Community Strategies to Address Cancer Disparities in Appalachian Kentucky

Schoenberg, Nancy E.; Howell, Britteny M.; Fields, Nell

doi:10.1097/fch.0b013e3182385d2c

Cited by 39 publications

(35 citation statements)

References 33 publications

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“…As such, there is a growing interest in application of community-based participatory research (CBPR) approaches to address and reduce cancer health disparities (Braun, Tsark, Santos, Aitaoto, & Chong, 2006; Lisovicz, Johnson, Higginbotham, Downey, Hardy, et al, 2006; Nguyen, McPhee, Bui-Tong, Luong, Ha-Iaconis, et al, 2006; Schoenberg, Howell, & Fields, 2012). At the core of CBPR, defined as an “orientation to research that aims at maximum feasible community participation in all phases of research”, is attention to collaborative community and academic partnerships that work to improve the health of the community (Buchanan, Miller, & Wallerstein, 2007).…”

Section: Introductionmentioning

confidence: 99%

Participatory evaluation of a community–academic partnership to inform capacity-building and sustainability

Simmons

Klasko

Fleming

et al. 2015

Evaluation and Program Planning

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The Tampa Bay Community Cancer Network (TBCCN) was formed as a partnership comprised of committed community based organizations (grassroots, service, health care organizations) and a National Cancer Institute designated cancer center working together to reduce cancer health disparities. Adhering to principles of community-based participatory research, TBCCN’s primary aims are to develop and sustain outreach, training, and research programs that aim to reach medically underserved, multicultural and multilingual populations within the Tampa Bay tri-county area. Using a participatory evaluation approach, we recently evaluated the partnerships’ priorities for cancer education and outreach; perspectives on the partnerships’ adherence to CBPR principles; and suggestions for sustaining TBCCN and its efforts. The purpose of this paper is to describe implementation and outcomes of this participatory evaluation of a community/academic partnership, and to illustrate the application of evaluation findings for partnership capacity-building and sustainability. Our evaluation provides evidence for partners’ perceived benefits and realized expectations of the partnership and illustrates the value of ongoing and continued partnership assessment to directly inform program activities and build community capacity and sustainability.

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Section: Introductionmentioning

confidence: 99%

Participatory evaluation of a community–academic partnership to inform capacity-building and sustainability

Simmons

Klasko

Fleming

et al. 2015

Evaluation and Program Planning

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“…Most participants indicated they had never had a diabetes self-management education class; we suspect that our intervention could not completely overcome the substantial attention needed to improve outcomes. CHWs also had to balance program rigor and fidelity with practical complexities, including inadequate transportation, poor weather, and increasing stress and dependence on these middle aged adults because of an addiction epidemic (Appalachian Regional Commission, 2014, Schoenberg et al, 2012). …”

Section: Discussionmentioning

confidence: 99%

Community to clinic navigation to improve diabetes outcomes

Schoenberg

Ciciurkaite

Greenwood

2017

Preventive Medicine Reports

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Rural residents experience rates of Type 2 Diabetes Mellitus (T2DM) that are considerably higher than their urban or suburban counterparts. Two primary modifiable factors, self-management and formal clinical management, have potential to greatly improve diabetes outcomes. “Community to Clinic Navigation to Improve Diabetes Outcomes,” is the first known randomized clinical trial pilot study to test a hybrid model of diabetes self-management education plus clinical navigation among rural residents with T2DM. Forty-one adults with T2DM were recruited from two federally qualified health centers in rural Appalachia from November 2014–January 2015. Community health workers provided navigation, including helping participants understand and implement a diabetes self-management program through six group sessions and, if needed, providing assistance in obtaining clinic visits (contacting providers' offices for appointments, making reminder calls, and facilitating transportation and dependent care). Pre and post-test data were collected on T2DM self-management, physical measures, demographics, psychosocial factors, and feasibility (cost, retention, and satisfaction). Although lacking statistical significance, some outcomes indicate trends in positive directions, including diet, foot care, glucose monitoring, and physical health, including decreased HbA1c and triglyceride levels. Process evaluations revealed high levels of satisfaction and feasibility. Due to the limited intervention dose, modest program expenditures (~$29,950), and a severely affected population most of whom had never received diabetes education, outcomes were not as robust as anticipated. Given high rates of satisfaction and retention, this culturally appropriate small group intervention holds promise for hard to reach rural populations. Modifications should include expanded recruitment venues, sample size, intervention dosage and longer term assessment.

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“…39,[56][57] It would be helpful to know whether culturally based education regarding dementia and cognitive screening would increase knowledge, perceptions of risk, and screening behaviors. Engaging experimental research designs to test culturally tailored educational programs based on persons' AD knowledge, beliefs, and perceptions would likely uncover the most effective methods to increase interest in screening.…”

Section: Implications For Researchmentioning

confidence: 99%

Analysis of Barriers to Cognitive Screening in Rural Populations in the United States

Wiese

Williams²,

Tappen³

2014

Advances in Nursing Science

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There is scant research regarding barriers to cognitive screening in rural US populations. This is surprising when there is evidence of the importance of preventative health behaviors such as memory screening that can lead to earlier diagnosis and treatment of Alzheimer's disease and decrease in associated costs. A systematic review of published research revealed modifiable barriers to screening such as lack of knowledge and lack of knowledgeable providers to screen. Recommendations for diminishing barriers include the use of storytellers to provide culturally relevant education and informing practitioners of new Medicare coverage for cognitive screening.

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Community Strategies to Address Cancer Disparities in Appalachian Kentucky

Cited by 39 publications

References 33 publications

Participatory evaluation of a community–academic partnership to inform capacity-building and sustainability

Participatory evaluation of a community–academic partnership to inform capacity-building and sustainability

Community to clinic navigation to improve diabetes outcomes

Analysis of Barriers to Cognitive Screening in Rural Populations in the United States

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