Confronting life with rheumatoid arthritis

Melanson, Patricia M.; Downe‐Wamboldt, Barbara

doi:10.1046/j.1365-2648.2003.02595.x

Cited by 27 publications

(43 citation statements)

References 33 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…This is in line with earlier research on how personal factors influence the individual's ability to handle functional impairment through conscious and unconscious strategies (Melanson andDowne-Wamboldt 2003, Iaquinta andLarrabee 2004).…”

Section: Personal Factorssupporting

confidence: 90%

“…Christiansen (1999) even claimed that identities are crafted by what people do and how they do it. Maintaining independency and autonomy is highly validated, as shown in research (Stephens andYoshida 1999, Melanson andDowne-Wamboldt 2003). Research has also shown that people with rheumatoid arthritis cope with, and master, the illness through personal choices and attitudes towards living with a chronic disease, including incorporating the disease into their personal narrative (Iaquinta andLarrabee 2004, Stamm et al 2009).…”

Section: Marit Nicklasson 1 and Hans Jonssonmentioning

confidence: 94%

See 1 more Smart Citation

Experience of Participation as Described by People with Hand Deformity Caused by Rheumatic Disease

Nicklasson

Jonsson

2012

British Journal of Occupational Therapy

View full text Add to dashboard Cite

Objective: Participation as a concept has come into focus as an important aspect of wellbeing and derives from the International Classification of Functioning, Disability and Health. This qualitative study aimed to increase understanding of how hand deformities caused by rheumatic disease influence the individual's potential to continue participating in society by taking into account other people's attitudes. Method: Interviews were carried out with 11 participants with hand deformity associated with a rheumatic disease. Analyses were conducted using comparative methodology and hermeneutic interpretation. Findings: Participation was described as an experience that arises during involvement in an activity or a social context. All the participants experienced restricted participation across a variety of situations. Hand deformity, combined with physical environment, personal attributes and the attitudes of others, was an obstacle to the achievement of full participation. It also became obvious that the participants were not able to consider only the impact of hand deformity without acknowledging other consequences of their rheumatic condition. Conclusion: Personal and contextual factors intertwine and influence the lived experience of participation and the ability to participate. A perspective in rehabilitation that addresses only functions or performance might hinder taking the experience of participation into consideration.

show abstract

Section: Personal Factorssupporting

confidence: 90%

Section: Marit Nicklasson 1 and Hans Jonssonmentioning

confidence: 94%

Experience of Participation as Described by People with Hand Deformity Caused by Rheumatic Disease

Nicklasson

Jonsson

2012

British Journal of Occupational Therapy

View full text Add to dashboard Cite

show abstract

“…In addition, rheumatic diseases cause many stress factors connected with quality of life, such as restrictions on acting and moving, helplessness, pain, and a variety of other limitations. Research into rheumatic patients has been involved with other areas besides biological and physiological changes, which can be linked to the management of chronic patients 40–42 . There has been hardly any research into the promotion of self‐determination among rheumatic patients.…”

Section: Theoretical Backgroundmentioning

confidence: 99%

Self‐determination of patients with rheumatoid arthritis: Model development during action research

Löfman¹,

Häggman‐Laitila

Pietilä

2008

Int J of Nursing Practice

View full text Add to dashboard Cite

The purpose of this article is to describe the content and the development of the model to promote self-determination of patients with rheumatoid arthritis from a point of view of patients and nurses. For the patients the data were gathered using semistructured interviews and for the nurses through three focus groups in the initial and evaluation phases. The data were analysed by themes using qualitative content analysis. The model consisted of the concept of self-determination, impediments to and preconditions for self-determination, promoting and focusing on consequences. Patient's activity was a new view of the concept. Impediments to self-determination were linked to limitations and preconditions to patients' freedom to express themselves. Support developed an important factor promoting self-determination. The results indicate a clear need for various types of supportive nursing care to promote self-participation in patient care.

show abstract

“…RA has a major impact on daily life, especially in the way individuals with RA perform their physical activities. Melanson and Downe-Wamboldt (2003) found that physical limitations in daily life produce the largest disease-related worries.…”

Section: Discussionmentioning

confidence: 99%

“…Findings indicate the need to recommend and support health-enhancing physical activity behaviors in people with RA (Eurenius & Stenström, 2005; Stenström & Minor, 2003). Melanson and Downe-Wamboldt (2003) and Tak (2006) found that physical limitations in daily life provide the largest disease-related worries for the patients. RA has been shown to influence a person’s mood and social life; in particular, feelings of helplessness and uncertainty can lead to anger and depression (Lutze & Archenholtz, 2007).…”

mentioning

confidence: 99%

Body awareness in persons diagnosed with rheumatoid arthritis

Lööf

Johansson

Henriksson

et al. 2014

International Journal of Qualitative Studies on Health and Well

View full text Add to dashboard Cite

Living with rheumatoid arthritis (RA) poses physiological and psychological demands on a person. RA is a autoimmune disease that can cause pain, disability, and suffering. The ability to notice bodily inner sensations and stimuli (body awareness, BA) is described in the literature in ways that could have either a positive or a negative impact on a person’s health. The concept of BA is complex and a thorough understanding is needed about what BA means from the patient’s perspective. This study was therefore conducted to acquire greater insight into this phenomenon. The study is grounded in a phenomenological life-world perspective. Eighteen narrative interviews were conducted in patients (age range 23–78 years) with RA. The interviews were analyzed using the Empirical Phenomenological Psychological method. General characteristics were found running through all 18 interviews, indicating that the disease resulted in a higher degree of negatively toned BA. BA was either a reactive process of searching or controlling after disease-related symptoms or a reactive process triggered by emotions. BA was an active process of taking an inventory of abilities. All participants had the ability to shift focus from BA to the outside world. Four typologies were identified: “A reactive process on symptoms,” “A reactive process on emotional triggers,” “An active process of taking an inventory of abilities,” and “A shifting from BA to the outside world.” In conclusion, because BA can be both positively and negatively toned, health care professionals must have a good understanding of when BA is positive and when it is negative in relation to the patient. RA had caused a higher degree of negatively toned BA. Thus, the ability to shift attention from BA to activity in the outside world could sometimes be beneficial for the patient’s general health.

show abstract

Confronting life with rheumatoid arthritis

Abstract: The findings provide nurses with a better understanding of the experiences, emotions and coping strategies used by older people to manage the adversity of rheumatoid arthritis in daily living.

Cited by 27 publications

References 33 publications

Experience of Participation as Described by People with Hand Deformity Caused by Rheumatic Disease

Experience of Participation as Described by People with Hand Deformity Caused by Rheumatic Disease

Self‐determination of patients with rheumatoid arthritis: Model development during action research

Body awareness in persons diagnosed with rheumatoid arthritis

Contact Info

Product

Resources

About