“…Commonly, the term patient and public involvement (PPI) [ 18 – 20 , 36 , 37 , 44 , 45 , 47 – 49 , 54 – 58 , 60 , 64 – 67 ] was used, alongside terms such as involvement [ 38 , 53 , 61 ], user involvement [ 50 , 52 ], advisory [ 40 ], and engagement [ 39 ]. Where PPIE was integral to the research methodology, participatory methodology terms were frequently used included participatory design [ 13 , 14 , 43 , 46 , 51 , 59 ], community-based participatory research (CBPR) [ 41 ], peer research [ 35 ], co-research [ 42 , 63 ], co-design [ 21 ], and co-production [ 62 ]. One study described adopting a child rights based approach (CRBA) [ 22 ].…”