2017
DOI: 10.1186/s40900-017-0079-6
|View full text |Cite
|
Sign up to set email alerts
|

Co-creation of a digital tool for the empowerment of parents of children with physical disabilities

Abstract: Plain English summaryParents of children with physical disabilities do a lot to support their child in daily life. In doing this they are faced with many challenges. These parents have a wide range of unmet needs, especially for information, on different topics. It is sometimes hard for them to get the right information at the right moment, and to ask the right questions to physicians and other healthcare professionals. In order to develop a digital tool to help parents formulate questions and find information… Show more

Help me understand this report

Search citation statements

Order By: Relevance

Paper Sections

Select...
2
1
1
1

Citation Types

0
18
0

Year Published

2018
2018
2023
2023

Publication Types

Select...
6
2
1

Relationship

0
9

Authors

Journals

citations
Cited by 23 publications
(18 citation statements)
references
References 61 publications
0
18
0
Order By: Relevance
“…Different expectations about roles and responsibilities can disrupt even the most promising PPI initiative [17]. Also from our own experiences in research, in which we involved patients, relatives, young persons with disabilities, and parents [18,19], we felt PPI could particularly benefit from tools facilitating discussion and clarity about roles and expectations. In general, the value of conversational approaches between researchers and patients is underscored in more and more publications [20][21][22].…”
Section: Introductionmentioning
confidence: 99%
“…Different expectations about roles and responsibilities can disrupt even the most promising PPI initiative [17]. Also from our own experiences in research, in which we involved patients, relatives, young persons with disabilities, and parents [18,19], we felt PPI could particularly benefit from tools facilitating discussion and clarity about roles and expectations. In general, the value of conversational approaches between researchers and patients is underscored in more and more publications [20][21][22].…”
Section: Introductionmentioning
confidence: 99%
“…In the healthcare literature there are various terms used for different types of co-design activity including experience based co-design (EBCD) which focuses on the use of stories and storytelling by patients to gain a deep appreciative understanding of the strengths and weaknesses of a present service [ 6 ], co-production which involves producing a product or service together and comes after the co-design phase [ 7 ] and co-creation which usually refers to both co-design and co-production taken together [ 8 ].…”
Section: Introductionmentioning
confidence: 99%
“…Inclusion started in April 2016 and was completed in June 2017. In all phases of the project, there was close collaboration between researchers and parents (Alsem, van Meeteren, et al, 2017). The study protocol was evaluated by the Medical Ethics Committee of the University Medical Centre Utrecht, the Netherlands (Study ID: 15/585), and approved by all local ethical committees of the participating centres.…”
Section: Methodsmentioning
confidence: 99%
“…Parents can use the tool as a means to prepare for consultations with a rehabilitation professional but also in their daily lives as a source of information. The process of developing the tool has been described elsewhere (Alsem, van Meeteren, et al, 2017).…”
Section: Funding Informationmentioning
confidence: 99%