Comparison of Problems and Unmet Needs of Patients with Advanced Cancer in a European Country and an Asian Country

Effendy, Christantie; Vissers, Kris; Osse, Bart H. P.; Tejawinata, Sunaryadi; Vernooij‐Dassen, Myrra; Engels, Yvonne

doi:10.1111/papr.12196

Cited by 49 publications

(60 citation statements)

References 41 publications

(78 reference statements)

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“…Through our review we identified 27 citations that dealt with NCD management at the structural policy level [25, 61, 88], clinical level [23, 54, 63, 72, 75, 83, 90–92, 95, 106, 108, 110, 113], community [16, 38, 52, 73, 74, 100], family [105, 107], and individual level [59, 77]. At the structural level, we recognized three issues: health insurance services for NCD patients [88], the need for a better collaboration between health and registration sectors [61], and the need to address the double burden of NCDs and infectious diseases such as tuberculosis and diabetes [25], which might be aggravated by smoking [39].…”

Section: Resultsmentioning

confidence: 99%

“…One study identified the heightened need for physicians to be aware of patients’ unrealistic beliefs in delaying treatment and consulting traditional healers [83, 91, 92]. One study raised problems and unmet needs in relation to palliative cancer care [106]. With regard to hypertension and chronic heart diseases, the studies that we found indicate clear needs for improving the overall care for myocardial infarction [90], to manage overall unmet needs for cardiovascular care [95], provide appropriate medication for recurrent coronary heart and cardiovascular diseases [23], and to address the lack of urgency among doctors to control hypertension [113].…”

Section: Resultsmentioning

confidence: 99%

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How is Indonesia coping with its epidemic of chronic noncommunicable diseases? A systematic review with meta-analysis

et al. 2017

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BackgroundChronic noncommunicable diseases (NCDs) have emerged as a huge global health problem in low- and middle-income countries. The magnitude of the rise of NCDs is particularly visible in Southeast Asia where limited resources have been used to address this rising epidemic, as in the case of Indonesia. Robust evidence to measure growing NCD-related burdens at national and local levels and to aid national discussion on social determinants of health and intra-country inequalities is needed. The aim of this review is (i) to illustrate the burden of risk factors, morbidity, disability, and mortality related to NCDs; (ii) to identify existing policy and community interventions, including disease prevention and management strategies; and (iii) to investigate how and why an inequitable distribution of this burden can be explained in terms of the social determinants of health.MethodsOur review followed the PRISMA guidelines for identifying, screening, and checking the eligibility and quality of relevant literature. We systematically searched electronic databases and gray literature for English- and Indonesian-language studies published between Jan 1, 2000 and October 1, 2015. We synthesized included studies in the form of a narrative synthesis and where possible meta-analyzed their data.ResultsOn the basis of deductive qualitative content analysis, 130 included citations were grouped into seven topic areas: risk factors; morbidity; disability; mortality; disease management; interventions and prevention; and social determinants of health. A quantitative synthesis meta-analyzed a subset of studies related to the risk factors smoking, obesity, and hypertension.ConclusionsOur findings echo the urgent need to expand routine risk factor surveillance and outcome monitoring and to integrate these into one national health information system. There is a stringent necessity to reorient and enhance health system responses to offer effective, realistic, and affordable ways to prevent and control NCDs through cost-effective interventions and a more structured approach to the delivery of high-quality primary care and equitable prevention and treatment strategies. Research on social determinants of health and policy-relevant research need to be expanded and strengthened to the extent that a reduction of the total NCD burden and inequalities therein should be treated as related and mutually reinforcing priorities.

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Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

How is Indonesia coping with its epidemic of chronic noncommunicable diseases? A systematic review with meta-analysis

et al. 2017

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“…Most of the evidence indicated that pain was a common and devastating symptom of cancer-affected patients [37][38][39]. The 71 percent of patients in Indonesia and 67 percent of patients in Netherlands suffered from pain and pain-related difficulties with everyday activities [40].…”

