Contributions of Children to the Care of Adults With Diabetes

Jacobson, Sharol F.; Wood, Felecia G.

doi:10.1177/014572170403000517

Cited by 21 publications

(20 citation statements)

References 6 publications

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“…Much of the data was qualitative, or utilized semi-structured interviews and focus groups designed for the research project (Beach 1997;Gates and Lackey 1998;Jacobson and Wood 2004;Keigher et al 2005;Williams et al 2009;Nichols et al 2013;Kavanaugh 2014;Kavanaugh et al 2015). Three studies used a secondary dataset, collected as part of the ''What Works'' survey of 6-12th grade students in Palm Beach County, Florida (Siskowski 2006;Diaz et al 2007;Cohen et al 2012).…”

Section: Sources and Types Of Evidencementioning

confidence: 99%

“…Three studies used a secondary dataset, collected as part of the ''What Works'' survey of 6-12th grade students in Palm Beach County, Florida (Siskowski 2006;Diaz et al 2007;Cohen et al 2012). Almost all of the studies were conducted with the caregiving youth themselves, with three studies using the family care-recipient as the interviewee (Jacobson and Wood 2004;Keigher et al 2005;Bauman et al 2006). One study used US population and economic data to estimate the economic contributions of youth caregivers (Viola et al 2012), yet no studies collected data from health care professionals, school personnel, or peers.…”

Section: Sources and Types Of Evidencementioning

confidence: 99%

“…In her analysis of 6210 Palm Beach middle school students who were caregivers, Siskowski (2006) found 31 % of caregivers were African American and Hispanic compared to 37 % who were White Caucasian. Using the same database, Diaz et al (2007) reported on a sample of 2553 Latino young caregivers, while, Jacobson and Wood (2004), reported 63 % African American and Hispanic, and 35 % White Caucasian.…”

Section: Race/ethnicitymentioning

confidence: 99%

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Unacknowledged Caregivers: A Scoping Review of Research on Caregiving Youth in the United States

et al. 2015

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With over 43 million family caregivers living in the United States, families are the largest providers of informal care in this country. Despite the extensive caregiving literature about prevalence, characteristics of care providers and care recipients, risks to caregivers' health and well-being, economic costs, impact on personal and family well-being, evidence-based interventions, and model community-based programs and supports for adult caregivers, gaps exist, specifically relating to caregiving youth, i.e., children under the age of 18 years. With no previous comprehensive review to assess what is known about US youth caregivers, a scoping review, focusing on mapping the key concepts, including the main sources and types of evidence available, was undertaken. By drawing conclusions about the overall state of research activity and identifying research gaps and priorities in the existing literature, this study provides a baseline assessment of youth caregiver research published in peer-reviewed journals from 1996 to 2015. A total of 22 articles were included in the analysis. Beyond inconsistencies with naming and defining young/youth caregivers, the review found significant knowledge gaps in crucial areas including SES status of families who rely on caregiving youth, the role of race, ethnicity and culture, support across schools, communities and medical professions, and the lack of caregiving programs and polices inclusive of youth under 18. The results underscore the need for further inquiry, including longitudinal study, into the lives and experiences of caregiving youth, informing the development of youth caregiver focused supports and polices across the US.

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Section: Sources and Types Of Evidencementioning

confidence: 99%

Section: Sources and Types Of Evidencementioning

confidence: 99%

Section: Race/ethnicitymentioning

confidence: 99%

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Unacknowledged Caregivers: A Scoping Review of Research on Caregiving Youth in the United States

et al. 2015

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“…Numbers of minor age children providing caregiving to ill parents or family members are difficult to determine as health care providers often are not aware of their activities, and families may not disclose children’s contributions. Clinical reports describe these children as unrecognized caregivers for persons in their families with chronic or debilitating conditions (Baago, 2004; Banks et al, 2002; Beach, 1994; Gates & Lackey, 1998; Godsall, Jurkovic, Emsoff, Anderson, & Stanwyk, 2004; Jacobson & Wood, 2004; Rotherham-Borus et al, 2006; Valiakalayil, Paulson, & Tibbo, 2004). These reports document that young caregivers may be invisible outside the home due to not seeking support, not socializing with peers who are caregivers, fear of disclosure to social services, fear of bullying at school, adhering to a requirement of secrecy within the family, and/or hesitation to express feelings and emotions within the family unit.…”

mentioning

confidence: 99%

Caregiving by Teens for Family Members With Huntington Disease

et al. 2009

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The purpose of this report is to describe caregiving by teens for family members with Huntington disease (HD). Thirty-two teens in HD families in the United States and Canada participated in focus groups from 2002 to 2005 in a study to identify concerns and strategies to manage concerns. An unexpected finding was 24 (77%) described caregiving activities. Descriptive analysis of caregiving statements identified themes of Tasks and Responsibilities, Subjective Burden, Caregiving in Context of Personal Risk for HD, and Decisional Responsibility. Teens took an active part in nearly all aspects of care with the exception of contacting health care providers and attending doctors’ appointments. Some described emotional distress, and many provided care knowing they had the potential to develop HD. Teens recognized the need for decisions but lacked the authority to make these decisions. Findings may be relevant for other teens who strive to meet caregiver and student roles and developmental tasks.

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“…In past decades, a growing literature has reported on the increased responsibilities and contributions of caregiving among children of parents with non‐AIDS illness such as mental disorders, cancer, diabetes and other chronic illnesses (Gates & Lackey 1998; Aldridge & Becker 1999; Jacobson & Wood 2004; Aldridge 2006; Cooklin 2006). Caregiving for family members in these conditions is often emotionally and physically demanding.…”

Section: Introductionmentioning

confidence: 99%

‘I felt I have grown up as an adult’: caregiving experience of children affected by HIV/AIDS in China

Zhang

Kaljee

et al. 2009

Child

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While the increased caregiving responsibilities among children reflected some cultural beliefs and had some positive effect on personal growth, the caregiving experience generally negatively effected the children's physical and mental health and schooling. The findings in the current study suggest that community-based caregiving support is necessary in areas with high prevalence of HIV and limited resources, especially for the families lacking adult caregivers. In addition, social and psychological support should be made available for children participating in family caregiving.

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Contributions of Children to the Care of Adults With Diabetes

Abstract: Children of both sexes and 4 racial/ethnic groups provided a broad range of services to adults with diabetes with little preparation. Diabetes educators should consider if and how they can assess and include child caregivers in diabetes education.

Cited by 21 publications

References 6 publications

Unacknowledged Caregivers: A Scoping Review of Research on Caregiving Youth in the United States

Unacknowledged Caregivers: A Scoping Review of Research on Caregiving Youth in the United States

Caregiving by Teens for Family Members With Huntington Disease

‘I felt I have grown up as an adult’: caregiving experience of children affected by HIV/AIDS in China

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