Communication on Sexuality Between Parents and Adolescents with Autism Spectrum Disorder: A Systematic Review

André, Tatiane Geralda; Váldez-Montero, Carolina; Márquez-Vega, María Aracely; Ahumada-Cortez, Jesica Guadalupe; Gámez-Medina, Mario Enrique

doi:10.1007/s11195-020-09628-1

Cited by 10 publications

(8 citation statements)

References 19 publications

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“…These findings are also consistent with those of similar studies which demonstrated this type of parent education as an appropriate resource for parents of preadolescents (André et al, 2020; Ballan & Freyer, 2017; Mackin et al, 2016; Nichols & Blakeley-Smith, 2009).…”

Section: Discussionsupporting

confidence: 92%

“…They reported that program content, materials, and peer connection were appropriate and that it was what they needed to support their children. Since previous research suggested the need for these programs for Latino caregivers (Campos Guzmán et al, 2022), these results add to the literature on training program with These findings are also consistent with those of similar studies which demonstrated this type of parent education as an appropriate resource for parents of preadolescents (André et al, 2020;Ballan & Freyer, 2017;Mackin et al, 2016;Nichols & Blakeley-Smith, 2009).…”

Section: Discussionsupporting

confidence: 89%

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Brief report: Evaluation of an adapted youth version of Parents Taking Action for parents of pre/adolescents with autism spectrum disorder in Colombia

Torres

Magaña

Balcázar

2023

Autism

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The aim of this study was to evaluate the efficacy of the youth version of the program Parents Taking Action in Bogota, Colombia, using a quasi-experimental design. We hypothesized that parents in the treatment groups would improve in levels of knowledge, empowerment, self-efficacy, and use of strategies related to topics of adolescence and sexuality compared to the control group. We recruited 25 Colombian parents of pre/adolescent youth with autism spectrum disorder between the ages of 10 and 17 in Bogota. The intervention included four weekly sessions in which the new content about sexuality and adolescence was delivered. Twelve parents were in the intervention group and 13 were in the control group. Intervention participants significantly improved in Knowledge ( t = 4.37 p < 0.001), Self-Efficacy ( t = 7.15, p < 0.001), Use of Strategies ( t = 4.29, p < 0.001), and Family Empowerment ( t = 3.82, p < 0.005) between baseline and follow-up. The control group did not improve on any of the outcome measures, and the mean differences between baseline and follow-up scores were significant between intervention and control groups. The program has potential for high impact as information is scarce and parents do not have resources related to pre/adolescence. The program shows promise as an efficacious tool for community organizations and health providers to support families. Lay abstract We evaluated the efficacy of the youth version of the program Parents Taking Action in Bogota, Colombia. This program aims to provide information, resources, and strategies about topics of puberty, sexuality, and adolescence for parents of preadolescents with autism spectrum disorder. We examined whether parents in the treatment groups would improve in levels of knowledge, empowerment, self-efficacy, and use of strategies compared to the control group. We recruited two groups of Colombian parents of pre/adolescent with autism spectrum disorder between the ages of 10 and 17 in the city of Bogota, Colombia, through a community-based organization. One of the groups received the intervention and the other served as a control group. Parents in the control group received the intervention after the 4-month follow-up. The intervention included four 3-h weekly sessions in which the curriculum with nine topic areas was delivered providing parents with a space to practice strategies, learn from others, and set goals. Parents in the intervention group reported significantly greater knowledge, self-efficacy, use of strategies, and empowerment compared to the control/waitlist group. Parents were also highly satisfied with the content, materials, and peer connections that the program offered. The program has potential for high impact as information is scarce and parents do not have resources related to the complicated developmental stages of pre/adolescence. The program shows promise as an efficacious tool for community organizations and health providers to provide extra support to families of youth with autism spectrum disorder.

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Section: Discussionsupporting

confidence: 92%

Section: Discussionsupporting

confidence: 89%

Brief report: Evaluation of an adapted youth version of Parents Taking Action for parents of pre/adolescents with autism spectrum disorder in Colombia

Torres

Magaña

Balcázar

2023

Autism

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“…Diversos estudios resaltan la necesidad de diseñar intervenciones educativas dirigidas a profesionales de la salud, padres y adolescentes con TEA sobre salud sexual, similar a lo reportado en otros estudios que sugieren el empleo de signos y el sistema de comunicación pictográfica como forma de comunicación atendiendo además el nivel de funcionamiento intelectual de los adolescentes y la edad. 11,24 Un hallazgo fue el miedo que los padres mencionan respecto a la posibilidad de que sus hijos sean explotados o abusados sexualmente, no obstante, no saben de qué forma abordarlo, concordando con lo reportado por Corona y colaboradores, quienes también encontraron que el abuso sexual era una de las preocupaciones de los padres. 29 Lo expuesto anteriormente puede estar directamente relacionado con la baja autoe-ficacia de los padres para comunicarse sobre sexualidad, una vez que la autoeficacia es un factor predictor para la comunicación sobre sexualidad.…”

