Components for providing person-centred palliative healthcare: An umbrella review

Kmetec, Sergej; Fekonja, Zvonka; Kolarič, Jožica Černe; Reljić, Nataša Mlinar; McCormack, Brendan; Sigurðardóttir, Árún K; Lorber, Mateja

doi:10.1016/j.ijnurstu.2021.104111

Cited by 7 publications

(10 citation statements)

References 28 publications

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“…Models of care and frameworks designed to guide healthcare professionals through patient-centred approaches to end-of-life care were identified across seven reviews. 19,74,123 –127 These models included: (1) the Dynamic Reci-procity Dignity model, 123 and Chochninov’s Model of Dignity, 19 which both recognise the individual, social/familial, and institutional factors, and the characteristics of provided care that contribute to preserving patient dignity; (2) the Unitary Caring Model, the Transition Model and Shared Theory, which each highlight the role of nurses in providing patient-centred end-of-life care through an empathic approach and altering the delivery of care according to a patient’s needs 124 ; (3) Case Management models that support a patient’s holistic needs through a collaborative and multidisciplinary approach to assessment, service planning, and advocacy 125 ; and (4) the Indigenous Palliative Care Service Delivery Conceptual Model, which outlines key principles that are critical in fostering a sense of trust and cultural respect during the provision of palliative care for Indigenous populations in Australia. 74 Patient-centred care was also a key component of integrated palliative care models, defined by patient-provider relationships that prioritise patients’ needs and a compassionate and empathic approach to service provision.…”

Section: Resultsmentioning

confidence: 99%

Section: Aim 4: Models Framework and Guidelines For Patient-centred E...mentioning

confidence: 99%

“…(3) healthcare processes; and (4) supporting palliative care outcomes. 126 Additional detail regarding the specific components of the models that were identified has been provided in Supplemental File 3.…”

Section: Aim 4: Models Framework and Guidelines For Patient-centred E...mentioning

confidence: 99%

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A rapid umbrella review of the literature surrounding the provision of patient-centred end-of-life care

et al. 2023

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Background: Patients have reported a broad range of unmet needs in their receipt of clinical care at the end of life. Therefore, enhancing the quality of end-of-life care through patient-centred healthcare interactions is warranted. Aim: The aim of this rapid umbrella review was to synthesise previous literature reviews that have examined: (1) patient preferences for patient-centred end-of-life care; (2) barriers and enablers to patient-centred end-of-life care; (3) interventions designed to enhance patient-centred end-of-life care; and (4) patient-centred models of end-of-life care. Design: A rapid umbrella review was conducted and informed by the Joanna Briggs Institute’s methodological guidance for conducting umbrella reviews. Data sources: Three academic databases were searched for relevant literature in May 2022: MEDLINE, PsycINFO and CINAHL Plus. Inclusion criteria encompassed literature reviews that examined the topic of patient-centred care for any adult patients in end-of-life care. Results: A total of 92 literature reviews were identified. Findings suggest that there is often a discrepancy between patient preferences and the provision of care. These discrepancies have been associated with a range of barriers at the patient, staff and system levels. Common interventions included education and training for staff which were often met with improved patient outcomes. Patient-centred models of care were underrepresented across the literature. Conclusions: This review highlighted a need for healthcare systems to support staff in providing a patient-centred end of life experience through the development of a co-designed patient-centred model of care, supplemented by professional development and a systematic approach to identifying and documenting patient preferences.

