CIGNOweb.it

Truccolo, Ivana; Bogliolo, Anna; Ricci, Roberto; Pivetti, Susanna; Russell-Edu, William; Lorenzo, Francesco De; Seta, Maurella Della; Colombo, Cinzia; Bufalino, Rosaria; Bocchini, G; Lombardo, Claudio; Paoli, Paolo De

doi:10.1177/030089161109700125

Cited by 3 publications

(3 citation statements)

References 2 publications

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“…The librarian has the scope within this role to develop a real collaboration with patients and citizens in producing the patient education handouts. Once produced, all materials are indexed by the librarians on the online database CIGNOweb, a national project managed by the CRO library which is an Italian digital repository of trustworthy health resources for cancer patients. This resource fills a gap which had previously existed in this area.…”

Section: Patient Education Handoutsmentioning

confidence: 99%

Providing patient information and education in practice: the role of the health librarian

Truccolo

2016

Health Info Libraries J

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In this article, guest writer Ivana Truccolo presents an overview of her work at the Scientific and Patient Library of a Cancer Comprehensive Centre in Italy coordinating the patient education process. She discusses the historical evolution of the concept of patient education and how this has run alongside the role of the health librarian in the provision of consumer health information. Details are provided about various patient education programmes in place at the Centre. In particular, various activities are discussed including patient education classes, the development of patient education handouts and a narrative medicine programme which includes a literary competition. The article concludes with a specific outline of the role the health librarian can play in the provision of consumer health information and patient education. H.S.

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Section: Patient Education Handoutsmentioning

confidence: 99%

Providing patient information and education in practice: the role of the health librarian

Truccolo

2016

Health Info Libraries J

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“…The challenge of providing information to Italian patients and their families, especially in oncology, has led to some noteworthy initiatives such as Azalea, a database of oncology resources for patients, created in 2003 containing about 4000 records. Relaunched in 2009 as Cignoweb, a new version of the database will soon be available. Both projects were financially supported by the Ministry of Health through the network Alleanza Contro il Cancro (ACC, http://www.alleanzacontroilcancro.it) and implemented by cancer research libraries.…”

Section: Providing Information To Patientsmentioning

confidence: 99%

International trends in health science librarianship: Part 4 – Four Southern European countries

Lappa

Chaleplioglou

Cognetti

et al. 2012

Health Info Libraries J

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“…To these informative supports contribute researchers, psychologists and operators of IRCCS and oncology scientific societies like AIOM, AIRO, FIMMG and SIPO. In addition, more material is reviewed in CIGNOweb.it -an informative material data base for patients and relatives 24 supporting SION.…”

Section: Shared Instruments and Other Personnel Employed At The Time mentioning

confidence: 99%

National Cancer Information Service in Italy: An information points network as a new model for providing information for cancer patients

Truccolo

Bufalino

Annunziata

et al. 2011

Tumori

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The international literature data report that good information and communication are fundamental components of a therapeutic process. They contribute to improve the patient-health care professional relationship, to facilitate doctor-patient relationships, therapeutic compliance and adherence, and to the informed consent in innovative clinical trials. We report the results of a multicentric national initiative that developed a 17-information-structure network: 16 Information Points located in the major state-funded certified cancer centers and general hospitals across Italy and a national Help-line at the nonprofit organization AIMaC (the Italian oncologic patients, families and friends association), and updated the already existing services with the aim to create the National Cancer Information Service (SION). The project is the result of a series of pilot and research projects funded by the Italian Ministry of Health. The Information Service model proposed is based on some fundamental elements: 1) human interaction with experienced operators, adequately trained in communication and information, complemented with 2) virtual interaction (Help line, Internet, blog, forum and social network); 3) informative material adequate for both scientific accuracy and communicative style; 4) adequate locations for appropriate positioning and privacy (adequate visibility); 5) appropriate advertising. First results coming from these initiatives contributed to introduce issues related to "Communication and Information to patients" as a "Public Health Instrument" to the National Cancer Plan approved by the Ministry of Health for the years 2010-2012.

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CIGNOweb.it

Cited by 3 publications

References 2 publications

Providing patient information and education in practice: the role of the health librarian

Providing patient information and education in practice: the role of the health librarian

International trends in health science librarianship: Part 4 – Four Southern European countries

National Cancer Information Service in Italy: An information points network as a new model for providing information for cancer patients

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