Codebook Development for Team-Based Qualitative Analysis

MacQueen, Kathleen M.; McLellan, Eleanor; Kay, Kelly; Milstein, Bobby

doi:10.1177/1525822x980100020301

Cited by 1,206 publications

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“…Four members of the research team independently reviewed the data to identify themes and develop a codebook. 21 Codes, subcodes, and definitions, including inclusion and exclusion criteria, were reviewed and revised by the research team to identify overlapping or missing codes. Quotations that illustrated the main themes were identified during the coding process.…”

Section: Resultsmentioning

confidence: 99%

A focus group study of consumer attitudes toward genetic testing and newborn screening for deafness

Burton

Withrow

Arnos

et al. 2006

Genetics in Medicine

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Purpose: Progress in identifying genes for deafness together with implementation of universal audiologic screening of newborns has provided the opportunity for more widespread use of molecular tests to detect genetic forms of hearing loss. Efforts to assess consumer attitudes toward these advances have lagged behind. Methods:Consumer focus groups were held to explore attitudes toward genetic advances and technologies for hearing loss, views about newborn hearing screening, and reactions to the idea of adding molecular screening for hearing loss at birth. Focus group discussions were recorded, transcribed and analyzed. Results: Five focus groups with 44 participants including hearing parents of deaf children, deaf parents and young deaf adults were held. Focus group participants supported the use of genetic tests to identify the etiology of hearing loss but were concerned that genetic information might influence reproductive decisions. Molecular newborn screening was advocated by some; however, others expressed concern about its effectiveness. Conclusion: Documenting the attitudes of parents and other consumers toward genetic technologies establishes the framework for discussions on the appropriateness of molecular newborn screening for hearing loss and informs specialists about potential areas of public education necessary prior to the implementation of such screening. Genet Med 2006:8(12):779-783. Key Words: hearing loss, deafness, molecular testing, genetic testing, focus groups, consumer attitudes, newborn screeningHearing loss affects approximately 3-4:1,000 newborns and by the end of the first decade of life, an additional 5-9 cases of permanent childhood hearing loss are identified for every 10 cases present at birth, making it one of the most common birth defects in the United States. 1 Genetic factors account for an estimated 60% of profound hearing loss present at birth or in early childhood. 2,3 To date, more than 100 genes involved in nonsyndromic and syndromic deafness have been mapped and over 40 genes have been cloned. 4 More than half of nonsyndromic hearing loss in children can be attributed to mutations in a single gene, GJB2 (Gap Junction Beta 2), which codes for the connexin 26 protein. 5 In 1999, U.S. federal legislation mandated the establishment of early hearing detection and intervention (EHDI) programs in every state. The goals of the state-based EHDI programs are to screen all newborns for hearing before one month of age using audiologic techniques, diagnose the hearing loss no later than three months of age and coordinate appropriate intervention services no later than six months of age. 6,7 Discussions about how to best incorporate genetic services into the current EHDI program framework have been initiated. 8 -11 While auditory hearing screening is an effective and relatively inexpensive way to detect hearing loss in the newborn period, a major limitation is that all forms of prelingual hearing loss are not expressed at birth and could be missed by EHDI programs based solely on audio...

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Section: Resultsmentioning

confidence: 99%

A focus group study of consumer attitudes toward genetic testing and newborn screening for deafness

Burton

Withrow

Arnos

et al. 2006

Genetics in Medicine

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“…We employed the qualitative data analysis method endorsed by the Centers for Disease Control and Prevention to code the responses [15]. We identified categories a priori from studies describing subjective explanations for obesity [7,[10][11][12][13][14], as well as from our clinical experience.…”

Section: Research Methods and Proceduresmentioning

confidence: 99%

Explanations for Unsuccessful Weight Loss Among Bariatric Surgery Candidates

Hwang¹,

Childs²,

Goodrick

et al. 2008

OBES SURG

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“…The development of the codebook was guided by recommendations from MacQueen, McLellan, Kay, and Milstein (1998), in which codes were operationalized through coding definitions and coding decision rules in an iterative process involving multiple coding manual revisions. This process involved the systematic review of codes by two independent coders to determine the utility of the codes and consistency in their application.…”

