Cooperation between parents in caring for diabetic children: relations to metabolic control and parents' field-dependence-independence

Rydén, Olof; Johnsson, Per; Nevander, Lars; Sjöblad, Sture; Westbom, Lean

doi:10.1016/0168-8227(93)90082-g

Cited by 11 publications

(18 citation statements)

References 14 publications

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“…Fathers interviewed in a study noted the increased strength and quality of marital relationships, particularly when approaching the illness as a team (11) . Other studies highlighted that a child ' s illness placed enormous amounts of stress on the parents ' relationship (10,39,40) . For interviewees in a couple of studies, the marriage was a source of instability and stress in the long-term.…”

Section: Long-term Outcomesmentioning

confidence: 99%

Detached, distraught or discerning? Fathers of adolescents with chronic illness: a review of the literature

Goldstein

Akré

Bélanger

et al. 2013

International Journal of Adolescent Medicine and Health

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Parenting a child with chronic disease provides a unique set of challenges for both mothers and fathers throughout all phases of the illness. However, fathers of these children are under-represented in existing research. This review focuses on the fathers of children with chronic disease included in 44 original articles. We address the challenges to the father ' s role as breadwinner, leader and strength-giver in the family. Three time-periods describe the obstacles fathers tackle when parenting children with chronic disease: a) diagnosis and short-term, characterized by distress, isolation and uncertainty; b) the mastery period, characterized by the struggle to establish routine and by support and spiri tuality; and c) the long-term, characterized by relationship and personality change, worries and bereavement. Overall, whilst current research has revealed some key themes pertaining to fathers of children with chronic disease, further studies are required to foster the development of support mechanisms for the specific needs of these fathers.

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Section: Long-term Outcomesmentioning

confidence: 99%

Detached, distraught or discerning? Fathers of adolescents with chronic illness: a review of the literature

Goldstein

Akré

Bélanger

et al. 2013

International Journal of Adolescent Medicine and Health

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“…Ten qualitative descriptive studies yielded some common concepts (Ryden et al. 1993, Kyngas & Barlow 1995, Standiford et al.…”

Section: Resultsmentioning

confidence: 99%

“…Control was primarily identified as non‐productive. Although control was identified explicitly in two studies, the examples in one of these consisted of a list of adjectives (rigid, strict, inconsistent, negative) that were not further defined (Ryden et al. 1993), and in the other study (Kyngas & Barlow 1995) examples of control (frequent questions about self‐care, nagging, strictness) were similar to those that other researchers had labelled as indicators or sources of conflict (Weinger et al.…”

Section: Resultsmentioning

confidence: 99%

“…Little is known from these studies about mutual communication between adolescent and parent. Only two studies in this group included both parental and adolescent perspectives on communication (Ryden et al. 1993, Hanna & Guthrie 2001).…”

Section: Resultsmentioning

confidence: 99%

“…Several authors in this review addressed the importance of respect for the adolescent’s developing autonomy (Ryden et al. 1993, Standiford et al.…”

Section: Discussionmentioning

confidence: 99%

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Parent–adolescent communication and diabetes: an integrative review

Dashiff

Hardeman

McLain

2008

Journal of Advanced Nursing

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Nurses caring for adolescents with type 1 diabetes need to consider family relationships and communication patterns in achieving health outcomes. Studies of communication, including perspectives of mothers and fathers, and the influence of family structure, economics and culture are needed to build a framework of parent-adolescent interaction and health outcomes for adolescents with type 1 diabetes.

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Patients’ perspectives on screening for disordered eating among adolescents with type 1 diabetes

et al. 2023

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Purpose People with type 1 diabetes have an increased risk of disordered eating (DE) and eating disorders (ED). Screening is recommended however little is known about patients’ perspectives on screening questionnaires. This paper reports qualitative analyses of patients’ perspectives on the questionnaire Diabetes Eating Problem Survey Revised (DEPS-R), including acceptability, attitudes, and cognitive understanding. Research design and methods 15 adolescents with type 1 diabetes between 11 and 18 years, were interviewed. A semi-structured format and a qualitative Interpretive Descriptive (ID) methodology was chosen. Results The analyses identified four themes: (1) The Questionnaire, (2) Reframing Diabetes Visits, (3) This is (not) for me, and (4) Out in the Open. The DEPS-R was completed with-in 5–10 min. with no technical difficulties. The questionnaire altered the diabetes visit for some, creating a new dialog, and time for self-reflection. Adolescents appreciated the direct approach in the questionnaire, and showed willingness to complete the questionnaire, when presented to them by a health care professional (HCP). One item in the DEPS-R proved difficult to understand for some participants. Conclusion The study highlights DEPS-R as a clinically relevant screening questionnaire. Completing DEPS-R prior to a consultation opens the door to a consultation that invites the adolescent to address matters of eating behavior. Our findings suggest that systematic screening of DE/ED using the DEPS-R is both accepted and welcomed by adolescents with type 1 diabetes. Future research should focus on a potential update of selected items in DEPS-R. Level of evidence V – qualitative study.

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Cooperation between parents in caring for diabetic children: relations to metabolic control and parents' field-dependence-independence

Cited by 11 publications

References 14 publications

Detached, distraught or discerning? Fathers of adolescents with chronic illness: a review of the literature

Detached, distraught or discerning? Fathers of adolescents with chronic illness: a review of the literature

Parent–adolescent communication and diabetes: an integrative review

Patients’ perspectives on screening for disordered eating among adolescents with type 1 diabetes

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