Concerns regarding Indian prosthetic eye wearers

Korani, Hiral; Pine, Keith R.; Sood, Meenakshi; Vyas, Akshita

doi:10.1111/cxo.13076

Cited by 7 publications

(4 citation statements)

References 9 publications

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“…Social withdrawal was common due to AEUs' appearance-related anxieties and reduced confidence from partial sight loss. Previous quantitative studies already showed that staring from members of the public can cause emotional struggles in AEUs [4,5], which was confirmed in our interviews. Conversely, better appearance of the prosthetic eye appears linked to a positive impact on social interactions [23].…”

Section: Discussionsupporting

confidence: 87%

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Living with an artificial eye: qualitative insights into patient and family member experiences

Boele,

Kawalek,

Nicklin

et al. 2024

Int Ophthalmol

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Purpose Artificial eye users (AEUs) can experience a negative impact on psychological and emotional wellbeing, including reduced social functioning, which may be a consequence of living with one eye removed, and/or of having a prosthetic eye. This may have wider consequences for their families. We aimed to explore what it means to live with a prosthetic eye, for both AEUs and their families—and how any quality of life (QoL) issues impact on their day-to-day functioning. Methods A subset of AEUs and their family members taking part in a feasibility randomised controlled trial comparing hand-painted to digitally printed artificial eyes were invited for semi-structured interviews. Transcripts were analysed using reflexive thematic analysis. Qualitative results related to trial participation are covered elsewhere. Here, we focus on QoL and day-to-day functioning. Results Twelve AEUs (eight males) and five spouses (one male) who had worn artificial eyes for 2–65 years took part, and four themes were identified. (1) Impact on day-to-day life: AEUs and their spouses have to adapt to (partial) sight loss, reduced levels of confidence, and social withdrawal. (2) Impact on psychological and emotional wellbeing: distress among AEUs and their spouses can be severe and prolonged, highlight unmet support needs. (3) Challenges with treatment experiences: AEUs experienced negative impact of fragmentation of care and long waiting times. (4) Worries about the future: AEUs mentioned fragility of remaining sight, and concerns around potential need for further treatment. Conclusion Patients and their family members experience negative impact of being an AEU on their everyday lives and quality of life. There is a potential role for psychosocial support services in supporting AEUs and their families even long after eye loss.

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Section: Discussionsupporting

confidence: 87%

“…AEUs can experience a negative impact on psychological and emotional wellbeing, including heightened levels of anxiety and depression [4][5][6]. While some recovery has been reported over time [7], issues may persist.…”

Section: Introductionmentioning

confidence: 99%

Living with an artificial eye: qualitative insights into patient and family member experiences

Boele,

Kawalek,

Nicklin

et al. 2024

Int Ophthalmol

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“…The type of surgery seems to also influence esthetics, facial deformation, discharge, and patient satisfaction with the prosthesis. The most frequent concerns of users of ocular prostheses are the esthetic appearance of the prosthesis in relation to the remaining eye 28,30,34–36,37 . In this study, 7.70% complained about the esthetics of the prosthesis in that its size was excessive or deficient when compared with the size of the remaining eye.…”

Section: Discussionmentioning

confidence: 68%

“…Studies have evaluated the quality of life, stress, and anxiety of individuals after eye amputation, 6–9 as well as studies on adaptation difficulties faced by individuals receiving ocular prostheses and associated factors 3–5,30–43 . However, most of these studies have been retrospective or transversal.…”

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confidence: 99%

The Impact of an Ocular Prosthesis on the Quality of Life, Perceived Stress, and Clinical Adaptation of Anophthalmic Patients: A Clinical and Longitudinal Trial

Makrakis

Araújo

Macedo

et al. 2021

Journal of Prosthodontics

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Purpose This prospective study evaluated and correlated the impact of ocular prostheses on quality of life and stress with socioeconomic level and clinical characteristics. The clinical difficulties and perceptions of patients after ocular rehabilitation were evaluated. Materials and Methods Anophthalmic patients (at least 18 years of age) who were not users of ocular prostheses were recruited. The Medical Outcomes Short‐Form Health Survey (SF‐36) and Perceived Stress Scale (PSS‐10) questionnaires were administered before and after 3 and 6 months of prosthesis installation. Clinical characteristics, difficulties, and perceptions were evaluated by quantitative and descriptive analysis (7 days, 3 months, 6 months). Data were analyzed by the Friedman test and Pearson Correlation test (α = 0.05). Results The final sample consisted of 26 patients. Quality of life showed improvement in the “Bodily Pain” and “General Health” domains. Wearing the prosthesis did not influence perceived stress. The clinical evaluation showed clinical discharge over 6 months and presence of pain only at 7 days. A weak correlation occurred between sociodemographic characteristics and the categories “Role‐Physical” (r = 0.423) and “General Health” (r = 0.494); cause of anophthalmia and “Role‐Physical” (r = –0.471); and type of surgery and “General Health” (r = –0.432). Conclusions According to the results of this study, the provision of ocular prostheses showed positive influence in 2 domains of quality of life and weak correlations with socioeconomic level, type of surgery, and cause of loss. Ocular rehabilitation did not influence stress. The use and care of the prostheses did not affect tissue inflammation, but the discharge was continuous.

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