Confidentiality of the medical records of HIV-positive patients in the United Kingdom &amp;ndash; a medicolegal and ethical perspective

Williams, M.

doi:10.2147/rmhp.s8997

Cited by 4 publications

(3 citation statements)

References 77 publications

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“…Whilst not bound by a duty to report FGM/C, professional responsibility for action lies with the individual practitioner, with professional confidentiality generally covered by Child Protection laws. 32 …”

Section: Role and Responsibilities Of Health Professionalsmentioning

confidence: 99%

Female genital mutilation/cutting: risk management and strategies for social workers and health care professionals

Costello¹

2015

RMHP

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Female genital mutilation/cutting (FGM/C) is a traditional practice originating in Africa. Its worst forms cause irreparable harm to girls and women and have no medical justification. Based on a literature review of global responses to FGM/C and conversations with Australian women who migrated from FGM/C practicing countries, this paper provides some background on FGM/C and its epidemiology, outlining its prevalence, types, and health risks and complications for women and girls. It discusses risk-prevention strategies, first, for health practitioners in identifying, screening, and supporting women affected by FGM/C and, second, for welfare and social workers and health care professionals to identify, work with, and prevent girls from being cut. Consistent with international trends in addressing the risks of FGM/C, the paper suggests practice responses for coordinated responses between professionals, communities from practicing countries, and governments of different countries.

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Section: Role and Responsibilities Of Health Professionalsmentioning

confidence: 99%

Female genital mutilation/cutting: risk management and strategies for social workers and health care professionals

Costello¹

2015

RMHP

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“…Os riscos de transmissão, por via sexual, de um indivíduo infetado ou portador da doença são elevados e devem ser determinantes quando da ponderação da proteção da privacidade desse individuo relativamente à proteção da saúde de outro ou de outros indivíduos (Willliams, 2011). Se por um lado, uma quebra da privacidade do paciente infetado pode originar discriminação a nível social, económico, profissional e familiar, por outro, a não divulgação dessa informação ao seu parceiro sexual habitual, poderá comprometer de forma grave a sua saúde.…”

Section: A Saúde Públicaunclassified

Eliminação de dados de saúde

Cunha

Ricou

2020

RIB

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O acesso dos pacientes aos seus dados de saúde tem levantado nos últimos anos algumas questões éticas relacionadas com a sua privacidade e segurança. Estas questões abrem caminho para um assunto ainda mais complexo: “O direito ao esquecimento”, ou seja, o direito de um indivíduo solicitar a remoção dos seus dados pessoais de saúde. No presente estudo analisaram-se diversos aspetos associados ao “direito ao esquecimento”, concluindo-se que não deve ser possível universalizar este direito sem se avaliarem as consequências na saúde de determinados indivíduos ou populações, analisando-se caso a caso, através de um conjunto de critérios previamente definidos.

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“…Results are generally not withheld from the EHR except for certain genetic results which are deemed confidential, which is in line with "genetic exceptionalism" (Murray, 1997), namely the practice of treating genetics results differently based on a paternalistic view of patient care. Even though there was a precedent for constraint in the early days of HIV testing (Malmberg, Phan, Harmon, & Nauert, 2012;Williams, 2011), resulting of HIV status in a secure EHR is generally promoted over paper records, so as to help the individual with their personal care and as a mechanism for public health reporting (Malmberg et al, 2012).…”

mentioning

confidence: 99%

Confidential genetic testing and electronic health records: A survey of current practices among Huntington disease testing centers

Eno

Barton

Dorrani

et al. 2019

Molec Gen & Gen Med

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Background Clinical care teams providing presymptomatic genetic testing often employ advanced confidentiality practices for documentation and result storage. However, patient requests for increased confidentiality may be in conflict with the legal obligations of medical providers to document patient care activities in the electronic health record (EHR). Huntington disease presents a representative case study for investigating the ways centers currently balance the requirements of EHRs with the privacy demands of patients seeking presymptomatic genetic testing. Methods We surveyed 23 HD centers (53% response rate) regarding their use of the EHR for presymptomatic HD testing. Results Our survey revealed that clinical care teams and laboratories have each developed their own practices, which are cumbersome and often include EHR avoidance. We found that a majority of HD care teams record appointments in the EHR (91%), often using vague notes. Approximately half of the care teams (52%) keep presymptomatic results of out of the EHR. Conclusion As genetic knowledge grows, linking more genes to late‐onset conditions, institutions will benefit from having professional recommendations to guide development of policies for EHR documentation of presymptomatic genetic results. Policies must be sensitive to the ethical differences and patient demands for presymptomatic genetic testing compared to those undergoing confirmatory genetic testing.

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Confidentiality of the medical records of HIV-positive patients in the United Kingdom – a medicolegal and ethical perspective

Cited by 4 publications

References 77 publications

Female genital mutilation/cutting: risk management and strategies for social workers and health care professionals

Female genital mutilation/cutting: risk management and strategies for social workers and health care professionals

Eliminação de dados de saúde

Confidential genetic testing and electronic health records: A survey of current practices among Huntington disease testing centers

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