Comparison of Percentage of Syllables Stuttered With Parent-Reported Severity Ratings as a Primary Outcome Measure in Clinical Trials of Early Stuttering Treatment

Onslow, Mark; Jones, Mark; O’Brian, Sue; Packman, Ann; Menzies, Ross G.; Lowe, Robyn; Arnott, Simone; Bridgman, Kate; Sonneville, Caroline de; Franken, Marie-Christine

doi:10.1044/2017_jslhr-s-16-0448

Cited by 21 publications

(10 citation statements)

References 63 publications

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“…In fact, the typical and highest SR scores were not only identical across the two groups but also almost identical to those reported in O' Brian et al (2013). This result is inconsistent with the Onslow et al (2018) finding that %SS and parent-reported stuttering severity scores are functionally interchangeable for measuring treatment effect sizes.…”

Section: Discussioncontrasting

confidence: 77%

Lidcombe Program translation to community clinics in Australia and England

O’Brian

Hayhow

Jones

et al. 2022

Intl J Lang & Comm Disor

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Background: Early intervention is essential healthcare for stuttering, and the translation of research findings to community settings is a potential roadblock to it. Aims: This study was designed to replicate and extend the Lidcombe Program community translation findings of O'Brian et al. (2013) but with larger participant numbers, incorporating clinicians (speech pathologists/speech anlanguage therapists) and their clients from Australia and England. Methods & Procedures: Participants were 51 clinicians working in public and private clinics across Australia (n = 36) and England (n = 15), and 121 of their young stuttering clients and their families. Outcome measures were percentage of syllables stuttered (%SS), parent severity ratings at 9 months post-recruitment, number of clinic visits to complete Stage 1 of the Lidcombe Program, and therapist drift.Outcomes & Results: Community clinicians in both countries achieved similar outcomes to those from randomized controlled trials. Therapist drift emerged as an issue with community translation. Speech and language therapists in England attained outcomes 1.0%SS above the speech pathologists in Australia, although their scores were within the range attained in randomized trials. Conclusions & Implications: Community clinicians from Australia and England can attain Lidcombe Program outcome benchmarks established in randomized trials. This finding is reassuring in light of the controlled conditions in clinical trials of the Lidcombe Program compared with its conduct in community practice. The long-term impact of therapist drift in community clinical practice with the Lidcombe Program has yet to be determined.

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Section: Discussioncontrasting

confidence: 77%

Lidcombe Program translation to community clinics in Australia and England

O’Brian

Hayhow

Jones

et al. 2022

Intl J Lang & Comm Disor

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“…Stuttering was defined as ‘recovered’ if individuals had not stuttered in the 12 months before completing the survey. Self‐reported stuttering severity ratings were also collected; these previously utilized and published measures were made using a rating scale from 1 (no stuttering in the past week) to 10 (extremely severe stuttering in the past week) 27,28 . Participants were asked to report stuttering frequency on an ordinal scale from 1 (sometimes, not every day) to 5 (several times per sentence).…”

Section: Methodsmentioning

confidence: 99%

“…Stuttering was validated via videoconference with a speech pathologist in 54 participants (5.5%), chosen using stratified random sampling for sex, socioeconomic status, and stuttering status. Speech pathologists assessed the presence or absence of stuttering and rated stuttering severity on the same scale used for self‐report 27,28 . Participants were also asked to rate the severity of their stuttering on the day and ratings were compared.…”

Section: Methodsmentioning

confidence: 99%

Self‐reported impact of developmental stuttering across the lifespan

Boyce

Jackson

Reyk

et al. 2022

Develop Med Child Neuro

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To examine the phenomenology of stuttering across the lifespan in the largest prospective cohort to date. Method: Participants aged 7 years and older with a history of developmental stuttering were recruited. Self-reported phenotypic data were collected online including stuttering symptomatology, co-occurring phenotypes, genetic predisposition, factors associated with stuttering severity, and impact on anxiety, education, and employment. Results: A total of 987 participants (852 adults: 590 males, 262 females, mean age 49 years [SD = 17 years 10 months; range = 18-93 years] and 135 children: 97 males, 38 females, mean age 11 years 4 months [SD = 3 years; range = 7-17 years]) were recruited. Stuttering onset occurred at age 3 to 6 years in 64.0%. Blocking (73.2%)was the most frequent phenotype; 75.9% had sought stuttering therapy and 15.5% identified as having recovered. Half (49.9%) reported a family history. There was a

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“…Parental reports have been used in several previous studies of persistence and recovery of stuttering in childhood (Dworzynski et al, 2007;Kloth et al, 1999;Koenraads et al, 2019;Månsson, 2000). Parents of children who stutter and parents of nonstuttering children can accurately and reliably identify the absence/presence of stuttering (Bloodstein & Bernstein Ratner, 2008;Einarsdottir & Ingham, 2009;Onslow et al, 2018;Reilly et al, 2009;Tumanova et al, 2018). This last study retrospectively examined behavior and temperament from data collected when the children were younger (at ages 6 and 18 months and 3, 5, and 6 years) and currently (at 9 years of age).…”

Section: Stutteringmentioning

confidence: 99%

Bidirectional Associations of Childhood Stuttering With Behavior and Temperament

Koenraads

Jansen

Jong

et al. 2021

J Speech Lang Hear Res

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Purpose Behavior and temperament (e.g., emotional reactivity, self-regulation) have been considered relevant to stuttering and its developmental course, but the direction of this relation is still unknown. Knowledge of behavior difficulties and temperament in childhood stuttering can improve screening and intervention. The current study examined both directions of the relationship between stuttering and behavior difficulties and temperament and between persistent stuttering and behavior difficulties and temperament across childhood. Method This study was embedded in the Generation R Study, a population-based cohort from fetal life onward in the Netherlands. We analyzed data from 145 children (4.2%) with a history of stuttering (118 recovered, 27 persistent) and 3,276 children without such a history. Behavior and temperament were repeatedly assessed using parental questionnaires (Child Behavior Checklist) and Infant/Child Behavior Questionnaire between 0.5 and 9 years of age. Multiple logistic and linear regression analyses were performed. Results Six-month-old children who were less able to “recover from distress,” indicating poor self-regulation, were more likely to develop persistent stuttering later in childhood (odds ratio = 2.05, 95% confidence interval (CI) [1.03, 4.05], p = .04). In the opposite direction, children with a history of stuttering showed more negative affectivity (β = 0.19, 95% CI [0.02, 0.37], p = .03) at 6 years of age than children without such a history. Stuttering persistence was associated with increased internalizing behaviors (β = 0.38, 95% CI [0.03, 0.74], p = .04) and higher emotional reactivity (β = 0.53, 95% CI [0.09, 0.89], p = .02) at the age of 9 years. Conclusions Behavior and temperament were associated with stuttering persistency—seemingly as both predictor and consequence—but did not predict a history of stuttering. We suggest that children who persist in stuttering should be carefully monitored, and if behavioral or temperamental problems appear, treatment for these problems should be offered. Supplemental Material https://doi.org/10.23641/asha.16869479

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Comparison of Percentage of Syllables Stuttered With Parent-Reported Severity Ratings as a Primary Outcome Measure in Clinical Trials of Early Stuttering Treatment

Cited by 21 publications

References 63 publications

Lidcombe Program translation to community clinics in Australia and England

Lidcombe Program translation to community clinics in Australia and England

Self‐reported impact of developmental stuttering across the lifespan

Bidirectional Associations of Childhood Stuttering With Behavior and Temperament

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