Considerations in Developing and Delivering a Nonpharmacological Intervention for Symptom Management in Lung Cancer: The Views of Patients and Informal Caregivers

Ellis, Jacqueline; Wagland, Richard; Tishelman, Carol; Williams, Mari Lloyd; Bailey, Chris; Haines, Jemma; Caress, Ann Louise; Lorigan, Paul; Smith, Jaclyn A.; Booton, Richard; Blackhall, Fiona; Molassiotis, Alex

doi:10.1016/j.jpainsymman.2011.12.274

Cited by 44 publications

(53 citation statements)

References 27 publications

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“…As an iterative process, it enabled amendment and additions to the analytic framework throughout, grounding the analysis in participants' accounts. The Framework method allowed for dyadic analysis (Akeson et al, 2007;Ellis et al, 2012;Singh et al, 2010), aided by separate interviews for patients and their partners (Eisikovits & Koren, 2010).…”

Section: Designmentioning

confidence: 99%

Shared recovery: Couples' experiences after treatment for colorectal cancer

White

Newman

2016

European Journal of Oncology Nursing

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DisclosureThe authors declare no conflict of interest or external funding. COUPLES' EXPERIENCES AFTER COLORECTAL CANCER AbstractPurpose: Completing cancer treatment involves significant challenges for patients as well as their families. This study aimed to explore couples' experiences of colorectal (bowel) cancer, focusing on the transition after treatment.Method: Separate, semi-structured interviews were conducted within 12 months of completing treatment with a purposeful sample of ten participants, comprising five patientpartner dyads. Data were analysed using the Framework approach, incorporating dyadic analysis to compare narratives within as well as between couples.Results: Three main themes were elaborated: the process of recovery, the relationship dynamics, and the mixed experiences of healthcare services. The lasting impact of cancer following completion of treatment was evident for patients as well as their partners, and was shaped by their reciprocal influence on each other.Conclusions: The findings underscore the value of a systemic approach for supporting couples during recovery from colorectal cancer and demonstrate the need for consistency of healthcare provision across the cancer trajectory, including post-treatment.

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Section: Designmentioning

confidence: 99%

Shared recovery: Couples' experiences after treatment for colorectal cancer

White

Newman

2016

European Journal of Oncology Nursing

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“…Ellis et al have interviewed patients and results revealed that they would want flexible, practical interventions that would provide strategies to cope with different symptoms and specific problems, and that caregivers could be taught to carry out. 25 This information aided development of a complex intervention for which Dr Yorke's group have recently completed a study evaluating its feasibility and acceptability in management of the respiratory distress symptom cluster. Results are encouraging and warrant further investigation in a fully powered randomised controlled trial.…”

Section: Dr Janelle Yorkementioning

confidence: 99%

What's trending in breathlessness research? Proceedings from the 8th Annual Meeting of the Breathlessness Research Interest Group

Chin

Butcher

Spathis

et al. 2015

Progress in Palliative Care

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“…Patients with cancer diagnoses were the next studied population of focus (n=13), [38][39][40][41][42][43][44][45][46][47][48][49][50] followed by patients with interstitial lung disease (n=8), [51][52][53][54][55][56][57][58] and lastly one study focussed on patients with Huntington's disease (Table 1) Page S35…”

Section: Resultsmentioning

confidence: 99%

“…41 Usually, only breathlessness is targeted for treatment, leaving the other symptoms present. When patients with lung cancer were asked what were important characteristics of nonpharmacological interventions to manage their symptoms they mentioned the importance of seeing benefits in the short-term, easy/simple exercises they could fit into their routine, the timing of suggested interventions, and the venue of where the intervention would be given.…”

Section: Cancermentioning

confidence: 99%

A Review of Non-Pharmacological Pulmonary Rehabilitation for Patients Receiving Palliative Care

Dawson¹,

Freeman²,

Adam³

2017

Pulm Res Respir Med Open J

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Introduction: Dyspnea is common in patients experiencing chronic and malignant lung conditions. It is a very distressing symptom that often results in anxiety and depression. Pulmonary rehabilitation together with palliative care can provide physical, psychological, and quality of life (QoL) improvements in patients that receive it. Methods: This literature review examined articles published in the last 5 years to give a current summary of the scientific literature regarding pulmonary rehabilitation for persons receiving palliative care treatment. Focus was placed on patients with chronic obstructive pulmonary disease, cancer, interstitial lung disease, and Huntington's disease. From an initial 218 articles, 56 met the inclusion criteria for this review. Results: Prominent themes that emerged were the beneficial effects of pulmonary rehabilitation, even in late stages of lung disease, and the positive impact palliative care can have on the patient. Simultaneously, there were considerable barriers to access mentioned throughout the literature, which prevents patients from receiving either pulmonary rehabilitation and/or palliative care at the end-of life. Educating health care providers on the benefits of pulmonary rehabilitation, and providing timely referrals to pulmonary rehabilitation and palliative care is important. Understanding factors which may prompt a patient to attend and complete, or discontinue, pulmonary rehabilitation treatment is important. Conclusion: Although, pulmonary rehabilitation itself is beneficial, meeting the patient where they are at and pairing rehabilitation with patient empowerment and motivating therapies such as mindfulness-based therapy may improve the patient's QoL and care at the end-of-life. Most pulmonary rehabilitation programs are focused and tailored to patients with chronic obstructive pulmonary disease. Exploring how tailored pulmonary rehabilitation programs may be effective in other populations, such as patients with interstitial lung disease, Huntington's disease, and end-stage cancer, is warranted.

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Considerations in Developing and Delivering a Nonpharmacological Intervention for Symptom Management in Lung Cancer: The Views of Patients and Informal Caregivers

Cited by 44 publications

References 27 publications

Shared recovery: Couples' experiences after treatment for colorectal cancer

Shared recovery: Couples' experiences after treatment for colorectal cancer

What's trending in breathlessness research? Proceedings from the 8th Annual Meeting of the Breathlessness Research Interest Group

A Review of Non-Pharmacological Pulmonary Rehabilitation for Patients Receiving Palliative Care

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