Coeliac disease: the association between quality of life and social support network participation

Lee, A. R.; Wolf, Randi L.; Contento, Isobel R.; Verdeli, Helen; Green, P. H. R.

doi:10.1111/jhn.12319

Cited by 34 publications

(35 citation statements)

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“…Studies based on the same instrument but used in other sociocultural contexts are rare, mostly because the original CD-QOL questionnaire was only validated in 2010. One study conducted on celiac patients in an area of New York (USA) which used the CD-QOL questionnaire found quality of life levels higher than those documented in our study (27), but other studies based on more generic instruments (e. g., the EuroQOL) (28) found lower HRQL levels in celiac patients than those observed in the New York series (29,30). Our results suggest that the HRQL found in the general population of adult celiac subjects may be lower than that observed in patients recruited in a hospital setting, giving rise to the hypothesis that periodic medical check-ups improve the quality in life for these patients by encouraging a stricter compliance with a gluten-free diet.…”

Section: Discussioncontrasting

confidence: 87%

Health-related quality of life and determinant factors in celiac disease. A population-based analysis of adult patients in Spain

et al. 2016

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Background: Celiac disease (CD) has a negative impact on the health-related quality of life (HRQL) of affected patients. Although HRQL and its determinants have been examined in Spanish CD patients specifically recruited in hospital settings, these aspects of CD have not been assessed among the general Spanish population.Methods: An observational, cross-sectional study of a nonrandomized, representative sample of adult celiac patients throughout all of Spain's Autonomous Regions. Subjects were recruited through celiac patient associations. A Spanish version of the selfadministered Celiac Disease-Quality of Life (CD-QOL) questionnaire was used. Determinant factors of HRQL were assessed with the aid of multivariate analysis to control for confounding factors.Results: We analyzed the responses provided by 1,230 patients, 1,092 (89.2%) of whom were women. The overall mean value for the CD-QOL index was 56.3 ± 18.27 points. The dimension that obtained the most points was dysphoria, with 81.3 ± 19.56 points, followed by limitations with 52.3 ± 23.43 points; health problems, with 51.6 ± 26.08 points, and inadequate treatment, with 36.1 ± 21.18 points. Patient age and sex, along with time to diagnosis, and length of time on a gluten-free diet were all independent determinant factors of certain dimensions of HRQL: women aged 31 to 40 expressed poorer HRQL while time to diagnosis and length of time on a gluten-free diet were determinant factors for better HRQL scores.Conclusions: The HRQL level of adult Spanish celiac subjects is moderate, improving with the length of time patients remain on a gluten-free diet.

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Section: Discussioncontrasting

confidence: 87%

Health-related quality of life and determinant factors in celiac disease. A population-based analysis of adult patients in Spain

et al. 2016

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“…Este hallazgo es notable considerando que estos países son diferentes en muchos aspectos como el nivel socioeconómico y cultural 15 . No obstante, en los Estados Unidos, la media detectada con el mismo cuestionario fue más elevada: 68,9 22 . Estableciendo puntos de corte propuestos por Casellas et al 17 se halló que la CVRS predominante fue la regular (49%), similar a los primeros autores citados 15,18,19 .…”

Section: Discussionunclassified

“…El mayor puntaje en CD-QOL en el sexo femenino coincide con la mayoría de los reportes 6,10 aunque otros muestran lo contrario o que no existe diferencia en el género 15,22 . Estas diferencias podrían deberse a factores locales socioculturales que deben investigarse a fondo.…”

Section: Discussionunclassified

“…Los celiacos que asisten en forma regular y ocasional a FUPACEL tuvieron mejor puntaje en el CD-QOL, similar a lo reportado por Lee et al 22 . La inasistencia detectada (77%) podría deberse a múltiples factores: los nuevos métodos de comunicación masiva, la distancia de los asociados al lugar de reunión, etc.…”

Section: Discussionunclassified

“…La inasistencia detectada (77%) podría deberse a múltiples factores: los nuevos métodos de comunicación masiva, la distancia de los asociados al lugar de reunión, etc. Este tema fue investigado a fondo en Estados Unidos, detectándose que sólo 58% concurren regularmente a estos grupos de autoayuda y que aquellos que mantienen contacto sólo por internet tienen peor CVRS 22 . Una aplicación práctica de esta conclusión es que todo celiaco recién detectado debe remitirse a los grupos de autoayuda y nutricionistas especializados en el tema de la DSG 6 .…”

Section: Discussionunclassified

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Calidad de vida en adultos del Paraguay con enfermedad celiaca

Delor¹,

Medina

2018

Duazary

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RESUMENLa enfermedad celiaca altera el estado emocional, las relaciones sociales, la autonomía y la percepción de la salud, afectando la calidad de vida relacionada a la salud. Los objetivos de esta investigación fueron determinar la calidad de vida relacionada a la salud en adolescentes y adultos con enfermedad celiaca e investigar las condiciones que la afectan. Se realizó un estudio observacional, prospectivo en adolescentes y adultos de Paraguay portadores de enfermedad celiaca con al menos seis meses en dieta sin gluten. Se aplicó el cuestionario CD-QOL (Celiac Disease Quality of Life Measure). Fueron incluidos 114 sujetos, con edad media 30±10 años, siendo 58% del sexo femenino. La calidad de vida fue buena en 25%, regular en 49% y mala en 26%. Las condiciones asociadas significativamente a mejor calidad de vida fueron el sexo femenino, el grupo etario >30 años y que efectúan actividades fuera del hogar. Se concluye que la calidad de vida de los celiacos adolescentes y adultos es regular en 49% de los encuestados.Palabras clave: Enfermedad celiaca; Calidad de vida; Dieta sin gluten. ABSTRACTCeliac disease alters emotional state, social relations, autonomy and health perception, affecting the health related quality of life. The objectives of this research were to determine the health related quality of life in adolescents and adults with celiac disease and to investigate the factors that affect it. We included 114 subjects. The mean age was 30 ± 10 years and 58% of subjects were female. The quality of life was good in 25% of the cases, regular in 49% and bad in 26%. The factors significantly associated with a better quality of life were the female sex, the age group >30 years and carrying out activities outside home. In conclusion, the quality of life of celiac adolescents and adults is regular in 49% of respondents.

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