Clinical Potential of Patient-Reported Outcome Measures in Occupational Therapy

Stern, Brocha Z.

doi:10.5014/ajot.2022.049367

Cited by 4 publications

(4 citation statements)

References 23 publications

(23 reference statements)

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“…8 Electronic patient-reported outcomes (e-PROs) can serve as an informatics tool for including the child and family perspective regarding their needs and priorities when designing and evaluating services. 9 10 In EI, e-PROs can be used in direct service provision to consider family needs and priorities for tailoring the development of the individualized family service plan (IFSP) that should include functional goals and strategies for goal attainment based on family-identified priorities and inclusive of their expertise. Some e-PROs can also be useful for tracking progress to guide shared and data-driven decisions about tailoring interventions with families.…”

Section: Background and Significancementioning

confidence: 99%

“…Some e-PROs can also be useful for tracking progress to guide shared and data-driven decisions about tailoring interventions with families. 10 In both cases, e-PROs support equitable services via quantifiable estimates from the family that are consistent in the information they capture and minimize the need for clinician interpretation (and implicit bias). 10 Beyond their benefits to individual-level services, e-PROs yield data that can be aggregated for conducting robust health services and implementation research, to demonstrate the value of EI services and guide decisions for improving these services.…”

Section: Background and Significancementioning

confidence: 99%

“… 10 In both cases, e-PROs support equitable services via quantifiable estimates from the family that are consistent in the information they capture and minimize the need for clinician interpretation (and implicit bias). 10 Beyond their benefits to individual-level services, e-PROs yield data that can be aggregated for conducting robust health services and implementation research, to demonstrate the value of EI services and guide decisions for improving these services. 10 11 While there are challenges to appraising and implementing e-PROs in pediatric contexts like EI, 11 12 13 14 15 they hold promise for accelerating quality improvement of these services in programs with electronic data capture systems.…”

Section: Background and Significancementioning

confidence: 99%

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Implementing an Electronic Patient-Reported Outcome and Decision Support Tool in Early Intervention

et al. 2023

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Objective The aim of the study is to identify and prioritize early intervention (EI) stakeholders' perspectives of supports and barriers to implementing the Young Children's Participation and Environment Measure (YC-PEM), an electronic patient-reported outcome (e-PRO) tool, for scaling its implementation across multiple local and state EI programs. Methods An explanatory sequential (quan > QUAL) mixed-methods study was conducted with EI families (n = 6), service coordinators (n = 9), and program leadership (n = 7). Semi-structured interviews and focus groups were used to share select quantitative pragmatic trial results (e.g., percentages for perceived helpfulness of implementation strategies) and elicit stakeholder perspectives to contextualize these results. Three study staff deductively coded transcripts to constructs in the Consolidated Framework for Implementation Research (CFIR). Data within CFIR constructs were inductively analyzed to generate themes that were rated by national early childhood advisors for their relevance to longer term implementation. Results All three stakeholder groups (i.e., families, service coordinators, program leadership) identified thematic supports and barriers across multiple constructs within each of four CFIR domains: (1) Six themes for “intervention characteristics,” (2) Six themes for “process,” (3) three themes for “inner setting,” and (4) four themes for “outer setting.” For example, all stakeholder groups described the value of the YC-PEM e-PRO in forging connections and eliciting meaningful information about family priorities for efficient service plan development (“intervention characteristics”). Stakeholders prioritized reaching families with diverse linguistic preferences and user navigation needs, further tailoring its interface with automated data capture and exchange processes (“process”); and fostering a positive implementation climate (“inner setting”). Service coordinators and program leadership further articulated the value of YC-PEM e-PRO results for improving EI access (“outer setting”). Conclusion Results demonstrate the YC-PEM e-PRO is an evidence-based intervention that is viable for implementation. Optimizations to its interface are needed before undertaking hybrid type-2 and 3 multisite trials to test these implementation strategies across state and local EI programs with electronic data capture capabilities and diverse levels of organizational readiness and resources for implementation.

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Section: Background and Significancementioning

confidence: 99%

Section: Background and Significancementioning

confidence: 99%

Section: Background and Significancementioning

confidence: 99%

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Implementing an Electronic Patient-Reported Outcome and Decision Support Tool in Early Intervention

et al. 2023

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“…PROMs can accommodate variation in the recovery definition, its chronic and cyclical nature, and variable and subjective pathways. They allow people to define recovery themselves, reflect subjective changes, and emphasize patients as central in their addiction care, similar to other conditions such as cancer and disability [ 20 , 21 ], where outcome definitions differ by person and can change over time. Further, given the association between self-efficacy and addiction outcomes [ 22 , 23 ], PROMs are adaptive to asking PWLE about self-efficacy in the recovery process, to measure and predict outcomes.…”

Section: Introductionmentioning

confidence: 99%

Development of an addiction recovery patient-reported outcome measure: Response to Addiction Recovery (R2AR)

Okrant,

Reif,

Horgan

2023

Subst Abuse Treat Prev Policy

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Background Recovery, a primary goal of addiction treatment, goes beyond abstinence. Incorporating broad domains with key elements that vary across individuals, recovery is a difficult concept to measure. Most addiction-related quality measurement has emphasized process measures, which limits evaluation of treatment quality and long-term outcomes, whereas patient-reported outcomes are richer and nuanced. To address these gaps, this study developed and tested a patient-reported outcome measure for addiction recovery, named Response to Addiction Recovery (R2AR). Methods A multi-stage mixed methods approach followed the Patient-Reported Outcomes Measurement Information System (PROMIS) measure development standard. People with lived experience (PWLE) of addiction, treatment providers, and other experts contributed to item distillation and iterative measure refinement. From an item bank of 356 unique items, 57 items were tested via survey and interviews, followed by focus groups and cognitive interviews. Results Face validity was demonstrated throughout. PWLE rated item importance higher and with greater variance than providers, yet both agreed that “There are more important things to me in my life than using substances” was the most important item. The final R2AR instrument has 19 items across 8 recovery domains, spanning early, active, and long-term recovery phases. Respondents assess agreement for each item as (1) a strength, and (2) importance to ongoing recovery. Conclusion R2AR allows PWLE to define what is important to their recovery. It is designed to support treatment planning as part of clinical workflows and to track recovery progress. Inclusion of PWLE and providers in the development process enhances its face validity. Including PWLE in the development of R2AR and using the tool to guide recovery planning emphasizes the importance of patient-centeredness in designing clinical tools and involving patients in their own care.

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On the use of patient-reported measures in digital medicine to increase healthcare resilience

Capriulo,

Pizzolla,

Briganti

2024

Artificial Intelligence, Big Data, Blockchain and 5G for the Digital Transformation of the Healthcare Industry

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Clinical Potential of Patient-Reported Outcome Measures in Occupational Therapy

Cited by 4 publications

References 23 publications

Implementing an Electronic Patient-Reported Outcome and Decision Support Tool in Early Intervention

Implementing an Electronic Patient-Reported Outcome and Decision Support Tool in Early Intervention

Development of an addiction recovery patient-reported outcome measure: Response to Addiction Recovery (R2AR)

On the use of patient-reported measures in digital medicine to increase healthcare resilience

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