Coping, Attributions, and Health Functioning Among Adolescents with Chronic Illness and Their Parents: Reciprocal Relations Over Time

D'Angelo, Christina; Mrug, Sylvie; Grossoehme, Daniel H.; Schwebel, David C.; Reynolds, Nina; Reynolds, Kimberly

doi:10.1007/s10880-018-9597-0

Cited by 11 publications

(4 citation statements)

References 46 publications

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“…In studies involving children or children and parents (guardians), both patients and their caregivers used acceptance strategies and emotional-focused coping [11]. Furthermore, many coexisting relationships between adolescents and religious parents and spiritual coping [33] have emerged. In the study by Clavé S et al, adolescents used active and avoidance coping strategies [35].…”

Section: Discussionmentioning

confidence: 99%

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Coping with child’s disease by children and their parents (guardians) – a systematic review of the literature

Bąk,

Zarzycka

2022

Pielegniarstwo XXI Wieku / Nursing in the 21st Century

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Introduction. Illness is a stressful experience for a sick child and its parents (guardians). Coping and studying specific coping behaviors of parents and children with the disease are an essential part of care. Aim. Presentation of available research results in English and/or Polish, carried out by researchers in the field of coping strategies of children and their parents (guardians) with the child’s disease. Material and methods. The systematic review was conducted in accordance with the Preferred Reporting Items for Systematic Review and Meta Analyzes (PRISMA 2020) statement. Electronic databases searched in May 2021 included PubMed, Scopus and Web of Science. Methodological limitations demonstrated using the Critical Skills Appraisal Program (CASP) check-lists package. In total 42 articles were qualified for the analysis. Results. The analysis of the publications showed that children and their parents most often cope with the disease through social support, active coping, emotional-focused coping, referring to religion and avoidance. Conclusions. Conscious use of coping strategies may contribute to better results in the treatment undertaken and allow the child and its parents to feel in control of the stressful situation in which they find themselves. Knowing about parents’ and child’s coping strategies can be helpful in developing childcare plans.

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Section: Discussionmentioning

confidence: 99%

“…Perhaps it is a sign of changes in civilization or cultural conditions. In studies, many parents used optimism and optimistic defining of the situation, regardless of the events that took place in their lives [17,23,24,30,31,33,42,48]. Avoidance and dysfunctional coping also appeared among the coping strategies used.…”

Section: Discussionmentioning

confidence: 99%

Coping with child’s disease by children and their parents (guardians) – a systematic review of the literature

Bąk,

Zarzycka

2022

Pielegniarstwo XXI Wieku / Nursing in the 21st Century

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“…Our findings also replicate those of prior studies demonstrating high emotional distress in parents caring for children with JM, juvenile‐onset SLE, and JIA, as well as negative impacts on siblings and family relations (7,22,24). Parental and child distress exert bidirectional, longitudinal effects on emotional health trajectories of children with chronic illness (25,26). Given that unacknowledged parental distress may itself lead to poorer child emotional health outcomes, our study findings support implementation of emotional health evaluation and treatment approaches that include parents and other family members, as proposed in other pediatric chronic illness populations (27).…”

Section: Discussionmentioning

confidence: 99%

Parent Perspectives on Addressing Emotional Health for Children and Young Adults With Juvenile Myositis