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Section: Resultsmentioning

confidence: 99%

Section: Aim 4: Models Framework and Guidelines For Patient-centred E...mentioning

confidence: 99%

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A rapid umbrella review of the literature surrounding the provision of patient-centred end-of-life care

et al. 2023

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“…Furthermore, nursing management must prevent paternalistic nursing practices that foster a sense of dependence, lack of decision‐making control and involvement in daily activities. Nurse management must provide a person‐centred culture that enhances equality, shares decision‐making that promotes the older person's active role and considers the older person's wishes (Kmetec et al, 2022 ). Therefore, a person‐centred management style leads to higher nursing care staff satisfaction, which improves care in nursing homes (Kmetec et al, 2022 ).…”

Section: Discussionmentioning

confidence: 99%

“…Nurse management must provide a person‐centred culture that enhances equality, shares decision‐making that promotes the older person's active role and considers the older person's wishes (Kmetec et al, 2022 ). Therefore, a person‐centred management style leads to higher nursing care staff satisfaction, which improves care in nursing homes (Kmetec et al, 2022 ).…”

Section: Discussionmentioning

confidence: 99%

Experiences with dignity among older people confined to beds living in a nursing home: A qualitative descriptive study

Fekonja

Kmetec

Lorber

et al. 2022

J Nursing Management

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Aim: The aim of this study is to explore the concept of dignity from the experience of older people with limited mobility and confined to beds while living in a nursing home.Background: Nursing staff have an important impact on the dignity of those older people confined to beds in nursing homes. Individuals' uniqueness with respecting dignity should be ensured.Methods: A qualitative descriptive study was conducted. The study was carried out with 19 older people who were immobile and confined to bed and living in nursing homes. The individual in-depth interviews were conducted between July and October 2021. Inductive thematic analysis was used to synthesize data. Results:The main theme 'Dignity of older people confined to bed' emerged from subthemes 'Emotions', 'Lived experience' and 'Failure to maintain care'. The participants expressed their dissatisfaction towards the nursing staff's disrespectful care, which evoked feelings of insignificance and inferiority. Conclusion:Undignified and disrespectful nursing care can cause feelings of suffering, sadness and anger in older people confined to their beds. Nurses must listen to this group of older people and learn from their experiences. Compassionate, personcentred care with kindness and empathy should be provided by all those providing and receiving care in nursing homes.Implications for Nursing Management: To provide dignified care, nursing staff must understand the importance of person-centred, individually oriented nursing care for older people living with immobility in nursing homes.

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Connect, care, create: practical framework for physical environment design for person-centred palliative care

Beuls,

Petermans,

Vanrie

2024

BMJ Support Palliat Care

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ObjectiveThis article aims to explore architectural-rich insights derived from users’ experiences within everyday practice in palliative environments and provides a practical framework for healthcare organisations, architects and researchers involved in (re)designing palliative environments for person-centred care.MethodsAn ethnographic study involving participatory observation was undertaken to gain insight into the influence of palliative environments on the diverse users’ subjective experiences. This immersive research took place across multiple palliative environments, encompassing a palliative care unit, a day care centre for palliative care and a hospice located in Belgium. Also, informal conversations and photo-elicitation interviews were conducted with residents, family members, healthcare professionals, volunteers and maintenance staff.ResultsAnalysing the subjective experiences yielded a practical framework of four architectural atmospheres (proximity, support, engagement, comfort) intended to serve as guiding principles for designing palliative environments. To shape these atmospheres, this article elaborates on 17 spatial aspects and aligns them with real-life experiences of users within palliative environments, thereby enriching and contextualising these insights.ConclusionsThis study presents a practical framework encompassing atmospheres, spatial aspects and overarching insights. It is augmented by supplemental material featuring real-life user experiences, all directed towards guiding the design of palliative environments in pursuit of person-centred palliative care. This article advocates for a collaborative, interdisciplinary, holistic design approach that acknowledges these considerations’ interconnectedness and considers the users’ multiple perspectives. Ultimately, this approach serves as a means of bridging design intentions and actual experiences encountered by users in their real-life contexts to assist healthcare organisations and architects in creating environments for person-centred palliative care.

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Components for providing person-centred palliative healthcare: An umbrella review

Cited by 7 publications

References 28 publications

A rapid umbrella review of the literature surrounding the provision of patient-centred end-of-life care

A rapid umbrella review of the literature surrounding the provision of patient-centred end-of-life care

Experiences with dignity among older people confined to beds living in a nursing home: A qualitative descriptive study

Connect, care, create: practical framework for physical environment design for person-centred palliative care

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