Section: Analytic Procedures Qualitative Methodsmentioning

confidence: 99%

“…Data were analyzed using inductive content analysis in which themes were uncovered through reading all transcripts, making notes on initial impressions, and letting the codes emerge directly from the text (Hsieh & Shannon, 2005;Ryan & Bernard, 2000). Recurring team meetings were held for in-depth discussion of the various topics that emerged and the negotiation of how to best translate these topics into definable and measurable themes, or codes, as well as the coding structure as it evolved throughout the analysis of transcripts.The development of the codebook was guided by recommendations from MacQueen, McLellan, Kay, and Milstein (1998), in which codes were operationalized through coding definitions and coding decision rules in an iterative process involving multiple coding manual revisions. This process involved the systematic review of codes by two independent coders to determine the utility of the codes and consistency in their application.…”

mentioning

confidence: 99%

Teen Pregnancy Prevention Program Recommendations from Urban and Reservation Northern Plains American Indian Community Members

McMahon

Hanson

Griese

et al. 2015

American Journal of Sexuality Education

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Despite declines over the past few decades, the United States has one of the highest rates of teen pregnancy compared to other industrialized nations. American Indian youth have experienced higher rates of teen pregnancy compared to the overall population for decades. Although it's known that community and cultural adaptation enhance program effectiveness, few teen pregnancy prevention programs have published on recommendations for adapting these programs to address the specific needs of Northern Plains American Indian youth. We employed a mixed-methods analysis of 24 focus groups and 20 interviews with a combined total of 185 urban and reservation-based American Indian youth and elders, local health care providers, and local school personnel to detail recommendations for the cultural adaptation, content, and implementation of a teen pregnancy prevention program specific to this population.Gender differences and urban /reservation site differences in the types of recommendations offered and the potential reasons for these differences are discussed. This is an Open Access article. Non-commercial re-use, distribution, and reproduction in any medium, provided the original work is properly attributed, cited, and is not altered, transformed, or built upon in any way, is permitted. The moral rights of the named author(s) have been asserted. KEYWORDS American Indian, teen pregnancy prevention, program recommendations 218 Teen Pregnancy Prevention Program Recommendations 219 INTRODUCTIONAlthough adolescents of all races and ethnicities engage in behaviors such as unprotected sex and substance use that increase their risk for sexually transmitted infections (STIs) and teen pregnancies (Eaton et al., 2012), American Indian/Alaska Native (AI/AN) youth experience disproportionately higher rates of teen pregnancy compared with the overall population (de Ravello, Jones, Tulloch, Taylor, & Doshi, 2014). Furthermore, while the birth rate for U.S. teens aged 15-19 has dropped in 18 of the past 20 years, changes in the annual birth rates for AI/AN teens have been less consistent over the past two decades and have remained notably higher than those of non-Hispanic Whites and Asian/Pacific Islanders (Solomon-Fears, 2013). For example, in 2012, the birth rates for AI/AN teens was 34.9 per 1,000 live births while the national rate reached a historic low of 29.4 and the rate for non-Hispanic White teens was lower yet at 20.5 (Martin, Hamilton, Osterman, Curtin, & Mathew, 2013). AMERICAN INDIAN/ALASKA NATIVE SEXUAL RISK BEHAVIORSPrevious findings regarding adolescent sexual behavior also reveal that a greater proportion of urban AI/AN youth engage in sex at younger ages and are less often using any method of contraception compared to the overall population (de Ravello et al., 2014). Specifically, in a study examining the reproductive health and behaviors of urban AI/AN girls through data gathered from the 2002 National Survey of Family Growth (Rutman, Taualii, Ned, & Tetrick, 2012), findings revealed that approximately 33% of urban AI/...

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Codebook Development for Team-Based Qualitative Analysis

Cited by 1,206 publications

References 2 publications

A focus group study of consumer attitudes toward genetic testing and newborn screening for deafness

A focus group study of consumer attitudes toward genetic testing and newborn screening for deafness

Explanations for Unsuccessful Weight Loss Among Bariatric Surgery Candidates

Teen Pregnancy Prevention Program Recommendations from Urban and Reservation Northern Plains American Indian Community Members

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