Chronic fatigue syndrome in children and adolescents

Richards, Josephine; Smith, Frank

doi:10.1192/pb.22.4.203

Cited by 12 publications

(3 citation statements)

References 16 publications

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“…The rehabilitation and recovery approach is well described and evidence based in chronic fatigue syndrome (Lock & Giammona, 1999;Richards, 2000) where families often present a challenge to engage because of their strong medical views. The emphasis is not on pursuing an endless search for the causes -physical or psychological -but on functional improvement and a rehabilitation plan fitting within the family's beliefs to achieve this.…”

Section: Dealing With Perpetuating Factors: Rehabilitation and Recovementioning

confidence: 99%

Engaging Families Who Hold Strong Medical Beliefs in a Psychosomatic Approach

Hardwick

2005

Clin Child Psychol Psychiatry

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A B S T R A C T Families holding strong medical beliefs about the nature and treatment of their problems despite contrary evidence often challenge our skills to engage them in the psychological part of a holistic psychosomatic approach. Although joining and engaging feature generally in the therapy literature, there appears little specific information on engaging medicalizing families. This article attempts to remedy the deficiency. It draws on the author's experience in paediatric liaison and systemic therapy and refers to what literature could be found. In attempting to understand over-medicalization, the somatization process is considered with reference to chronic fatigue syndrome and 'good' children. Iatrogenic aspects are discussed including our culture of medicalization, behaviour and beliefs of clinicians, and difficulties living with uncertainty. However, the bulk of the article is devoted to practical approaches that facilitate engagement. These include experimentation and curiosity, tackling beliefs, 'as though', developing an emotional language, practical philosophy, rehabilitation and recovery, and overcoming network paralysis. Measures to prevent excessive medicalization are proposed including better psychosomatic education and alternative systems of classification. K E Y W O R D S engagement, families, medicalization, psychosomatic, somatizationClinical Child Psychology and Psychiatry

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Section: Dealing With Perpetuating Factors: Rehabilitation and Recovementioning

confidence: 99%

Engaging Families Who Hold Strong Medical Beliefs in a Psychosomatic Approach

Hardwick

2005

Clin Child Psychol Psychiatry

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“…Some children and their families believe fervently that rest and avoidance of stress are the best treatments. Reports show that this belief has been fuelled by information from a variety of places including the Internet , some self-help groups (Wessely, 1995) and some clinicians (Richards & Smith, 1998).…”

Section: Structured Incremental Rehabilitation (Stir)mentioning

confidence: 99%

Management of chronic fatigue syndrome in children

Wright¹,

Partridge²,

Williams³

2000

Adv. psychiatr. treat

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Certain areas of child and adolescent mental health generate a degree of polarised debate, both within and outside the profession. Media attention, the development of self-help groups and the Internet lead to the publishing of papers and opinion, which exist alongside peer-reviewed research and evidence-based medicine. Parents reading such material may find it hard to know what advice is best. One area that falls into this category is chronic fatigue syndrome (CFS).

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“…The incidence of chronic fatigue syndrome (CFS) in people under 18 years is estimated to be 0.05% (Ho‐Yen & McNamara, 1991; Richards & Smith, 1998) and as it is a condition with significant effects on a young person's development, it represents an important area for intervention. Many paediatric services and child mental health services strive to find helpful ways of treating and supporting young people with CFS and their families.…”

Section: Introductionmentioning

confidence: 99%

Chronic Fatigue Syndrome: An Evaluation of a Community Based Management Programme for Adolescents and their Families

Ashby¹,

Wright

Jordan

2005

Child Adoles Ment Health

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Background: Young people with chronic fatigue syndrome (CFS), families and clinicians may differ in their attributions about CFS and consequently in their approach to treatment. Research that clarifies the best treatment approaches is clearly needed. We have sought to develop a model that engages young people and their families in a collaborative way. The approach adopts an optimistic and holistic stance using an active rehabilitation model paying attention to the integrated nature of the physiological and psychological aspects of the illness. Method: This small study set out to evaluate this approach from a service user perspective. Semi‐structured interviews were carried out with young people and their parents separately in order to elicit their views on key treatment elements and their perceived degree of recovery. Results: Improvements are indicated in all key areas addressed and qualitative information suggests that families value this approach. Conclusion: Further research is needed to address treatment issues for families who choose not to opt into the service model.

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Chronic fatigue syndrome in children and adolescents

Cited by 12 publications

References 16 publications

Engaging Families Who Hold Strong Medical Beliefs in a Psychosomatic Approach

Engaging Families Who Hold Strong Medical Beliefs in a Psychosomatic Approach

Management of chronic fatigue syndrome in children

Chronic Fatigue Syndrome: An Evaluation of a Community Based Management Programme for Adolescents and their Families

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