Ardalan

Adeyemi

Wahezi

et al. 2020

Arthritis Care & Research

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Objective. To assess parent perspectives regarding the emotional health impact of juvenile myositis (JM) on patients and families, and to assess preferences for emotional health screening and interventions. Methods. Parents of children and young adults with JM were purposively sampled for participation in focus groups at the Cure JM Foundation National Family Conference in 2018. Groups were stratified by patient age group (6-12, 13-17, and 18-21 years), and conversations were audiorecorded, transcribed verbatim, and co-coded via content analysis, with subanalysis by age group. A brief survey assessed preferences for specific emotional health interventions. Results. Forty-five parents participated in 6 focus groups. Themes emerged within 2 domains: emotional challenges, and screening and interventions. Themes for emotional challenges comprised the impact of JM on: 1) patient emotional health, particularly depression and anxiety; 2) parent emotional health characterized by sadness, grief, anger, guilt, and anxiety; and 3) family dynamics, including significant sibling distress. Subanalysis revealed similar themes across age groups, but the theme of resiliency emerged specifically for young adults. Themes for emotional health screening and interventions indicated potential issues with patient transparency, several barriers to resources, the facilitator role of rheumatology providers, and preferred intervention modalities of online and in-person resources, with survey responses most strongly supporting child/parent counseling and peer support groups. Conclusion. JM is associated with intense patient and family distress, although resiliency may emerge by young adulthood. Despite existing barriers, increasing access to counseling, peer support groups, and online resources with rheumatology facilitation may be effective intervention strategies.

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“…Milly explained: “I wouldn't want my parents and friends worrying about it because it doesn't really hurt me and isn't negative.” Other barriers involved being disbelieved or misunderstood, which could deter the young person from seeking further help: “parents said I was lying and have never helped me with any mental/emotional problems I've had, so I don't trust them or anyone else they are related to” (A, 14). Research around adolescent health more broadly connects the functioning of young people to the coping styles displayed by, and attributions of, their parents (e.g., D'Angelo et al, 2019). Within the data, participants described an awareness that parental stress may exacerbate their own stress and that of the voice(s), which formed another barrier to discussing their experiences.…”

Section: Analysis and Discussionmentioning

confidence: 99%

Young people's narratives of hearing voices: Systemic influences and conceptual challenges

Parry

Loren

Varese

2020

Clin Psychology and Psychoth

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Despite the prevalence of voice hearing in childhood and adolescence, little qualitative research has been undertaken with young people directly to advance phenomenological and aetiological insights into their experiences and interpretations.Consequently, the researchers sought demographic, contextual, and qualitative data from 74 young people from eleven countries, aged 13-18 years (28% = male; 61% = female; 21% = Transgender and Gender Non-Binary [TGNB]), who selfidentified as hearing voices. A Foucauldian-informed narrative analysis yielded four analytic chapters, offering novel perspectives into individual, relational, systemic, and cultural interpretative narratives surrounding multisensory and multi-self voice hearing. Overall, young people reported heterogenous experiences of voice hearing and associated sensory experiences, and most participants reported voice hearing beginning between ages 8 and 11. Further, the emotions felt by the child, as well as reactions displayed by people around the child in relation to the voices, influenced voice-related distress and the nature of the voices in a triadic relationship. A continuum of multisensory features of voice content, nature, and relational significance is tentatively proposed to capture the breadth and depth of voice hearing for adolescents to offer a possible framework for future study and intervention design. Specifically, participants described that voice-related distress could be exacerbated by observed anxiety or internalized stigma about voice hearing, social isolation, and attribution to illness. These findings suggest that we may need to reconsider how the experience of hearing voices in childhood influences their relationships and how relationships influence the voice hearing experience. Further, young people seem to have a broad understanding of what the term "hearing voices" means, which could inform how researchers and practitioners work with this group of young people. Finally, participants described benefitting from multisensory coping strategies, such as imagery and meditation, which could offer important considerations for tailoring therapeutic interventions for adolescent voice hearers.

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Coping, Attributions, and Health Functioning Among Adolescents with Chronic Illness and Their Parents: Reciprocal Relations Over Time

Cited by 11 publications

References 46 publications

Coping with child’s disease by children and their parents (guardians) – a systematic review of the literature

Coping with child’s disease by children and their parents (guardians) – a systematic review of the literature

Parent Perspectives on Addressing Emotional Health for Children and Young Adults With Juvenile Myositis

Young people's narratives of hearing voices: Systemic influences and conceptual challenges

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