Coping Behaviors in Parents of Children with Thalassemia major

Kermansaravi, Fatihe; Najafi, Fereshteh; Rigi, Somaye

doi:10.5812/msnj.81173

Cited by 6 publications

(8 citation statements)

References 15 publications

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“…Prayers was perceived by caregivers as a strategy to express emotions, feelings and support for expressing their hopes and wishes for their child. The same is true in the study by Kermansaravi et al, 17 which found that parents of the children with thalassemia used coping behaviors by turning to God since this can strengthen the feeling of mental stability.…”

Section: Spiritualitysupporting

confidence: 59%

“…As such, the findings from the studies were presented as a narrative summary under five core themes: illness belief, health literacy, social interaction and communication, social and family support, and spirituality. Full-text articles assessed for eligibility (n= 57) Wacharasin et al 2015 4 Anum & Dasti 2016 14 Efe et al 2012 15 Nabors et al 2013 16 Kermansaravi et al 2018 17 Chusri et al 2019 18 Maheen et al 2015 19 Zaheer et al 2015 20 Habibzadeh et al 2012 21 Gold…”

Section: Search Resultsmentioning

confidence: 99%

“…Family members felt an emotional support from their social support network. Also, the study by Kermansaravi et al 17 found that approximately 70.9 % of the parents in the study tried to talk to other people or other families who were in a similar situation.…”

Section: Social and Family Supportmentioning

confidence: 95%

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Integrative Review for Factors Related to Family Functioning in the Family Living with the Children with Thalassemia

Punaglom

Mangkarakeree²

2020

bkkmedj

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Integrative Review for Factors Related to Family Functioning in the Family Living with the Children with Thalassemia F amily is a crucial support system for all family members, especially when faced with chronic illnesses including thalassemia. 1 Thalassemia is an inherited disease that requires continuous care. The standard treatments for children living with thalassemia are folic acid supplements, blood transfusion, iron chelation therapy, and splenectomy or stem cell transplantation in selected cases. Children living with thalassemia inevitably encounter the immense impacts of this inherited disease and its treatment, as well as needing to continue receiving care from their parents throughout their life. This situation seems likely to be the challenge event that triggers the adaptation of the entire family to meet the increased demand and the complex need of children living with thalassemia. 2 The goal for caring for children living with thalassemia focuses on the children adapting well to their illness, and to be fulfilled with the feeling of responsiveness from their family to allow them to meet their developmental needs as much as possible. However, this depends upon the limitations of thalassemia. This reflects the necessity of family functioning at a high level as an important mechanism to drive family tasks to reach those goals. Family functioning refers to the capability of the whole family to maintain the function of the entire family, consisting of problem-solving, communication, role, affective involvement, affective responsiveness, and behavior control in order to provide a setting for the social, psychological, and biological development and maintenance of family members. 3 In other words, family functioning shows the adaptive ability of the whole family in terms of how the family manages the care of children living with thalassemia and the extent to which they are able to incorporate thalassemia into their daily lifes. 3,4 By achieving a high level of family functioning, this will result in the family providing the best care for children living with thalassemia resulting in a healthy well-being for children. 5 However, there is widespread recognition that caring for

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Section: Spiritualitysupporting

confidence: 59%

Section: Search Resultsmentioning

confidence: 99%

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Integrative Review for Factors Related to Family Functioning in the Family Living with the Children with Thalassemia

Punaglom

Mangkarakeree²

2020

bkkmedj

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“…It concluded that the most prevelant coping behavior used by mother and father include "I read more about the medical problems that worry me and turn to god" and "I show that I am strong". 7 The current study concluded that the most expressed coping behavior used by caregivers was "Talking with the doctor about my concerns, about my child(ren) with the medical condition" and "believing that my child is getting the best medical care possible".…”

Section: Discussionmentioning

confidence: 80%

Health promotion practices and coping behaviors among caregivers of children suffering from thalassemia major

Abhilasha¹,

Thakur

Deepika³

et al. 2021

IJMPO

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According to the Global Health Organisation thalassemia is the most prevalent genetic disorder which immensely affect the life of about 100,000 infants in over 60 countries. In India, thalassemia major is also the most prevalent genetic disorder. As indicated by the national statistics report, 22,000 patients of thalassemia major exist in our country. Thalassemia major is a chronic disease which has a long treatment regimen thus putting the affected children and their caregivers through a variety of challenges both physically and mentally. To assess the health promotion practices and coping behaviors among parents/caregivers of children suffering from Thalassemia Major.A descriptive study was conducted in the thalassemia clinic, APC, PGIMER, Chandigarh. Data was collected from 70 parents of thalassemic children with age group of 4 to 17 years on Socio Demographic Profile, clinical profile, Coping Health Inventory of Parents (CHIP) and Health Promotion Practices (HPP). The study showed that 51.9% caregivers of thalassemic children reported that they considered the items enlisted in CHIP to be moderately helpful, 45.2% reported them to be extremely helpful while according to 2.9% of the subjects, they were minimally helpful. All the subjects were in the “always” level of the HPP i.e. caregivers were following health promotion practices. This study also revealed that majority of parents (61%) did not receive any genetic counselling during their first pregnancy. The study concluded the association between major study variables like Health Promotion practices (HPP) and Coping Health Inventory Of Parents (CHIP) analysed by Pearson correlation. The results revealed that there was low positive correlation between HPP and CHIP i.e. +0.078.

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“…Parents and family members of those children who are suffering with beta thalassemia major face acute depression and anxiety (Kermansaravi et al 2018 ). Such feelings originated from the perception that beta thalassemia major is a life sacking disease may ultimately result in a general pessimism about life in the suffering children and their families as well (Mohamadian et al 2018 ).…”

Section: Introductionmentioning

confidence: 99%

Socio-religious Prognosticators of Psychosocial Burden of Beta Thalassemia Major

2020

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The study investigates the socio-religious factors in the propagation of genetically inherited disease of Beta thalassemia. The disorder which reportedly has a significant protraction through repeated cousin marriages results in the social maladjustment of the parents of the sick children due to constant depression, anxiety, and weak social interaction and may lead to social isolation as well. This research aims to find out the significant effect of socio-religious trends on psychosocial burden of beta thalassemia major among cousin and non-cousin couples in the province of Punjab in Pakistan. It takes a sample of 932 parents of sick children, among whom 735 were married with cousins and 197 with non-cousins, for data collection. The findings reveal that inadequate knowledge of the disease, insufficient or misdirected social support, stigmatization, and marriage breakups caused by the disease, superstitions, and misinterpretations of religion and the subsequent practices accordingly as significant predictors of psychosocial burden of beta thalassemia major among non-cousins and cousin couples. Additionally, it also finds patriarchy as only significant predictors of outcome variable among cousin couples.

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Coping Behaviors in Parents of Children with Thalassemia major

Cited by 6 publications

References 15 publications

Integrative Review for Factors Related to Family Functioning in the Family Living with the Children with Thalassemia

Integrative Review for Factors Related to Family Functioning in the Family Living with the Children with Thalassemia

Health promotion practices and coping behaviors among caregivers of children suffering from thalassemia major

Socio-religious Prognosticators of Psychosocial Burden of Beta Thalassemia Major

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