Coping with multiple sclerosis from the perspective of Stevan E. Hobfoll's theory of conservation of resources

Nowaczyk, Natalia; Cierpiałkowska, Lidia

doi:10.1016/j.pin.2016.05.006

Cited by 3 publications

(2 citation statements)

References 9 publications

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“…Given that MS is a degenerative and progressive disorder that diminishes ability to perform activities of daily living and has negative socioeconomic and emotional effects on the individual, family members, and society, medical therapy alone has proven insufficient, requiring psychosocial approaches to help overcome problems caused by this disease (Simpson, McLean, Guthrie, Mair, & Mercer, 2014). MS patients need to acquire greater knowledge and skills, improve their attitudes, and gain access to adequate resources for better coping and adaptation (Nowaczyk & Cierpialkowska, 2016). New healthy coping behaviors that improve self-care and self-sufficiency may be taught through education programs (Kopke et al, 2012).…”

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confidence: 99%

Effect of a transactional model education program on coping effectiveness in women with multiple sclerosis

et al. 2017

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ObjectivesMultiple sclerosis (MS) is a chronic and progressive disease that causes stress due to its unpredictability and lack of definitive treatments. This study examined the effects of an educational program using a transactional model to help women with MS cope with their disease.Materials and MethodsIn a randomized clinical trial, 80 female patients from the MS Society of Iran were randomized to the intervention (n = 40) or a control group (n = 40). Outcomes were assessed using Cohen's Perceived Stress Scale (PSS) and the Jalowiec Coping Scale (JCS), which were completed by both groups at baseline, 1 month, and 3 months after the intervention. The intervention consisted of six educational sessions administered over 2 months based on a transactional model. The data were analyzed using repeated measures ANOVA.ResultsAverage PSS scores decreased significantly over time in the intervention group, while increasing in the control group. Between‐group differences were significant at both 1‐month and 3‐month follow‐up (p < .001). Both problem‐focused and emotion‐focused coping styles improved over time in use and effectiveness in the intervention group, whereas little or no change occurred in these coping behaviors in the control group.ConclusionThe transactional model‐based education program tested here was successful in reducing stress levels and increasing healthy coping styles in women with MS. If these findings are replicated in future studies, widespread adoption of this program may help women with MS cope more successfully with their disease.

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confidence: 99%

Effect of a transactional model education program on coping effectiveness in women with multiple sclerosis

et al. 2017

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“…Výskyt depresie a úzkosti tiež súvisí s nižšou kvalitou života (Peixoto et al, 2017) (Tielemans et al, 2015;van Mierlo et al, 2017). Napríklad u pacientov so sklerózou multiplex sa ukázalo, že tí ktorí využívajú proaktívne zvládanie majú lepší fyzický stav a prežívajú menej symptómov spojených s ochorením (Nowaczyk, Cierpialkowska, 2016). U pacientov po operácii kĺbov sa zasa proaktívne zvládanie spájalo s lepším funkčným zotavením (Greenglass, Marques, de Ridder, Behl, 2005)…”

Section: Funkčný Stavunclassified

Prediktory zmien funkčného a kognitívneho stavu pacientov po CMP

Sollár¹,

Boris²,

Romanová³

et al. 2021

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Rekoncalescencia pacientov po prekonaní cievnej mozgovej príhody (CMP) je kľúčová pre ich ďalší život. Poznanie prediktorov pozitívnych zmien funkčného a kognitívneho stavu môže prispieť k efektívnejšej starostlivosti o pacientov po CMP. Cieľ: Cieľom štúdie je skúmať zmeny vo funkčnom a kognitívnom stave a ich predikciu psychologickými premennými (depresia, úzkosť, kvalita života, proaktívne zvládanie a osobnostné charakteristiky) hodnotenými v akútnej fáze ochorenia. Metódy: Výberovú vzorku tvorilo spolu 127 pacientov po prekonaní CMP, z toho 60% mužov, priemerný vek pacientov bol 67,1 roka. Prvé meranie bolo realizované v akútnej fáze 72 hodín po prekonaní CMP; druhé meranie pri kontrole do 1 roka po prekonaní CMP. Celkový počet opakovaných meraní n=57, pre kombináciu všetkých sledovaných premenných n=40. Pre zber dát boli použité Barthel škála ADL, Mini-Mental State Examination, dotazníky Hospital Anxiety and Depression Scale, Stroke Specific Quality of Life Scale, Utrecht Proactive Competence Coping Scale a Mini IPIP. Výskum bol schválený Etickou komisiou. Výsledky: Zo sledovaných psychologických prediktorov funkčného stavu sa ukazujú hodnotenie kvality života v akútnej fáze po cievnej mozgovej príhode a osobnostná charakteristika otvorenosť voči skúsenosti. Zmeny kognitívneho stavu v akútnej fáze a v čase prvej kontrole sa ukazujú štatisticky nevýznamné. Výsledky naznačujú, že prípadné zmeny nie sú štatisticky významne predikovateľné sledovanými psychologickými premennými. Implikácie: Vnímanie kvality života v akútnej fáze po CMP môže predpovedať pozitívne zmeny funkčného stavu pacientov. Poznanie ďalších potenciálnych prediktorov môže prispieť k efektívnejšej starostlivosti o pacientov po CMP.

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Living With Multiple Sclerosis: The Rainbow of Inspiring Experiences and Resilience in the Face of the Disease

Zare,

Nayeri,

Bahramnezhad

et al. 2024

Health Expectations

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IntroductionMultiple sclerosis (MS), a leading cause of disability in young adults worldwide, including in Iran, affects their whole life so common care is no longer effective. In this regard, context‐based approaches should be considered for a holistic care delivery that accords with the patients' inputs. We aimed to explore patients' understanding of MS and their personal experiences of living with this disease.MethodsA qualitative descriptive study was conducted. The data were collected through in‐depth, semi‐structured interviews with 17 patients. These patients were selected using a purposive sampling method, and the data were analyzed using a conventional content analysis approach.FindingsThree main categories and nine subcategories were identified: Thunder and Lightning strike in the form of Displeasure, Social wrong beliefs, Experiences of Constraints, Interference with Life Stages and Dark Spots on the Horizon of the Future; Subtle Beam consisting of Extrinsic Light Radiation, Reflection of Individual Effort and Formation of a Rainbow by Resilience and Hope for a Bright Future.ConclusionBy offering multidimensional support, patients reported a shift from fear to a vibrant life. Although research often focuses on the negative aspects of MS, this study recognizes both positive and negative aspects. These findings can contribute to future interventional research.Patient or Public ContributionDuring the explanation of research goals and consent acquisition, participants were reminded that sharing their experiences could provide valuable insights benefiting others coping with or at risk of the same disease. Additionally, during data analysis, codes extracted were reviewed and improved with active participant involvement.

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Coping with multiple sclerosis from the perspective of Stevan E. Hobfoll's theory of conservation of resources

Cited by 3 publications

References 9 publications

Effect of a transactional model education program on coping effectiveness in women with multiple sclerosis

Effect of a transactional model education program on coping effectiveness in women with multiple sclerosis

Prediktory zmien funkčného a kognitívneho stavu pacientov po CMP

Living With Multiple Sclerosis: The Rainbow of Inspiring Experiences and Resilience in the Face of the Disease

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