Cochlear implantation: An assessment of quality and readability of web-based information aimed at patients

Seymour, Nicky; Lakhani, Raj; Hartley, Benjamin E. J.; Cochrane, Lesley; Jephson, Christopher

doi:10.1179/1754762815y.0000000015

Cited by 24 publications

(27 citation statements)

References 5 publications

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“…This evaluation demonstrates that most consumer health information websites about anal cancer are of low quality and require readers to have high health literacy. This is consistent with previous evaluations of online patient information for a diverse range of other medical conditions [31–38]. Only the Cancer Research UK website met plain language best practices and was rated “good” quality [54].…”

Section: Discussionsupporting

confidence: 87%

Evaluation of the scope, quality, and health literacy demand of Internet-based anal cancer information

Charow

Snow

Fathima

et al. 2019

jmla

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Objectives: As there is a dearth of information about anal cancer available at cancer centres, patients often use the Internet to search for information. This is problematic, however, because the quality of information on the Internet is variable, and the health literacy demanded is higher than the average patrons’ capacity. The purposes of this study were to (1) determine the most common websites with anal cancer consumer health information, (2) identify the supportive care needs that each website addresses, and (3) evaluate the websites’ quality and health literacy demand.Methods: Medical Subject Headings (MeSH) entry terms for “Anus Neoplasms” were used in Google Canada to identify websites. Seven domains of supportive care needs were defined using Fitch’s Supportive Care Framework for Cancer Care. Website quality was evaluated using the DISCERN tool. Health literacy demand was assessed using readability calculators, where best practice dictates a grade 6 or lower, and the Patient Education Material Assessment Tool (PEMAT) that computes a percentage score in 2 domains, understandability and actionability, with 80% being an acceptable score.Results: Eighteen unique websites were evaluated. One website met health literacy best practices and had a “good” quality rating. Most websites addressed only 1 supportive care domain (61%), were of “fair” quality (67%), had readability scores higher than grade 6 (89%), and had PEMAT scores ranging from 41%–92% for understandability and 0–70% for actionability.Conclusion: The information gaps on anal cancer websites warrant a need for more health literate anal cancer health information on the Internet.

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Section: Discussionsupporting

confidence: 87%

Evaluation of the scope, quality, and health literacy demand of Internet-based anal cancer information

Charow

Snow

Fathima

et al. 2019

jmla

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“…Forty-two percent (36/85) of PEMs had total DISCERN scores corresponding to "poor" or "very poor" quality. Seymour et al demonstrated similar results when evaluating the quality of web-based patient information on cochlear implantation which revealed that 63% of websites scored as "poor" or "very poor" quality based on total DISCERN scores [19]. In addition to overall scores, looking at the subdomains and individual questions within the DISCERN tool, can highlight more specific deficiencies in the PEMs.…”

Section: Discussionmentioning

confidence: 82%

“…However, studies have shown that online PEMs are often written at a much higher literacy level [13][14][15][16]. Within the realm of otolaryngology-head and neck surgery (OHNS), several studies have revealed that online information on OHNS procedures and conditions are written above the recommended grade level and are lacking in terms of quality [17][18][19][20][21][22][23]. Since septoplasty is a common OHNS procedure, it is important that clinicians evaluate the information patients are accessing online about their surgery.…”

Section: Introductionmentioning

confidence: 99%

Readability and quality assessment of internet-based patient education materials related to nasal septoplasty

Grose

Holmes

Aravinthan

et al. 2021

Journal of Otolaryngology - Head & Neck Surgery

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Background Given that nasal septoplasty is a common procedure in otolaryngology – head and neck surgery, the objective of this study was to evaluate the quality and readability of online patient education materials on septoplasty. Methods A Google search was performed using eight different search terms related to septoplasty. Six different tools were used to assess the readability of included patient education materials. These included the Flesch-Kincaid Grade Level, Flesch Reading Ease, Gunning-Fog Index, Simple Measure of Gobbledygook Index, Coleman-Liau Index, and Automated Readability Index. The DISCERN tool was used to assess quality and reliability. Results Eighty-five online patient education materials were included. The average Flesch-Reading Ease score for all patient education materials was 54.9 ± 11.5, indicating they were fairly difficult to read. The average reading grade level was 10.5 ± 2.0, which is higher than the recommended reading level for patient education materials. The mean DISCERN score was 42.9 ± 10.5 and 42% (36/85) of articles had DISCERN scores less than 39, corresponding to poor or very poor quality. Conclusion The majority of online patient education materials on septoplasty are written above the recommended reading levels and have significant deficiencies in terms of their quality and reliability. Clinicians and patients should be aware of the shortcomings of these resources and consider the impact they may have on patients’ decision making.

