study aimed to identify the quantity of services received by adults with autism in Latin America. Most of our sample was not receiving health services yet almost half had access to medication. This could mean that adults with autism in Latin America are at higher risk for poorer health.

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Characteristics of Two-Year College Students on the Autism Spectrum and Their Support Services Experiences

Cited by 82 publications

References 33 publications

Services for Adults With Autism Spectrum Disorder: a Systems Perspective

Services for Adults With Autism Spectrum Disorder: a Systems Perspective

Social Capital and Autism in Young Adulthood: Applying Social Network Methods to Measure the Social Capital of Autistic Young Adults

Use of allied‐health services and medication among adults with ASD in Latin America

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