Comparing doctors' and nurses' accounts of how they provide emotional care for parents of children with acute lymphoblastic leukaemia

Forsey, Mary; Salmon, Peter; Eden, Tim; Young, Bridget

doi:10.1002/pon.2084

Cited by 24 publications

(20 citation statements)

References 41 publications

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“…We confirm and expand existing knowledge about the ways doctors and nurses can communicate effectively. Like Forsey and colleagues, we found that doctors and nurses relied on each other to communicate well with adolescents and their parents . When Forsey compared the accounts of doctors and nurses, describing how they provide emotional care for parents of children with acute lymphoblastic leukemia, their descriptions were markedly different.…”

Section: Discussionsupporting

confidence: 49%

Improving Communication in Adolescent Cancer Care: A Multiperspective Study

Essig

Steiner

Kuehni

et al. 2016

Pediatr Blood Cancer

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Section: Discussionsupporting

confidence: 49%

Improving Communication in Adolescent Cancer Care: A Multiperspective Study

Essig

Steiner

Kuehni

et al. 2016

Pediatr Blood Cancer

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“…However, pre‐specified tasks might not suit all consultations, and clinicians might have good reason to prioritise others. Moreover, what works for one practitioner might not for another . Given, too, that the ‘chemistry’ of dyadic relationships is notoriously unpredictable, and that only the participants will know much of the unique context for any instance of communication, experts’ general rules, whether about tasks or skills, inevitably have limited purchase …”

Section: Clinicians: Goal‐directed Expertsmentioning

confidence: 99%

A new paradigm for clinical communication: critical review of literature in cancer care

Salmon

Young

2016

Med Educ

Self Cite

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ObjectivesTo: (i) identify key assumptions of the scientific ‘paradigm’ that shapes clinical communication research and education in cancer care; (ii) show that, as general rules, these do not match patients’ own priorities for communication; and (iii) suggest how the paradigm might change to reflect evidence better and thereby serve patients better.MethodsA critical review, focusing on cancer care. We identified assumptions about patients’ and clinicians’ roles in recent position and policy statements. We examined these in light of research evidence, focusing on inductive research that has not itself been constrained by those assumptions, and considering the institutionalised interests that the assumptions might serve.ResultsThe current paradigm constructs patients simultaneously as needy (requiring clinicians’ explicit emotional support) and robust (seeking information and autonomy in decision making). Evidence indicates, however, that patients generally value clinicians who emphasise expert clinical care rather than counselling, and who lead decision making. In denoting communication as a technical skill, the paradigm constructs clinicians as technicians; however, communication cannot be reduced to technical skills, and teaching clinicians ‘communication skills’ has not clearly benefited patients. The current paradigm is therefore defined by assumptions that that have not arisen from evidence. A paradigm for clinical communication that makes its starting point the roles that mortal illness gives patients and clinicians would emphasise patients’ vulnerability and clinicians’ goal‐directed expertise. Attachment theory provides a knowledge base to inform both research and education.ConclusionsResearchers will need to be alert to political interests that seek to mould patients into ‘consumers’, and to professional interests that seek to add explicit psychological dimensions to clinicians’ roles. New approaches to education will be needed to support clinicians’ curiosity and goal‐directed judgement in applying this knowledge. The test for the new paradigm will be whether the research and education it promotes benefit patients.

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“…These results agree with previous studies (Arora, 2003;Haluska et al, 2002;Stewart, 1995). Nurses spend a lot of time taking care of patients and trying to establish boundaries to facilitate compliance and adherence to treatments (Forsey, Salmon, Eden & Young, 2013). Therefore, they regularly talk to patients and their parents about whatever they need, which often includes emotional needs (Forsey et al, 2013).…”

Section: Discussionmentioning

confidence: 99%

“…Nurses spend a lot of time taking care of patients and trying to establish boundaries to facilitate compliance and adherence to treatments (Forsey, Salmon, Eden & Young, 2013). Therefore, they regularly talk to patients and their parents about whatever they need, which often includes emotional needs (Forsey et al, 2013). As a consequence, close relationships are usually developed and they could become an important asset in the social network of patient's support providers.…”

Section: Discussionmentioning

confidence: 99%

Social support during childhood cancer treatment enhances quality of life at survival [El apoyo social durante el cáncer infantil favorece la calidad de vida en periodo de supervivencia]

et al. 2015

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Título: El apoyo social durante el cáncer infantil favorece la calidad de vida en periodo de supervivencia. Resumen. Introducción: La calidad de vida en relación a la salud (CVRS) en cáncer se ha relacionado con distintos factores de riesgo y protección tales como el apoyo social percibido (ASP) y el afrontamiento. Sin embargo, la investigación acerca de los efectos de dichos factores sobre la CVRS de supervivientes pediátricos sigue siendo no concluyente. Objetivo: Describir y explorar la relación entre CVRS en periodo de supervivencia y factores presentes durante el periodo de hospitalización (ASP y afrontamiento). Métodos: Diseño transversal. 41 supervivientes de cáncer infanto-juvenil respondieron medidas de CVRS en referencia al periodo actual de supervivencia, así como medidas de ASP y afrontamiento en relación al periodo de hospitalización. Resultados: La función discriminante obtenida logró clasificar correctamente al 78% de la muestra. Los supervivientes con mayores puntuaciones en CVRS, fueron aquellos que, en los peores momentos durante su hospitalización, percibieron un apoyo emocional satisfactorio (por parte del personal de enfermería) y no desplegaron un gran número de recursos de afrontamiento para hacer frente al evento estresante (sólo la estrategia de afrontamiento de acción social mostró relación estadísticamente significativa con CVRS). Conclusiones e implicaciones: Considerando estos resultados, parece adecuado el llevar a cabo intervenciones de tipo psicoeducativo destinadas a fortalecer la red de apoyo social, sobre todo por parte del personal sanitario (enfermería). Estos resultados ponen de manifiesto la importancia de considerar todas las oportunidades para abordar las necesidades emocionales de los pacientes durante su hospitalización, ya que se ha observado que esto puede tener un efecto positivo perdurable en periodo de supervivencia. Palabras clave: Cáncer infanto-juvenil; calidad de vida en relación a la salud; apoyo social; afrontamiento. Abstract. Background:Health-related quality of life (HRQoL) in cancer has been related to several protective and risk factors such as perceived social support (PSS) and coping. However, their effects on HRQoL once patients are in survivorship have not been fully described in pediatric samples. Objective: To describe and explore the relationship between HRQoL in survivorship and some factors (PSS, coping) present while active treatment. Methods: Cross-sectional study. Forty-one pediatric cancer survivors answered HRQoL measures referred to survivorship, as well as PSS and coping measures referred to treatment period. Results: The discriminant function obtained succeeds to correctly classify 78% of the sample. Survivors who showed high HRQoL were those who, in the hardest moment while hospitalization, perceived satisfactory emotional support (from nurses) and did not deploy a wide range of active coping resources to cope with stressful events (only social action coping strategy showed a significant relationship with HRQoL). Conclusions and implica...

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Comparing doctors' and nurses' accounts of how they provide emotional care for parents of children with acute lymphoblastic leukaemia

Cited by 24 publications

References 41 publications

Improving Communication in Adolescent Cancer Care: A Multiperspective Study

Improving Communication in Adolescent Cancer Care: A Multiperspective Study

A new paradigm for clinical communication: critical review of literature in cancer care

Social support during childhood cancer treatment enhances quality of life at survival [El apoyo social durante el cáncer infantil favorece la calidad de vida en periodo de supervivencia]

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