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“…For the discipline of otorhinolaryngology, 21 investigations on diseases and 18 on procedures simulated the search queries for online health information performed by laypeople and analyzed the quality of the resulting output. The topics of oncology [103][104][105][106][107][108], audiology/neurootology/otology [109][110][111][112][113][114][115][116][117], and plastic surgery [118][119][120][121][122] were most frequently represented. So far, available studies are focused predominantly on content in English.…”

Section: Investigationsmentioning

confidence: 99%

“…In all trials performed up to now, Google was used as search engine. Additionally, Bing [103,109,113,114,118,[124][125][126][127], Yahoo [103-105, 109, 113, 114, 118, 124-130], HONsearch [104], Med-linePlus [105], MSN, AOL, and Ask Jeeves [130] as well as omnimedicalsearch.com, pogofrog.com, searchmedica.co.uk, and imedisearch.com [125] were applied. The readability of the retrieved material according to the Flesch Reading Ease Score amounted to 29.7-61.5 [103, 104, 106-109, 112, 114, 115, 118, 122, 126, 130-139].…”

Section: Investigationsmentioning

confidence: 99%

Die Rolle des Internets für Gesundheitsinformationen in der Hals-Nasen-Ohrenheilkunde

Ihler

Canis

2019

Laryngo-Rhino-Otol

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ZusaMMenFassung Durch die Verbreitung des Internets kam es in den letzten Jahrzehnten zu einer Revolution des menschlichen Informations-und Kommunikationsverhaltens. Informationen sind durch das Internet leicht zugänglich und partizipative Anwendungen ermöglichen neue Formen der Interaktion. Das Gesundheitswesen ist unmittelbar davon betroffen, weil es wesentlich durch Information und Kommunikation geprägt ist. Der vorliegende Beitrag soll diese Entwicklung und ihre Auswirkungen in der Hals-Nasen-Ohrenheilkunde darstellen. Die Nutzung des Internets für die Suche nach Gesundheitsinformationen nimmt seit Jahren kontinuierlich zu und hat inzwischen eine erhebliche Bedeutung erreicht. Im klinischen Kontext haben derzeit noch andere Informationsquellen einen höheren Stellenwert. Für eine von Laien durchgeführte gesundheitsbezogene Recherche wird hauptsächlich die Suchmaschine Google verwendet. Obwohl die Beurteilung der Vertrauenswürdigkeit der dort dargebotenen Informationen schwer ist, haben sich alternative Angebote, die auf valide Gesundheitsinformationen spezialisiert sind, bisher nicht durchgesetzt. Anekdotische oder falsche Informationen treten regelmäßig auf. Zahlreiche Studien haben die Qualität von Gesundheitsinformationen auf Internetseiten untersucht. Das methodische Spektrum dafür reicht von formelgebundenen Lesbarkeitsanalysen über strukturierte Beurteilungsinstrumente bis hin zu digitalen Zertifikaten. Im Ergebnis zeigt sich, dass Gesundheitsinformationen auf Internetseiten für die Allgemeinbevölkerung häufig schwer zu verstehen sind. Auch nahezu alle sozialen Medien enthalten Gesundheitsinformationen und ihre Bedeutung steigt. Dennoch gibt es zu Eigenschaften und Effekt von Gesundheitsinformatio nen in sozialen Medien bisher kaum wissenschaftliche Erkenntnisse. Die Verfügbarkeit von Gesundheitsinformationen im Internet macht ein neues Verständnis von Gesundheitskompetenz (health literacy) erforderlich. Das Konzept der digitalen Gesundheitskompetenz (eHealth literacy) beinhaltet u. a. Lesefähigkeit, Medienkompetenz, EDV-Kenntnisse und naturwissenschaftliche Grundbildung. Die Verwirklichung dieser Fähigkeiten wird durch individuelle und soziale Faktoren wie Bildung, sozioökonomischer Status und Alter beeinflusst. Bisherige Untersuchungen zeigten bei einem großen Teil der Patienten eine niedrige Gesundheitskompetenz. Die Verbreitung des Internets verändert auch das Arzt-Patienten-Verhältnis. Gut informierte Patienten fordern eine stärkere Beteiligung an medizinischen Entscheidungen ein. Ärzte haben eine besondere Verantwortung bei der Beratung medizinischer Laien durch Gewichtung und Verifizierung von Informationen. Ärzte sollten durch aktive Beteiligung dazu beitragen, dass die Digitalisierung der Medizin insgesamt den Patienten zugutekommt. Medizinische Fachgesellschaften sind in besonderer Weise dazu aufgerufen, diesen Prozess mit zu gestalten. abstraCtThe wide distribution and availability of the internet during the last decades revolutionized the human information and communication behavior. Via inte...

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Cochlear implantation: An assessment of quality and readability of web-based information aimed at patients

Abstract: Internet-based information regarding cochlear implantation is of varied quality and is written above the expected reading level of an average person.

Cited by 24 publications

References 5 publications

Evaluation of the scope, quality, and health literacy demand of Internet-based anal cancer information

Evaluation of the scope, quality, and health literacy demand of Internet-based anal cancer information

Readability and quality assessment of internet-based patient education materials related to nasal septoplasty

Die Rolle des Internets für Gesundheitsinformationen in der Hals-Nasen-Ohrenheilkunde

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