“…9,15,19,36,37,38,39,40,41,42 The majority of studies (86%) adopt a qualitative approach. 9,15,19,20,22,23,25,26,27,28,29,30,32,33,34,35,36,37,38,39,40,41,42,43,44 In total, this review includes 4,872 participants, of which 3,722 (76%) are parents, 20,21,22,24,25,26,27,28,29,30,31,32,33,34,35,37,43 883 (18%) are family members, 9,…”