Community nurses’ assessment of the needs of Hong Kong family carers who are looking after stroke patients

Mackenzie, Ann; Holroyd, Eleanor; Lui, May H.L

doi:10.1016/s0020-7489(98)00008-x

Cited by 19 publications

(22 citation statements)

References 3 publications

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“…(1992) have pointed out that haemodialysis patients do experience unsatisfactory family interactions. In exploring the difficulties caused to families in looking after family members with long‐term health problems, Mackenzie et al . (1998) concluded that caregivers in Hong Kong needed more help from health workers.…”

Section: Discussionmentioning

confidence: 99%

Psychosocial correlates of fluid compliance among Chinese haemodialysis patients

Pang

Chang

2001

Journal of Advanced Nursing

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Section: Discussionmentioning

confidence: 99%

Psychosocial correlates of fluid compliance among Chinese haemodialysis patients

Pang

Chang

2001

Journal of Advanced Nursing

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“…27,28 Similarly, the difficulties that nurses face caring for patients with aphasia have been investigated and recommendations made to develop strategies to enhance communication. 29 -31 Existing methods of assessing patients' needs 32 and quality of life 33 were found to be problematic, with current practice not matching patients concerns. Preparation of patients for discharge was influenced by factors such as overprotection, paternalism, and the institution's care routines.…”

Section: Acute Carementioning

confidence: 99%

Qualitative Studies of Stroke

McKevitt

Redfern

Mold

et al. 2004

Stroke

214

204

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Background and Purpose-Qualitative studies are increasingly used to investigate social processes and phenomena influencing health behaviors and service provision. We aimed to identify the scope of published qualitative studies of stroke, consider their relevance to development and delivery of services for people with stroke, and make recommendations for future work. Methods-Literature review of published articles was identified by systematically searching online literature databases using keywords from the start of each database until 2002. Articles were reviewed by 2 authors, using a standardized matrix for data extraction. The 2003 European Stroke Initiative recommendations for stroke management were used to categorize the literature for consideration of its contribution to stroke research. Results-We included 95 articles. Their empirical contribution includes an emphasis on recording the "human" experience of stroke; identification of needs as perceived by patients and their families, differences in priorities between patients and professionals, and barriers to best-quality care. We identified 12 papers that were specifically undertaken to develop or evaluate interventions. Conclusions-Qualitative studies have addressed a wide range of issues related to the impact of stroke on individuals and caregivers, and to the organization and delivery of services. Significant problems remain in ensuring the delivery of best-quality stroke care, which such studies have the potential to address. Maximizing this potential requires greater collaboration between nonclinical and clinical scientists, service providers, and users to formulate research questions of interest as well as new research strategies, such as meta-analysis, to pool qualitative research findings and multisited investigations. Key Words: qualitative research Ⅲ caregivers Ⅲ delivery of health care Ⅲ evaluation studies Ⅲ quality of health care Ⅲ stroke T he relevance of social science research for medical practice has long been recognized. 1 Studies conducted using qualitative methods, which are drawn from the social sciences, are now commonly advocated and used in health and healthcare research. 2 The aim of qualitative research is to understand social processes and behaviors (such as responses to disease or the organization of health services) in natural rather than experimental settings, and from the perspective of participants. Specific methods used include unstructured or semistructured interviews, focus group interviews, and ethnographic observation. These methods tend to generate textual rather than numerical data, and their analysis entails identifying meanings and developing concepts, but not measuring frequency. Studies using a variety of qualitative research methods have investigated social factors that influence the delivery and uptake of a wide range of health services.Qualitative research is undertaken by researchers from a variety of disciplines, and reports may be published in journals not widely read outside the discipline concerned. The aim...

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“…Many caregivers' needs are unmet despite available community services (Anderson et al 1995, Mackenzie et al 1998a. In this respect it is important to recognize that needs change over time.…”

Section: Introductionmentioning

confidence: 99%

“…Carer assessment scale (CAS). This scale was developed to assess needs of family caregivers who were looking after stroke survivors in the community setting in Hong Kong (Mackenzie et al. 1998a).…”

mentioning

confidence: 99%