Considering Culture in the Design and Evaluation of Health IT for Patients

Montague, Enid; Winchester, Woodrow W.; Valdez, Rupa S.; Vaughn-Cooke, Monifa; Perchonok, Jennifer

doi:10.1177/1541931213571242

Cited by 7 publications

(3 citation statements)

References 21 publications

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“…Understanding cultural factors is essential because they can influence the way an individual interprets health information, how they define symptoms, and if and who they decide should provide them care [ 75 ]. Therefore, individuals’ sociocultural factors must be considered in the design and use of culturally informed HIT [ 84 ]. This insight is vital because cultural competence is specified as a critical aspect in developing technology to help reduce health inequity globally; in fact, this has become a popular concept in various countries for improving quality of care, specifically access to respectful and responsive health care [ 85 ].…”

Section: Discussionmentioning

confidence: 99%

The Efficacy of Health Information Technology in Supporting Health Equity for Black and Hispanic Patients With Chronic Diseases: Systematic Review

Senteio¹,

Murdock²

2022

J Med Internet Res

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Background Racial inequity persists for chronic disease outcomes amid the proliferation of health information technology (HIT) designed to support patients in following recommended chronic disease self-management behaviors (ie, medication behavior, physical activity, and dietary behavior and attending follow-up appointments). Numerous interventions that use consumer-oriented HIT to support self-management have been evaluated, and some of the related literature has focused on racial minorities who experience disparate chronic disease outcomes. However, little is known about the efficacy of these interventions. Objective This study aims to conduct a systematic review of the literature that describes the efficacy of consumer-oriented HIT interventions designed to support self-management involving African American and Hispanic patients with chronic diseases. Methods We followed an a priori protocol using the PRISMA (Preferred Reporting Items for Systematic Reviews and Meta-Analyses)-Equity 2012 Extension guidelines for systematic reviews that focus on health equity. Themes of interest included the inclusion and exclusion criteria. We identified 7 electronic databases, created search strings, and conducted the searches. We initially screened results based on titles and abstracts and then performed full-text screening. We then resolved conflicts and extracted relevant data from the included articles. Results In total, there were 27 included articles. The mean sample size was 640 (SD 209.5), and 52% (14/27) of the articles focused on African American participants, 15% (4/27) of the articles focused on Hispanic participants, and 33% (9/27) included both. Most articles addressed 3 of the 4 self-management behaviors: medication (17/27, 63%), physical activity (17/27, 63%), and diet (16/27, 59%). Only 15% (4/27) of the studies focused on follow-up appointment attendance. All the articles investigated HIT for use at home, whereas 7% (2/27) included use in the hospital. Conclusions This study addresses a key gap in research that has not sufficiently examined what technology designs and capabilities may be effective for underserved populations in promoting health behavior in concordance with recommendations.

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Section: Discussionmentioning

confidence: 99%

The Efficacy of Health Information Technology in Supporting Health Equity for Black and Hispanic Patients With Chronic Diseases: Systematic Review

Senteio¹,

Murdock²

2022

J Med Internet Res

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“…Researchers that examine health disparities often look at socio-demographic factors such as race, sexual identity, gender, socio-economic status, and their effect on disease prevention and management and health outcomes [58]. Because of the known effects that demographics can have on health outcomes, some health technology design researchers also advocate for exploring culturally-informed approaches for better engaging different populations [2,48,49]. Benda and colleagues note that not considering inclusivity in the design of healthcare technologies can introduce harms beyond use or non-use [2].…”

Section: Culturally Informed Design and Digital Health Toolsmentioning

confidence: 99%

Bridging Community, History, and Culture in Personal Informatics Tools

Martin-Hammond

Purnell

2022

Proc. ACM Hum.-Comput. Interact.

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A healthy diet and increased physical activity are essential for reducing the prevalence of cardiovascular disease and related deaths, a worldwide public health concern that disproportionately affects Black American communities. Still, Black Americans can face unique challenges meeting dietary and physical activity requirements due to inequities in access and quality of care, environmental and local factors, and difficulties in changing individual health behaviors. Personal informatics and self-tracking tools are one way of increasing awareness of health behaviors to motivate behavior change. However, there are still gaps in knowledge about what encourages different users to engage with personal informatics tools over time, particularly when used in collaborative, community-health settings. This paper contributes a nuanced understanding of fifteen participants' reasons for engaging in an existing community-based health education and behavior change program that combines collaborative self-tracking with culturally relevant content and social engagement to motivate heart-healthy behaviors. We illustrate participants' positive and negative experiences engaging in self-tracking and collaborative tasks during the program. We also discuss how participants envision that integrating technology might support or hinder participant engagement and the work of deploying community-based public health interventions. Finally, we discuss design implications for culturally informed, community-based personal informatics tools that engage Black American's in heart-healthy activities.

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“…Many complications and accidents in various domains have been attributed to culture. As suggested by many recent publications and panels cited in the Human Factors Proceedings in areas of healthcare (Montague, Winchester, Valdez, Vaughn-Cooke, & Perchonok, 2013), and teams (Strauch, 2010), culture has become an important area of exploration. While researchers have carried out cross-cultural studies highlighting the importance and relevance of this work (Altman-Klein & Kuperman, 2008;Altman-Klein & McHugh, 2005;Rasmussen et al, 2009;, little advice on how to carry out these kinds studies seems to exist Still other researchers (Salas et al, 2008) have called for the necessity to carry out cross-cultural research in teams.…”

Section: Introductionmentioning

confidence: 99%

Conducting Cross National Research

Endsley

Reep

McNeese

et al. 2015

Proceedings of the Human Factors and Ergonomics Society Annual

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Research in cross-cultural contexts has remained largely unexplored due to the complexities and complications that arise during such studies. While many cross-cultural studies have been conducted in a variety of contexts, little has been published with regard to caveats, practicalities, and potential impediments. This paper presents a practical lessons learned approach derived from a recent cross-cultural team cognition study executed at a large eastern United States university and a comparable institution in the United Kingdom. While seeking to carry out cross-cultural research, we encountered issues with communication, coordination, and practical requirements that had a strong impact on experimental design and ultimately, on outcomes. This paper presents several of the lessons learned from this cross-site, cross-cultural research project with particular focus on the underlying aspects of designing, preparing, and implementing cross-cultural research.

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Considering Culture in the Design and Evaluation of Health IT for Patients

Cited by 7 publications

References 21 publications

The Efficacy of Health Information Technology in Supporting Health Equity for Black and Hispanic Patients With Chronic Diseases: Systematic Review

The Efficacy of Health Information Technology in Supporting Health Equity for Black and Hispanic Patients With Chronic Diseases: Systematic Review

Bridging Community, History, and Culture in Personal Informatics Tools

Conducting Cross National Research

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