Children as Research Subjects: a Risky Enterprise

Hood, Suzanne; Kelley, Peter; Mayall, Berry

doi:10.1111/j.1099-0860.1996.tb00462.x

Cited by 104 publications

(86 citation statements)

References 2 publications

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“…Adults, either parents and carers or professionals, often act as "gatekeepers" to young people and can either facilitate or constrain their involvement (Cree et al, 2002;Hood et al, 1996). It was sometimes difficult to engage the interest of services in the potential opportunities that involvement could provide for young people:…”

Section: The Role Of Servicesmentioning

confidence: 99%

Involving young people in drug and alcohol research

Brady

Templeton

Toner

et al. 2018

DAT

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If you would like to write for this, or any other Emerald publication, then please use our Emerald for Authors service information about how to choose which publication to write for and submission guidelines are available for all. Please visit www.emeraldinsight.com/authors for more information. About Emerald www.emeraldinsight.comEmerald is a global publisher linking research and practice to the benefit of society. The company manages a portfolio of more than 290 journals and over 2,350 books and book series volumes, as well as providing an extensive range of online products and additional customer resources and services.Emerald is both COUNTER 4 and TRANSFER compliant. The organization is a partner of the Committee on Publication Ethics (COPE) and also works with Portico and the LOCKSS initiative for digital archive preservation. Purpose -Young people's involvement should lead to research, and ultimately services, that better reflect young people's priorities and concerns. Young people with a history of treatment for alcohol and/or drug problems were actively involved in the youth social behaviour and network therapy study. The purpose of this paper is to explore the impact of that involvement on the study and what was learnt about involving young people in drug and alcohol research. Design/methodology/approach -The initial plan was to form a young people's advisory group (YPAG), but when this proved problematic the study explored alternative approaches in collaboration with researchers and young people. Input from 17 young people informed all key elements of the study. Findings -Involvement of young people needs to be dynamic and flexible, with sensitivity to their personal experiences. Engagement with services was crucial both in recruiting young people and supporting their ongoing engagement. This research identified a need to critically reflect on the extent to which rhetorics of participation and involvement give rise to effective and meaningful involvement for young service users. It also highlights the need for researchers to be more flexible in response to young people's personal circumstances, particularly when those young people are "less frequently heard". Research limitations/implications -This research highlights the need for researchers to be more flexible in response to young people's personal circumstances, particularly when those young people are "less frequently heard". It highlights the danger of young people in drug and alcohol research being unintentionally disaffected from involvement through conventional approaches and instead suggests ways in which young people could be involved in influencing if and how they participate in research. Practical implications -There is an apparent contradiction between dominant discourses and cultures of health services research (including patient and public involvement) that often do not sit easily with ideas of co-production and young people-centred involvement. This paper provides an alternative approach to involvement of young people that can help to e...

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Section: The Role Of Servicesmentioning

confidence: 99%

Involving young people in drug and alcohol research

Brady

Templeton

Toner

et al. 2018

DAT

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“…Alguns autores têm vindo a falar sobre as dificuldades que as hierarquias de cuidadores colocam à pesquisa (Hill et al, 2004;Hood;Kelley;Mayall, 1996;Masson, 2004;Powell;Smith, 2009), cuja intenção é a genuína preocupação de proteger a criança, mas quando amparado por um forte discurso protecionista pode negar à criança o direito de expressar suas opiniões. Retomaremos essa reflexão mais à frente, quando discutirmos os desafios para uma ética viável na investigação com crianças.…”

Section: Introductionunclassified

Ética na pesquisa com crianças: ausências e desafios

Fernandes

2016

Rev. Bras. Educ.

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RESUMOValendo-se da sociologia da infância, o texto discute as questões da infância, da pesquisa e da ética que devem enformar todos os procedimentos desencadeados no processo de pesquisa com crianças. Será inicialmente apresentado o estado da arte acerca das discussões que têm caraterizado esse debate, que, sendo recente, conta com uma significativa reflexão. Apresentamos, ainda, alguns desafios que são fundamentais serem enfrentados para que se consiga uma ética viável na investigação com crianças, que passam pela indispensabilidade de se pensar as questões de poder que se estabelecem entre adultos e crianças; que passam também pelo enfrentamento do desafio que decorre das hierarquias protocolares e a maneira como estas podem contribuir para a invisibilidade epistemológica das crianças na pesquisa; que passam, finalmente, por um questionamento crítico relativamente à forma como é salvaguardada a autoria, quer de crianças, quer de adultos, na análise, interpretação e produção dos dados.PALAVRAS-CHAVE ética na pesquisa; pesquisa com crianças; crianças; sociologia da infância.

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“…Hood, Kelley and Mayall (1996) outline some of the ethical and methodological issues involved in carrying out research with children in their own homes, identifying in particular control issues in relation to access and the interview process. These issues can be exacerbated in research in residential care because of its ambiguous location in private/public space.…”

Section: Researching Children In Their Own Living Spacementioning

confidence: 99%

“…Access can be less of an event than a continuing process involving negotiations with a number of gatekeepers who may support or hinder the research (Hayes, 2005;Heptinstall, 2000;Masson, 2002;McGee, 1999). Hood, Kelley and Mayall (1996) refer to this as 'a hierarchy of gatekeeping' running from the organizational level to the parents and finally to the child (Hood et al, 1996, p. 120). Heptinstall (2000) demonstrates how gatekeepers' ability to block children's participation can constrain children and young people from making decisions themselves about involvement in research, effectively silencing them.…”

Section: Access Information Consent and Choicementioning

confidence: 99%