Communication and Social Interaction Experiences of Youths With Congenital Motor Speech Disorders

Connaghan, Kathryn; Baylor, Carolyn; Romanczyk, Megan; Rickwood, Jessica; Bedell, Gary

doi:10.1044/2022_ajslp-22-00034

Cited by 6 publications

(1 citation statement)

References 96 publications

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“…Patients’ perception of their deficits is also likely to evolve over time as social expectations change with age and across environments. In other populations of children with congenital motor speech disorders (e.g., cerebral palsy), reduced speech intelligibility has been shown to have negative impacts on participation and quality of life throughout childhood, with increasing social impacts reported during adolescence [ 44 ]. Research understanding patients’ priorities for maximizing their participation in life activities is critical as the field moves forward and determines how to approach rehabilitation.…”

Section: Discussionmentioning

confidence: 99%

Development of an International SMA Bulbar Assessment for Inter-professional Administration

Young

McGrattan

Johnson

et al. 2023

Journal of Neuromuscular Diseases

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Background: Progressive weakness can affect bulbar muscles in individuals with moderate to severe forms of spinal muscular atrophy (SMA). The paucity of standardized, valid bulbar assessments capturing clinically significant deficits in SMA impedes the ability to monitor function, facilitate intervention, or detect treatment response. Objective: To fill this void, an international multidisciplinary team gathered to develop an agreed upon consensus-derived assessment of bulbar function in SMA for inter-professional administration to enhance our ability to monitor disease progression, support clinical management, and evaluate treatment effects. Methods: Fifty-six international clinicians experienced in SMA were invited and engaged using the Delphi method over multiple rounds of web-based surveys to establish consensus. Results: Serial virtual meetings occurred with 42 clinicians (21 speech and language therapists, 11 physical therapists, 5 neurologists, 4 occupational therapists, and 1 dentist). Seventy-two validated assessments of bulbar function were identified for potential relevance to individuals with SMA (32 accessible objective, 11 inaccessible objective, 29 patient-reported outcomes). Delphi survey rounds (n = 11, 15, 15) achieved consensus on individual items with relevance and wording discussed. Key aspects of bulbar function identified included: oral intake status, oral facial structure and motor strength, swallowing physiology, voice & speech, and fatigability. Conclusions: Multidisciplinary clinicians with expertise in bulbar function and SMA used Delphi methodology to reach consensus on assessments/items considered relevant for SMA across all age groups. Future steps include piloting the new scale moving towards validation/reliability. This work supports the advancement of assessing bulbar function in children and adults with SMA by a variety of professionals.

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Section: Discussionmentioning

confidence: 99%

Development of an International SMA Bulbar Assessment for Inter-professional Administration

Young

McGrattan

Johnson

et al. 2023

Journal of Neuromuscular Diseases

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Lived experiences of children who stutter in their own voices

Kerrigan,

Brundage

2024

Journal of Communication Disorders

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Sentence Length Effects on Intelligibility in Two Groups of Older Children With Neurodevelopmental Disorders

Darling-White,

Polkowitz

2023

Am J Speech Lang Pathol

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Purpose: The purpose of this study was to examine the impact of sentence length on intelligibility in two groups of older children with neurodevelopmental disabilities. Method: Nine children diagnosed with cerebral palsy (CP) and eight children diagnosed with Down syndrome (DS), between the ages of 8 and 17 years, repeated sentences varying in length from two to seven words. Three hundred forty adult listeners (20 listeners per child) provided orthographic transcriptions of children's speech, which were used to calculate intelligibility scores. Results: There was a significant main effect of sentence length on intelligibility for children with CP. Intelligibility significantly increased from two- and three-word sentences to four-, five-, and six-word sentences, then significantly decreased from four-, five-, and six-word sentences to seven-word sentences. There was a main effect of sentence length on intelligibility for children with DS. Intelligibility significantly increased from two-word sentences to four-, five-, and six-word sentences. Conclusions: The primary findings of this study include the following: (a) Unlike in typically developing children, sentence length continues to influence intelligibility well into adolescence for children with neurodevelopmental disorders, and (b) sentence length may influence intelligibility differently in children with CP than in children with DS; however, other factors besides the type of neurodevelopmental disorder (e.g., severity of speech motor involvement and/or cognitive–linguistic impairment) could play a role in the relationship between sentence length and intelligibility and must be investigated in future studies.

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Communication and Social Interaction Experiences of Youths With Congenital Motor Speech Disorders

Cited by 6 publications

References 96 publications

Development of an International SMA Bulbar Assessment for Inter-professional Administration

Development of an International SMA Bulbar Assessment for Inter-professional Administration

Lived experiences of children who stutter in their own voices

Sentence Length Effects on Intelligibility in Two Groups of Older Children With Neurodevelopmental Disorders

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