Section: Discussionunclassified

“…9,10 Aunque se ha descubierto que la comunicación entre padres e hijos predice la disminución de los comportamientos sexuales de riesgo, los estudios aún tienen que explorar las vivencias de los padres sobre la comunicación sexual entre sus hijos con TEA, especialmente en países en desarrollo, debido a tabúes relacionados con el tema y los aspectos culturales y la misma situación de discapacidad que presentan sus hijos. 6 Una revisión sistemática encontró que el 100% de los estudios sobre la comunicación sexual entre padres e hijos con TEA, fueron realizados en países de primer mundo, como Estados Unidos y Bélgica, 11 dejando clara la necesidad de abordar y profundizar el fenómeno en países en vías de desarrollo.…”

Section: Introductionunclassified

Percepción de los padres acerca de la comunicación sobre sexualidad de sus hijos con trastorno del espectro autista

et al. 2022

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Objetivo: Explorar las percepciones de los padres en relación con la comunicación sobre sexualidad hacia sus hijos que se encuentran dentro del espectro autista. Método: Estudio cualitativo descriptivo y exploratorio, que fue desarrollado en tres centros de atención a niños y adolescentes autistas en los estados de Baja California y Sinaloa, México. Participaron cuatro madres y un padre de niños/jóvenes con Trastorno del Espectro Autista y para la recogida de datos fueron utilizadas entrevistas semiestructuradas. Los datos fueron analizados por medio de la técnica de análisis de contenido. Resultados: Fueron identificados dos temas: (1) Barreras para la comunicación sobre sexualidad, con cuatros subtemas (Inadecuada identificación de temas de sexualidad, baja autoeficacia para la comunicación sobre sexualidad, falta de profesionales capacitados y falta de herramientas o materiales adecuados para la comunicación sobre sexualidad); (2) Miedos y preocupaciones por la falta de comunicación sobre sexualidad. Conclusiones: Los padres reconocen los aspectos importantes que influyen en el tipo y la forma en que se abordan los temas sexuales, reduciéndose a la higiene personal y la masturbación, dejando de lado aquellos que implican mayor sensibilidad como el abuso sexual. Asimismo, los padres solo tocan los temas necesarios, conforme a la etapa de desarrollo del hijo.

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“…Most parents of adolescents with ASD believe that sexuality begins when they reach adolescence, although it begins in early childhood (Chamidah and Jannah, 2017). Research has indicated parents tend to discuss topics related to sex within a very limited and restrictive framework, such as personal hygiene and the privacy of their own places only (Gkogkos et al, 2019;André et al, 2020;Holmes et al, 2021). Also, this matter is sometimes opposed by parents, and perhaps this imposition is justified by some of the negative beliefs and ideas that are held by society.…”

Section: Role Of Parentsmentioning

confidence: 99%

Challenges of sex education for adolescents with autism spectrum disorder from the Saudi family’s perspective

Shakuri,

Alzahrani

2023

Front. Educ.

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The purpose of this research was to better understand the challenges, as well as ways to overcome the aforementioned challenges, associated with sex and reproductive health education for parents of adolescents with autism spectrum disorder (ASD) from the perspective of parents. A qualitative multiple case study approach, including interviews and document analysis, was conducted to answer the research questions. The participants included 9 parents of adolescents with ASD, including (4) fathers and (5) mothers. Their children’s ages ranged from (13–19) years. Inductive coding was conducted to analyze the data collected. The findings suggested several challenges exist, including parents’ lack of knowledge regarding sex and reproductive health education and training on how to effectively teach their children. This lack of knowledge may contribute to unacceptable social demonstrations of sexuality by individuals with ASD, which creates another challenge for parents. The findings related to the second research question indicated families of individuals with ASD need more awareness and education, particularly on how to effectively educate their children on sexual matters. The importance of education regarding sexual matters for individuals with ASD within the school and community was also realized. The findings could help the Ministry of Education establish educational programs to ensure schools are equipped to educate individuals with ASD on sexual matters. The programs could also be beneficial if they provided training to parents on how to effectively provide sexual education to their adolescent children. The findings of this research could additionally provide insight to parents, general education teachers, and special education teachers on the importance of sex and reproductive health education for children with ASD.

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Communication on Sexuality Between Parents and Adolescents with Autism Spectrum Disorder: A Systematic Review

Cited by 10 publications

References 19 publications

Brief report: Evaluation of an adapted youth version of Parents Taking Action for parents of pre/adolescents with autism spectrum disorder in Colombia

Brief report: Evaluation of an adapted youth version of Parents Taking Action for parents of pre/adolescents with autism spectrum disorder in Colombia

Percepción de los padres acerca de la comunicación sobre sexualidad de sus hijos con trastorno del espectro autista

Challenges of sex education for adolescents with autism spectrum disorder from the Saudi family’s perspective

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