Compassionate design for dementia care

Treadaway, Cathy; Taylor, Aidan; Fennell, Jac

doi:10.1080/21650349.2018.1501280

Cited by 20 publications

(22 citation statements)

References 16 publications

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“…The very process of engagement with the designers and innovators with the users and caregivers is likely to have a positive impact because it fosters social interaction, creative expression and builds on the potential for empathic connection among the participants (7). In a systematic review of methods of co-design for technology with people with dementia, Suijkerbuijk et al and Branco et al both have identified tools and recommendations from a variety of studies and showed that an increasing number of innovations are being developed with individuals with moderate to severe stages of dementia (18,19).…”

Section: Challenges Of Inclusiveness and Actively Involving People Wimentioning

confidence: 99%

Emerging Issues of Intelligent Assistive Technology Use Among People With Dementia and Their Caregivers: A U.S. Perspective

Dahlke

Ory

2020

Front. Public Health

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The increasing number of older adults with cognitive deficits, including dementia, poses a major challenge for public health in the United States. At the same time, the limited number of informal and professional caregivers available to support this rapidly growing population is of mounting concern. Not only does population aging limit the number of potential caregivers, but extant caregivers often lack skills to provide quality care. The integration of intelligent assistive technologies (IAT), including devices, robotics and sensors in many forms, into eldercare, may offer opportunities to reduce caregiver burden and enhance healthcare services while improving the quality of life among older adults with mild to severe cognitive deficits. However, many caregivers and their care recipients lack access to these technologies. The reasons for this reduced access are multifactorial, including the digital divide, sociocultural factors, and technological literacy. This mini review investigates the emerging use of IAT available to caregivers and older adults with cognitive deficits and explores the challenges in socioeconomic status and technological literacy as well as ethical and legal implications that should be considered in the design and development of IAT for older adults with cognitive deficits. Drawing from existing literature, it will suggest frameworks for design and adoption aimed at increased and equitable access for this vulnerable population.

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Section: Challenges Of Inclusiveness and Actively Involving People Wimentioning

confidence: 99%

Emerging Issues of Intelligent Assistive Technology Use Among People With Dementia and Their Caregivers: A U.S. Perspective

Dahlke

Ory

2020

Front. Public Health

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“…However, other supporting strategies are in place such as de-prescribing (withdrawing of medications) which has been undertaken with some success 56,57 and the use of home care agencies to help the person with dementia, mainly with their daily living activities with limited roles in managing medicines. There is also greater recognition and advocacy in involving people with dementia in co-design [58][59][60] although such approaches focusing on managing medicines is scarce. This presents a need for further research into this area given that many people with dementia live alone in their own homes.…”

Section: Articles Reviewedmentioning

confidence: 99%

Medicines management issues in dementia and coping strategies used by people living with dementia and family carers: A systematic review

Lim

Sharmeen

2018

Int J Geriat Psychiatry

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ObjectivesMedicines play a key role in the lives of people with dementia, primarily to manage symptoms. Managing medicines is complex for people with dementia and their family carers and can result in multiple problems leading to harm. We conducted a systematic review to identify and model medication issues experienced and coping strategies used by people with dementia and/or family carers.MethodsEleven general databases and four systematic review databases were searched. Studies were quality assessed using an established framework and thematically analysed.ResultsTwenty‐one articles were included in this study, and four domains affecting medication use were identified: cognitive, medication, social and cultural, and knowledge/educational and communication. People with dementia reported medication issues in all four domains, but few coping strategies were developed. Family carers reported issues and coping strategies related to the medication and knowledge/educational and communication domains. Common issues with regards to knowledge and communication about medicines remain unresolved. The “voices” of people with dementia appeared largely missing from the literature so were in‐depth understanding of how, whether, and in which circumstances coping strategies work in managing medicines.ConclusionsMedicines management is a complex set of activities and although current coping strategies exists, these were primarily used by family carers or the person with dementia‐carer dyad. Health and social care practitioners and researchers should seek to understand in‐depth the “mechanisms of action” of existing coping strategies and actively involve people with dementia as co‐producers of knowledge to underpin any further work on medicines management.

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“…, Treadaway et al . ). In contrast, a number of scholars explore how materialities facilitate collective life in dementia care wards and support relations, identities, collaborations and interactions (Buse and Twigg 2014b, , Hydén , Majlesi and Ekström , Moser ).…”

Section: Introductionmentioning

confidence: 97%

(In)visible materialities in the context of dementia care

Cleeve

Borell

Rosenberg

2019

Sociology Health & Illness

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Seemingly mundane materialities are intertwined with important, but often neglected, care interactions. It has been argued that if healthcare professionals paid more attention to the roles materialities can have, everyday routines could become important occasions for care. In response to such proposals, we argue that it is relevant to examine how materialities are currently understood. In this article, we explore materialities as part of work in a dementia unit. Using abstracted illustrations of everyday materialities to elicit reflections, we conducted 11 individual interviews with certified nursing assistants. Through phenomenographic analysis we explain our findings as three different categories conceptualising understandings of materialities as: ‘tools for care’, ‘a set of principles for care’ and ‘caring relationships’. Our analysis indicates that understanding materialities as instruments was reinforced and made visible through the healthcare organisation while understanding materialities as part of specific relationships with residents appeared informal and less visible. How materialities were understood seemed to have several implications for residents. While care practices could benefit from nursing assistants’ abilities to alternate between ways of understanding materialitites, such competence seemed dependent on how professional care was organised, structured and materialised.

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Compassionate design for dementia care

Cited by 20 publications

References 16 publications

Emerging Issues of Intelligent Assistive Technology Use Among People With Dementia and Their Caregivers: A U.S. Perspective

Emerging Issues of Intelligent Assistive Technology Use Among People With Dementia and Their Caregivers: A U.S. Perspective

Medicines management issues in dementia and coping strategies used by people living with dementia and family carers: A systematic review

(In)visible materialities in the context of dementia care

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