Community-Centered Family Health History: A Customized Approach to Increased Health Communication and Awareness

O’Leary, James; Edelson, Vaughn; Gardner, Nicora; Gepp, Alejandra; Kyler, Panelpha; Moore, Penelope; Petruccio, Claudia; Williams, Marc S.; Terry, Sharon F.; Bowen, Deborah J.

doi:10.1353/cpr.2011.0016

Cited by 18 publications

(7 citation statements)

References 25 publications

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“…A borderline difference was also noted for provider communication among noncommunicators at baseline. These findings support the results from prior studies examining the impact of family history interventions, which have also reported a positive impact on family communication [28] but not provider communication [21, 22]. …”

Section: Discussionsupporting

confidence: 89%

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Impact of family history assessment on communication with family members and health care providers: A report from the Family Healthware™ Impact Trial (FHITr)

Sen¹,

Plegue²,

Yoon³

et al. 2015

Preventive Medicine

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Objective This study examines the impact of Family Healthware™ on communication behaviors; specifically, communication with family members and health care providers about family health history. Methods A total of 3786 participants were enrolled in the Family Healthware™ Impact Trial (FHITr) in the United States from 2005-7. The trial employed a two-arm cluster-randomized design, with primary care practices serving as the unit of randomization. Using generalized estimating equations (GEE), analyses focused on communication behaviors at 6 month follow-up, adjusting for age, site and practice clustering. Results A significant interaction was observed between study arm and baseline communication status for the family communication outcomes (ps<.01), indicating that intervention had effects of different magnitude between those already communicating at baseline and those who were not. Among participants who were not communicating at baseline, intervention participants had higher odds of communicating with family members about family history risk (OR=1.24, p=0.042) and actively collecting family history information at follow-up (OR=2.67, p=0.026). Family Healthware™ did not have a significant effect on family communication among those already communicating at baseline, or on provider communication, regardless of baseline communication status. Greater communication was observed among those at increased familial risk for a greater number of diseases. Conclusion Family Healthware™ prompted more communication about family history with family members, among those who were not previously communicating. Efforts are needed to identify approaches to encourage greater sharing of family history information, particularly with health care providers.

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Section: Discussionsupporting

confidence: 89%

“…To date, few studies have examined whether interventions to increase family history awareness and documentation increase the extent to which this information is discussed within families or shared with health care providers [21, 22]. As such, the purpose of this study was twofold.…”

Section: Introductionmentioning

confidence: 99%

Impact of family history assessment on communication with family members and health care providers: A report from the Family Healthware™ Impact Trial (FHITr)

Sen¹,

Plegue²,

Yoon³

et al. 2015

Preventive Medicine

View full text Add to dashboard Cite

show abstract

“…Studies that examine the translational effect of talking about the family health history to actual practice of preventive behaviors including changing diet, increasing physical activity, and following recommended screening guidelines for personal risk level will be of utmost value to the existing literature. Thus, preventive interventions that target the whole family as a system, where family communication is encouraged, objective risk information is disseminated, communication skills are provided, and a risk-reducing action plan is established will be most successful (O’Leary et al, 2011; Williams, Mullan, & Todem, 2009). …”

Section: Discussionmentioning

confidence: 99%

Family Ties: The Role of Family Context in Family Health History Communication About Cancer

Rodríguez

Corona

Bodurtha

et al. 2016

Journal of Health Communication

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Family health history about cancer is an important prevention and health promotion tool. Yet, few studies have identified family context factors that promote such discussions. We explored relations among family context (cohesion, flexibility, and openness), self-efficacy, and cancer communication (gathering family history, sharing cancer risk information, and frequency) in a diverse group of women enrolled in a randomized control trial. Baseline survey data for 472 women were analyzed. Average age was 34 years, 59% identified as Black, 31% graduated high school, and 75% reported a family history of any cancer. Results showed that greater family cohesion and flexibility were related to higher communication frequency and sharing cancer information. Women who reported greater self-efficacy were more likely to have gathered family history, shared cancer risk information, and communicated more frequently with relatives. Openness was not associated with communication but was related to greater family cohesion and flexibility. Adjusting for demographic variables, self-efficacy and family cohesion significantly predicted communication frequency. Women with higher self-efficacy were also more likely to have gathered family health history about cancer and shared cancer risk information. Future research may benefit from considering family organization and self-efficacy when developing psychosocial theories that, in turn, inform cancer prevention interventions.

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“…Family health history used as a clinical tool can empower the public with a new understanding of health as it relates to their genetic heritage -including the connection between genetics, their family, the inheritance of health and disease, and the influence of environment. Even when theoretical knowledge of genomic science is low, family health history awareness effectively elevates the public’s genomic health literacy because it improves their decision-making skills leading to better personal and family health decisions in the context of everyday situations 30,31 .…”

Section: Discussionmentioning

confidence: 99%

What does it mean to be genomically literate?: National Human Genome Research Institute Meeting Report

Hurlé

Citrin

Jenkins

et al. 2013

Genetics in Medicine

110

125

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Genomic discoveries will increasingly advance the science of medicine. Limited genomic literacy may adversely impact the public’s understanding and use of the power of genetics and genomics in health care and public health. In November 2011, a meeting was held by the National Human Genome Research Institute to examine the challenge of achieving genomic literacy for the general public, from K-12 to adult education. The role of the media in disseminating scientific messages and in perpetuating, or reducing, misconceptions was also discussed. Workshop participants agreed that genomic literacy will only be achieved through active engagement between genomics experts and the varied constituencies that comprise the public. This report summarizes the background, content, and outcomes from this meeting, including recommendations for a research agenda to inform decisions about how to advance genomic literacy in our society.

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Community-Centered Family Health History: A Customized Approach to Increased Health Communication and Awareness

Abstract: These findings indicate that diverse communities are receptive to FHH intervention, and tailored health educational materials can lead to increased conversations and awareness about health issues across communities.

Cited by 18 publications

References 25 publications

Impact of family history assessment on communication with family members and health care providers: A report from the Family Healthware™ Impact Trial (FHITr)

Impact of family history assessment on communication with family members and health care providers: A report from the Family Healthware™ Impact Trial (FHITr)

Family Ties: The Role of Family Context in Family Health History Communication About Cancer

What does it mean to be genomically literate?: National Human Genome Research Institute Meeting Report

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