Section: Discussionmentioning

confidence: 99%

Needs of patient with advanced stages of cancer in a Thai community

Krongyuth

Viwatwongkasem

Campbell

2018

JHR

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Purpose-The purpose of this paper is to explore the needs of people with cancer in advanced stages and to analyze factors that influence them. Design/methodology/approach-A concurrent mixed-method design was used. Descriptive design was conducted in Ubon Ratchathani Province, Thailand. Data were collected from a convenience sample of patients with advanced cancer of any tissue or organ. Questionnaires were completed by 110 patients aged 60 years and above (response rate 110/130 ¼ 84.6 percent). In-depth interviews were conducted with a total of eight patients. Content analysis of semi-structured interviews of a sub-sample was subsequently performed to better understand the real needs of patients with advanced stages of cancer at home setting. Findings-The majority (77.5 percent) reported a preference to spend their final days at home. The four most common palliative care needs were more information about disease and medical treatment (98.2 percent), more treatment for pain (97.3 percent), health education for family caregivers (95.5 percent) and health volunteers visit at home (95.5 percent). Content analysis of the qualitative data suggested that patient needs health care providers to deliver open communication, pain management and provide psychosocial supports. Originality/value-The result showed that patients-related variables are associated with the palliative care needs in patients with advanced stages of cancer. Communication skills and pain management are the key components to support the need for palliative care at home and to benefit the quality of life in terminally ill patients.

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“…Study found similar result, where respondents in Indonesia were more prone to financial problem than respondents in Netherlands as patients in Indonesia paid higher expenses and suffered more income loss due to their disease. 14 The financial problem faced by cervical cancer patient also contributes to his quality of life (Tadele Niguse, 2015). 15 The high mean of global health scale for nuclear and extended family (76.28±21.434 versus 67.82±22.017), high mean of financial problem' item in symptom scale (63.22±41.159) for extended family, and the low mean of 'sexual activity' item (2.56±9.058 versus 6.90±16.377) and 'sexual pleasure' item (2.56±9.058 versus 14.94±34.024) in single-item scale indicated that Indonesian people, particularly Japanese, are people with tendency of accepting their condition without complaining and satisfied with their life even though they had high mean of symptom domain and low sexual activity and sexual pleasure.…”

Section: Quality Of Life Of Cervical Cancer Patient With Supportive Fmentioning

confidence: 99%

Quality of life of cervical cancer patient with support from nuclear family and extended family in Dr. Sardjito general hospital, Yogyakarta Indonesia: a comparative study

2017

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Background: Nature of the disease, side effect from treatments such as surgery, chemotherapy, and chemo radiation reduce the patient’s quality of life. Thus, the family support is substantial in cancer patient treatment. Aim of this study was comparing the quality of life of patients with cervical cancer in support of the nuclear family and extended family at Dr. Sardjito hospital Yogyakarta, Indonesia.Methods: The study population were all cervical cancer patients treated with chemotherapy in Dr. Sardjito general hospital, Yogyakarta, Indonesia from October to November 2016. Samples were collected using purposive sampling to obtain 62 respondents, 30 respondents for nuclear family group and 32 for extended family group. The study instruments were family support questionnaire, EORTC QLQ-C30 Indonesian version, and EORTC QLQ-C24 were translated to Indonesian. The quality of life was assessed during chemotherapy.Results: Quality of life for cervical cancer patient from supportive family had mean >50. The respective mean of general health status for patients from supportive nuclear and extended family were 76.28±21.434 and 67.82±22.017. Nearly all items in symptom, multi-item and single-item scales had mean <50, except item financial problem. Meanwhile, quality of life for cervical cancer patient from unsupportive family had mean >50. The respective mean of general health status for patients from unsupportive nuclear and extended family were 70.83±20.972 and 75.00±8.33. Nearly all items in symptom, multi-item and single-item scales had mean <50, except items fatigue and sore. Several items of quality of life had p<0.05, which were constipation (p=0.049), and financial problem (p=0.045).Conclusions: There was no significant difference between quality of life of cervical cancer patients with support from nuclear and extended families. However, in ‘financial problem’ item, nuclear family had better quality of life while in contrast, extended family had better quality of life in ‘constipation’ item. Family education program needed because several domains of quality of life is still low and requires family involvement in treatment.

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Comparison of Problems and Unmet Needs of Patients with Advanced Cancer in a European Country and an Asian Country

Cited by 49 publications

References 41 publications

How is Indonesia coping with its epidemic of chronic noncommunicable diseases? A systematic review with meta-analysis

How is Indonesia coping with its epidemic of chronic noncommunicable diseases? A systematic review with meta-analysis

Needs of patient with advanced stages of cancer in a Thai community

Quality of life of cervical cancer patient with support from nuclear family and extended family in Dr. Sardjito general hospital, Yogyakarta Indonesia: a comparative study

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