Community Game Day: Using an End-of-Life Conversation Game to Encourage Advance Care Planning

Scoy, Lauren Jodi Van; Reading, Jean M.; Hopkins, Margaret; Smith, Brandi; Dillon, Judy; Green, Michael J.; Levi, Benjamin H.

doi:10.1016/j.jpainsymman.2017.07.034

Cited by 29 publications

(81 citation statements)

References 43 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…Firstly, an open space for the patient to write a mission statement embodying the main message they would like others to know about them that may help caregivers and healthcare providers with their provision of care. Secondly, a page below for patients to respond to questions in an open-ended manner which have been identified as important for palliative care patients (e.g., what music would you want to listen to on your last day alive) [24][25][26][27][28]. Thirdly, a final section which will allow patients to group important values to them.…”

Section: Components Of Applicationmentioning

confidence: 99%

“…New approaches for conversations in palliative care and with advance care planning include the use of board games in community settings which use gamification to decrease stigma around conversations around death [24,25], and using patient-reported outcome measures (PROMs) as a communication tool [26,27]. However, the feasibility of implementing board games in a clinical setting is currently unknown [8,9].…”

Section: Introductionmentioning

confidence: 99%

“…However, the feasibility of implementing board games in a clinical setting is currently unknown [8,9]. Further, there is no current valid and reliable PROM found acceptable for use in palliative care [24][25][26][27][28].…”

Section: Introductionmentioning

confidence: 99%

See 2 more Smart Citations

Designing a Mission statement Mobile app for palliative care: an innovation project utilizing design-thinking methodology

Kamran

Cin

2020

BMC Palliat Care

View full text Add to dashboard Cite

Background Eliciting individual values and preferences of patients is essential to delivering high quality palliative care and ensuring patient-centered advance care planning. Despite advance care planning conserving healthcare costs by up to 36%, reducing psychological distress of patients and caregivers, and ensuring palliative care delivery in line with patient wishes, less than 33% of adults engage in it. We aimed to develop a mobile application intervention to address the challenges related to advance care planning and improve the delivery of palliative care. Methods Design-thinking methodology was used to develop a mobile application, in response to issues prominently identified in current palliative care literature. Results Issues surrounding communication of patient values from both the patient and provider side is identified as a main issue in palliative care. We designed a mobile application intervention prototype to address this. Conclusions Our “Mission Statement” mobile application will allow patients to create a mission statement identifying what they want their care team to know about them, as well as space to identify important values and preferences. Patients will be able to evolve their mission statement and values and preferences over the course of their palliative care journey through the application. Design-thinking methodology is an effective tool to drive healthcare innovation and bridge the gap between research findings and implementation.

show abstract

Section: Components Of Applicationmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

See 1 more Smart Citation

Designing a Mission statement Mobile app for palliative care: an innovation project utilizing design-thinking methodology

Kamran

Cin

2020

BMC Palliat Care

View full text Add to dashboard Cite

show abstract

“…al developed and validated a questionnaire grounded in Social Cognitive Theory and the Trans-theoretical Model of Behavior Change that has been utilized as an important outcome measure in several studies and interventional trials. [17][18][19][20][21][22] Although the psychometrics of that questionnaire, called the ACP Engagement Survey, have been well studied, it has not been adapted for use with…”

Section: Introductionmentioning

confidence: 99%

Adaptation and Preliminary Validation of the Advance Care Planning Engagement Survey for Surrogate Decision Makers

Scoy

Day²,

Howard

et al. 2019

Journal of Pain and Symptom Management

Self Cite

View full text Add to dashboard Cite

Context.-Although measures exist that assess patient engagement in the advance care planning (ACP) process, there are no validated tools to assess surrogate decision-makers' (SDM) role in ACP. Objectives.-To adapt and begin to validate a patient-oriented questionnaire for use with SDMs of patients with chronic illness Methods.-Questions from the 55-item patient-oriented ACP engagement survey were adapted for SDMs and assessed for face validity. The resultant 47-item questionnaire was administered to 65 SDMs of patient with chronic illness. Responses were assessed and items were flagged for removal based on item redundancy, nonresponses, and ceiling effects. A preliminary exploratory factor analysis was performed, internal consistency assessed, and domains constructed based on findings. Results.-The 47-item questionnaire was administered to 65 participants (mean age 51.8; 81% female; 96% Caucasian). 17 items were removed due to redundancy (r>0.80), 13 items lacking face validity were removed. In preliminary exploratory factor analysis of the resultant 17-item questionnaire, a 3-factor solution was deemed most statistically and conceptually sound. Items were organized into domains: 1) serving as a SDM (7-items); 2) contemplation (4-items); 3) Readiness (6-items). Internal consistency for each domain was high (Cronbach alpha 0.90-0.91).

show abstract

“…Completing advance care directives can relieve the "what-ifs" and help the family come to terms with an individual's death due to that individual's wishes being granted. It is becoming easier to break such tough barriers with family members due to games that help families discuss EOL wishes, such as the My Gift of Grace (Van Scoy et al, 2017).…”

mentioning

confidence: 99%

The Importance of End-of-Life Conversations

Mrowka

2018

J Psychosoc Nurs Ment Health Serv

View full text Add to dashboard Cite

Community Game Day: Using an End-of-Life Conversation Game to Encourage Advance Care Planning

Abstract: These findings suggest that using a conversation game during community outreach is a useful approach for engaging patients and caregivers in ACP. The convergence of quantitative and qualitative data strongly supports the continued investigation of the game in randomized controlled trials.

Cited by 29 publications

References 43 publications

Designing a Mission statement Mobile app for palliative care: an innovation project utilizing design-thinking methodology

Designing a Mission statement Mobile app for palliative care: an innovation project utilizing design-thinking methodology

Adaptation and Preliminary Validation of the Advance Care Planning Engagement Survey for Surrogate Decision Makers

The Importance of End-of-Life Conversations

Contact Info

Product

Resources

About